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hi everyone, my name is tamika and i am 20 years old. i have been having symptoms since the birth of my child 1 year ago... they started out mild and didnt happen all the time but they have slowly gotten to the point that i feel sick all the time. i will start out with my symptoms..

stomache cramps

moderate nausea

thick narrowing feeling in my throat (HAS ANYONE ELSE HAD THIS?)

on and off loose stools that float

bloating which is worst at night

loss of sex drive

irritability

mood swings

breathlessness sometimes

feeling of something popping or moving in my abdomen

weight loss

extreme fatigue

cravings

extreme hunger

GERD

there are probably more but i cant think of them at the moment. i knew right from the start of my symptoms that something wasnt right but was to afrid to go to the dr about it or think about it.. i thought from the nausea which is the biggest symptom that something was really wrong with me. but.... i have now been on a gluten free diet as of yesterday and hey guess what.. no nausea and no cramps. i am waay too afraid to go back on the gluten as the nausea was so bad. is there any other way of getting a diagnosis? also has anyone had the same symptoms as me? my partner saw a tv show on extra the other night and immediatly thought that it was exactly what i was going through. i am finding it very hard to eat the gluten free products also they are so yuck and i dont really like vegetables and i cant live off fruit.. what do you guys eat? i cant afford to loose any more weight at the moment i am already a very skinny figure :( ... any ideas are very much appreciated.

thanks tamika xxx

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You could very well be celiac, the birth of my second son is what triggered my celiac 6 yrs ago, but only found out 10 months ago.

When you are only gluten free there is so much out there that u can eat that is mainstream food. You can have any fresh meat and fish, you can have all veggies and fruits. You can use corn toritallas for wraps and breakfast burritoes. Almost all breakfast food is gluten free, just have to read labels for bacon and sausage. You can have lara bars for snacks, many chips are gluten free.

You can be tested threw enterolab if u dont want to go threw doctors and they can tell you if u are gluten intolerant and carry the celiac genes.

If you would be gluten free and do blood work you could very easily get an false negative.

Or you can just stay on the gluten free diet and see how you feel, but you have to be very strict about it.

paula


gluten, casein and soy free

on low carb/low sugar diet

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The thing to remember is if you do want the blood test done you need to stay eating gluten until the test is done. I don't think one day will throw it off but a few days will. It just depends if you are the type of person that needs a specific reading to confirm that or not. If not you can just do the diet and if you feel better then stay on it. Which is what I did, I was gluten lite for a couple of years before I even heard Celiac, so my test came back inconclusive.

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Boy, you've definitely got a lot of things that are associated with celiac disease.

If you are still eating gluten, get the test right away. But remember if it is negative, it doesn't necessarily mean you don't have a potential problem. Since you have symptoms that bother you, you want to clear them up.

You could then get a gene test....I guess you can get them various places. I got one from Enterolab, costs about $169, easy to do. That would reveal whether or not you have a celiac gene and you would then know whether or not you are predisposed to celiac disease.

Finally, be seriously gluten free and give it a month or two to see if your symptoms go away. If they do, you'd want to be gluten free so you feel good, regardless of anything else.

Remember that 40 years ago doctors thought 1 in 10,000 people had celiac disease. Now the figure is 1 in 133, but other doctors think it's more like 1 in 85. And that's just celiac disease. Some doctors think virtually everyone is gluten sensitive to one degree or another, and that probably no one should eat much, if any gluten. Our digestive systems were not designed to handle gluten, which it interprets as a poison.

You're lucky if you figure all this out at 20....I didn't until 56, although in retrospect, if I had the knowledge and info that is out there today, I could have figured it out at 20 because I had various problems all the years until now. In the end, eating wheat/gluten is not worth it. Wheat is addictive, but once you get away from it, it loses its hold over your eating.


CAROLE

-------------

Enterolab 1/2006

IgA & tTg Positive

DQ2-0201 (celiac) and DQ1-0604 (gluten)

Casein IgA positive

Mom has 2 celiac genes

Both kids have a celiac gene.

Lots of celiac disease in my family, both sides.

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Boy, you've definitely got a lot of things that are associated with celiac disease.

