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    Do you have questions about celiac disease or the gluten-free diet?

lizard00

Where Do I Go From Here?

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hello all!!!

i am pretty new to this website and this whole gluten free thing, so thanks in advance!

for the past year, i had terrible headaches, and all i wanted to do was wake up one morning and feel good. my headaches were occuring almost every day, and i after i ate i would have this naseous feeling in my stomach like i needed to eat more, but it never helped. i was literally exhausted, and somedays it was all i could do to not lay around. it didn't matter what time i went to bed, i woke up exhausted.

over the course of a few months and chiropractic visits (the headaches) i decided to try an elimination diet on my own. i discovered that it was at least wheat, but i noticed it with beer and other things too, that was causing my headaches. i quit eating gluten strictly for two or three weeks and noticed that i stopped waking up tired and my headaches all but quit.

last week i went to the dr for a physical and had her run a celiac panel along with the rest of my bloodwork. i just talked to her today and she said i tested negative for celiac, which would be ok if she hadn't looked at me like i was crazy when i told her my symptoms. i tried to eat gluten on and off for the week or so before i went, and the day before i had gluten.

i'm not sure at this point if i'm just being overly freaked out, or if i should pursue a gastro dr. part of the reason i am concerned is that gluten intolerance seems to run on my dad's side of the family; my aunt, my two cousins and my brother. although none of them have been tested for celiac. i also have a 2 1/2 yr old boy and since it is hereditary, it is a bit of a concern with him, although he doesn't seem to have any symptoms...

any suggestions? and any suggestions on drs for the raleigh/durham area in NC (if there are any fellow Carolinians out there)

THANKS!!!

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Hi and welcome to the board :)

You mentioned going strictly gluten-free for 2-3 weeks--was the Celiac Panel done at that time? If so, it could have been a false negative, as going gluten-free will tend to skew the results.

Since your symptoms have begun to clear with the gluten-free diet, you have actually done the diet challenge and that in and of itself is valid.

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In answer to your question; I ate bread, had a beer and some multi grain chips that day before, and some bread type food a few times the week before.

How common is a false negative on those blood tests?

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