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debmidge

Reunion Day - First Day Of Winter

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To those who have been away from this forum for a while (months, years) just wanted to let you know you are missed and let us know how you are doing, what you've been up to, etc.

Happy Holidays

Merry Christmas

Happy New Year

Blessings on you and yours now and in the New Year


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Deb, do you remember a man from Florida, who started posting here about 3 or 4 yrs ago and he posted in hours---"I have been gluten free for xx amount of hours and this ......... has happened". Between my hysterectomy and celiac, my memory is shot, and I can't remember what his name was in the forum--his posts were wonderful. He didn't drive, he rode a bike--he was in an accident with his bike and broke a bone, which would not heal--that's when he found out he had celiac disease. His name is Tim, I have his phone #, but never can catch him at home--you know, he is working when I am sleeping and I am working when he is sleeping. I gave him my private email addy and phone # and helped him through so many glutenings that he started calling me his celiac angel.

With busy lives, you lose touch, sad but true of us all. I will have to try and call him this weekend and maybe around midnight tonight, when it seems my mind does it's best thinking, then I will remember his name in this forum!!!!!

Merry Christmas everyone and the Happiest of New Years!!!!!


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I am not able to participate very much because I got healthy (thanks to this forum) and was able to start a new life. I was days away from getting fired from my previous job and found a new one that pays a six figure salary. Of course that means I work 60-70 hours a week but I am healthy enough and grateful enough for a second chance to do that. 2008 looks to be as busy as 2007 was but that is a good thing considering how bad things were at one time. Overall things are good and I have no reason to complain.

I still check in from time to time but that's all I have time for.


If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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Ian--

How nice to hear from you! Glad everything is still going well. Best of luck and much happiness in the new year :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Ian, good to hear things are going so well. I like how you put it as starting a new life, thats what it feels like to be healthy again. I love that :)


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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I am not able to participate very much because I got healthy (thanks to this forum) and was able to start a new life. I was days away from getting fired from my previous job and found a new one that pays a six figure salary. Of course that means I work 60-70 hours a week but I am healthy enough and grateful enough for a second chance to do that. 2008 looks to be as busy as 2007 was but that is a good thing considering how bad things were at one time. Overall things are good and I have no reason to complain.

I still check in from time to time but that's all I have time for.

Ian - so glad to hear from you. Best of everything wished to you in 2008. - Deb


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Thanks everyone.


If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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To those who have been away from this forum for a while (months, years) just wanted to let you know you are missed and let us know how you are doing, what you've been up to, etc.

Happy Holidays

Merry Christmas

Happy New Year

Blessings on you and yours now and in the New Year

Aww, thanks Deb - I definitely fall under the category of those who disappeared for a while... it's definitely a sign that I've adjusted to the diet but I have learned so much from you guys and just wanted to say thanks to everyone that helped me get to where i am with this diet. Maybe when things quiet down a little for me i'll be able to post more regularly again. In the meantime...

HAPPY HOLIDAYS EVERYONE! :)

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Has anyone heard anything from celiac3270?

I saw him recently on the online list....


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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