If you are still eating gluten, get the test right away. But remember if it is negative, it doesn't necessarily mean you don't have a potential problem. Since you have symptoms that bother you, you want to clear them up.

You could then get a gene test....I guess you can get them various places. I got one from Enterolab, costs about $169, easy to do. That would reveal whether or not you have a celiac gene and you would then know whether or not you are predisposed to celiac disease.

Finally, be seriously gluten free and give it a month or two to see if your symptoms go away. If they do, you'd want to be gluten free so you feel good, regardless of anything else.

Remember that 40 years ago doctors thought 1 in 10,000 people had celiac disease. Now the figure is 1 in 133, but other doctors think it's more like 1 in 85. And that's just celiac disease. Some doctors think virtually everyone is gluten sensitive to one degree or another, and that probably no one should eat much, if any gluten. Our digestive systems were not designed to handle gluten, which it interprets as a poison.

You're lucky if you figure all this out at 20....I didn't until 56, although in retrospect, if I had the knowledge and info that is out there today, I could have figured it out at 20 because I had various problems all the years until now. In the end, eating wheat/gluten is not worth it. Wheat is addictive, but once you get away from it, it loses its hold over your eating.


CAROLE

-------------

Enterolab 1/2006

IgA & tTg Positive

DQ2-0201 (celiac) and DQ1-0604 (gluten)

Casein IgA positive

Mom has 2 celiac genes

Both kids have a celiac gene.

Lots of celiac disease in my family, both sides.

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First, I would get back on gluten and get properly tested if you want to know for sure.

I would also look into other things -- bacterial dysbiosis is one.

I had that gurgling, moving, popping sensation .... I knew I had bacterial dysbiosis and found a product called Humaworm (www.humaworm.com) that gets rid of bad bacteria, parasites, amoeba, protozoa, etc. in the intestine .... much to my shock, I had a rather large tapeworm! Since getting rid of the tapeworm, no more moving, gurgling, etc. in my stomach! Here's an article on them: http://www.questdiagnostics.com/hcp/files/id_news_11.04.pdf


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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thanks everyone you have all been a great help to me. may i ask what enterolab is and how it works? also i live in australia... do they have that test over here? to me the diagnosis really isnt as important as staying nausea free so i suppose i will stay away from gluten for now. some interesting info.... you can actually get a vanilla formula from the chemist with all the vitamins and fats etc. that you need in it and it is GLUTEN free so i am having one of those a day and eating my fruits veg and meat to hopefully gain back some of the weight i have already lost.. tastes quite good too btw. i dont feel as lost as i did before now that i have found you guys so thank you all so much. tamika xxx :D

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Hello Tamika there are a few of us in Australia Enterolab is USA I will pm you. Also look further down the index page at the "International Room" some of us are here

http://www.glutenfreeforum.com/index.php?showtopic=22418

in an Australian/NZ thread


Diagnosed Eczema 1964 aged 16 but with what I know now from research am sure it was Dermatitis Herpetiformis

Diagnosed Irritable Bowel Syndrome 1969 at age 21 but had it from age of 12 many painful episodes over the years( was probably Coeliac all along)

Diagnosed Hashimoto's Disease/Hypothyroid November 1994

Low B12 November 2006

Low B12 (still!) July 2007 Docs are happy with results just above low end of normal..*sigh*....still need to resolve it

Gluten free since October 2006 after failing gluten challenge

Diagnosed Hiatus Hernia and Los Angeles Grade A reflux via endoscopy October 2007

Diagnosed with Coeliac Disease via same endoscopy / biopsy October 2007 (took them long enough!) despite being gluten-free damage still evident although had been taking iron tablets for iron deficiency without realizing they contained gluten. Subsequent blood tests show :Positive Anti-Gliadin IgA EIA antibodies, Positive Endomysial antibodies ,Positive tTG IgA antibodies of 300 ("normal" range 0-15)

Auto-immune disease goes back at least 5 generations in my family (and counting) Mainly Type 1 diabetes and rheumatoid arthritis.

Number 1 Son has Type 1 diabetes ..diagnosed March 2007 at age 31, number 2 son aged 24 is A/I disease free so far ,daughter has lichen planus ( similar to psoriasis) diagnosed 2003 at age 17 am now wondering if it is DH but with flippancy of the young she won't get any testing done

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