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Owen'sMom

Owen's Enterolab Results

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I just wanted to share those results, his bloodwork and biopsy were negative this fall. We send in the sample for his celiac gene test. We also send in some stool samples to test for soy intolerance as he ran a lowgrade fever the whole time we trialed soymilk with him. Last year his gluten and casein sensitivity came back positive as well.

I will never put him on gluten ever again, even if his results were negative, we have a great positive dietary response and that is all that matters.

If you know your child does poorly with gluten in their diet and all tests come back negative do a gluten free trial or have them tested through enterolab, it is well worth it. No test is foolproof and you should follow your instincts

Gluten Sensitivity Gene Test

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0302

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,8)

Soy Sensitivity Stool Test

Fecal Anti-Soy IgA 24 Units (Normal Range

Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that you have two copies of the main genes that predispose to gluten sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Having two copies of a gluten sensitive or celiac gene means that each of your parents, and all of your children (if you have them) will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac disease may be more severe.

Interpretation of Fecal Anti-Soy IgA: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic "sensitivity" to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

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Good for you for going with your instincts! Too many mothers won't listen to their instincts when doctors don't agree. But we know our kids best.

I am sure Owen will thank you for feeling better.

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I'm osrry but also happy for you that you do have certain blacn and white proof to some extend. Your thorough post also answered my question I was going to aks myself. My son has DQ2 and my daughter has DQ2 and DQ 8! My gastro only looks for antibodies in my blood but not for the genes, so anturally I was curious, how it works with the Genes. Your explanation shows that my daughter with two genes MUST have inherited one from each of us and it didn't come from just one of us! Did I get that right?!

I hope all goes well and your son continues to do well on the diet! The biopsie to me is notoriously in accurate, simpky for the fact that so many kids have all the symptoms to Gluten and the positive response to the gluten-free diet, but not al of them simply had time to develope damage to the intestine yet!. With many it doesn't even occur until they are adults! Until then it's on them and their parents to fight for them selfs, no Taxdeductions nothing, and the damage is already done, a lot of them don't even know of Celiac desease and what it is!! they get trerated for all kinds of other stuuff but not witht he simplest one, meaning going glutenfree! Oh well, I'm counting a lot on the near future, on them coming up with a more accurate "Gold-Standard" and maybe some drops or pill to help prevent the symptoms of glutening if glutenend ect.!

big hugs and MNerry Christmas!

I just wanted to share those results, his bloodwork and biopsy were negative this fall. We send in the sample for his celiac gene test. We also send in some stool samples to test for soy intolerance as he ran a lowgrade fever the whole time we trialed soymilk with him. Last year his gluten and casein sensitivity came back positive as well.

I will never put him on gluten ever again, even if his results were negative, we have a great positive dietary response and that is all that matters.

If you know your child does poorly with gluten in their diet and all tests come back negative do a gluten free trial or have them tested through enterolab, it is well worth it. No test is foolproof and you should follow your instincts

Gluten Sensitivity Gene Test

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0302

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,8)

Soy Sensitivity Stool Test

Fecal Anti-Soy IgA 24 Units (Normal Range

Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that you have two copies of the main genes that predispose to gluten sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Having two copies of a gluten sensitive or celiac gene means that each of your parents, and all of your children (if you have them) will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac disease may be more severe.

Interpretation of Fecal Anti-Soy IgA: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic "sensitivity" to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

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You are allowed to pissed off, shocked, grief you name it. You will probably go through several emotions if this is confirmed by GI and endoscope. I was misdiagnosed as IBS for 20 plus years. So the IBS misdiagnosis decades before the Celiac diagnosis-never surprises AWOL!
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