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I'm New Here

Erica94

By Erica94
in Meet Up Room

Recommended Posts

Erica94 Rookie
Erica94
Posted

hey! well, i'm new to the forum and to celiac, and i was hoping to meet some other people who would actually get it... i mean, my family's really nice about everything, but i've only been gluten-free for 5 days, and i already feel like i'm just causing a bunch of problems for my family... :(

they've bought a lot of gluten-free food already, and some of it's really good, but i miss normal food! plus, i always feel guilty when some of the food tastes really bad cuz it's expensive... anyone who knows what i mean?

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blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi Erica and Welcome to the Board

I know what you mean, the products are really trial and error. Some taste horrible! I know the first few months I would buy a bag of cookies and they would be rock hard and taste like cardboard! I would spit them out. One good treat that goes over well even with non-celiac's is Gluten Free Pantry's Truffle Brownie mix, boy is that good!

breads are another product which will probably disappoint you. I am not sure if you can get your hands on The Grainless Baker products but they are very good and the sandwich breads tastes well and the texture is good.

It is tough when it comes to families and feelings. It is great they are nice about it, I know some people who's families did not believe them and always offered them gluten containing food. The diet in the beginning is hard enough, if you don't have the support of people around you it will be even harder.

Kraft is a great company when it comes to product labeling, they clearly label their products with gluten containing ingredients, so things won't be hidden on the labels.

Walmart's house brand, Great Value lists on it's products if it is Gluten Free. This is a big Help

Unilever is also another good brand which does not hide it's ingredients.

I am not sure if you are in an area which has a Wegmans but they also label their house brand gluten free.

Outback, Chili's and Texas Road House all offer gluten free menus.

Grainlessbaker.com

Things get easier in the long run and if you have been real sick, once you start feeling better it really helps. I know that was my turning point when I started being able to go to work and stay 8 hrs. I missed so much when I was sick. I hope this info helps you. Feel free to ask any questions. :) Welcome Again!

Amanda

x1x-Stargirl-x1x Apprentice
x1x-Stargirl-x1x
Posted
hey! well, i'm new to the forum and to celiac, and i was hoping to meet some other people who would actually get it... i mean, my family's really nice about everything, but i've only been gluten-free for 5 days, and i already feel like i'm just causing a bunch of problems for my family... :(

they've bought a lot of gluten-free food already, and some of it's really good, but i miss normal food! plus, i always feel guilty when some of the food tastes really bad cuz it's expensive... anyone who knows what i mean?

don't feel bad, i felt like that too, i mean, sometimes when my mom gets stressed out about cooking special for me i still feel bad, but in the end your parents don't mind because it's good for you, and makes you better. don't feel guilty, it's not your fault.

i don't know what you can buy, since my mom makes foods for me, but if you want, just private message me and i'll ask my mom for some good recipes. corn meal and sorghum flour are real good substitutes for flour when cooking!

i probably didn't help much, but i'm always here to talk to!

.::STARGIRL::.

Lilchef Newbie
Lilchef
Posted
hey! well, i'm new to the forum and to celiac, and i was hoping to meet some other people who would actually get it... i mean, my family's really nice about everything, but i've only been gluten-free for 5 days, and i already feel like i'm just causing a bunch of problems for my family... :(

they've bought a lot of gluten-free food already, and some of it's really good, but i miss normal food! plus, i always feel guilty when some of the food tastes really bad cuz it's expensive... anyone who knows what i mean?

Hi!

WOW i've been gluten free for 4 days and i feel the same way. I'm new here too. I tried these cookies and there good but i want real ones, oh and the bread and all the bread stuff is so dry i want to dip it in something. but i wouldn't tell my parents because like you said it's so expensive!

hope things clear up with your family!

Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

Heyness! Welcome to the boards! I completely understand. I've been Gluten-free for four months. I had it easier than you, since my mom been gluten-free for a year or so. But ANYWAY... I can help y'all on the bread issues. There is this awesome bread called Chebe bread. It is God's gift to Celiac mankind. Look for it, I think they sell it a lot of stores. It involves baking, though. Never buy the frozen gluten-free bread (Or any other premade Gluten free bread, for that matter,) unless you want to make french toast with it. (Then, by all means, go ahead!) I'd also go for the kinnickinick Chocolate donuts. And I think that Whole Foods has a brand of frozen Gluten-free waffles that are amazing. Vans, I think it is. I'm one of the daily active Teenagers that actually stays on for any amount of time. Everything will work out. The Diet isn't that bad.

Nina12488 Rookie
Nina12488
Posted

Hi! And welcome!!

I know its hard... I'm still learning and I've been doing this for a few years. Food is all trial and error. There are some products I hated when I first when on the diet that I now love. You get used to the taste I guess, haha.

Any frozen bread.. TOAST... I sometimes even toast mine twice...I really like the Glutino Cheese Bread... (cheese in bread, sounds werid I know.. but it is one of the few I'll make a sandwich with.)

I just found these really good Glutino crackers, they kinda taste like Ritz. Overall, Glutino is a good brand. The "Gluten free pantry" also makes really good products. My health food store also carries a lot of products from England, and those tend to be really good because Celiac is more common over there.

I'm not sure if you like risotto.. but Lunderberg makes a bunch of different flavors and its delicious. Also, the grain quinoa has become popular in my house. My mom will make it and throw in vegetables and feta cheese and stuff and thats been good. Yoplait yogurt is also gluten free if you like that.

Goodluck!!

Nina12488 Rookie
Nina12488
Posted

ohh and sorry I forgot to mention.. Clan Thompson makes some really good pocket guides you can buy on their website!

www.clanthompson.com

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  • 4 weeks later...
Eesha Newbie
Eesha
Posted

Hey!

I totally know how you feel about adjusting to the diet. (I've been gluten-free for five years now). I went through an experiment proces with food brands until I found ones that suited my taste buds. I recommend glutino, foods by george, the grainless baker, Pamela's and the gluten free pantry.

Do you live near a Whole Foods? They make awesome gluten-free sandwich bread (I take it to school everyday). They also have good scones, muffins and biscuits.

Also the problem with a lot of gluten-free bread is that its crumbly and falls apart. Try toasting it. I remember my sandwiches would always be cracked and crumbled by lunch time. But toasting fixes this! But the bread still might be dry...

There's a national support group for teens with celiac disease. The link is on my personal profile.

Good Luck! The diet will get easier!

pixiegirl Enthusiast
pixiegirl
Posted

I just wanted to say hi to all the new young people on the list (no I'm not a teen... but I have one... does that count?).

My daughter has a life threatening peanut allergy and its allergic to nuts too and now she had a positive Celiac test. (I have celiac and have been gluten-free for at least 5 years). Even though all of the meals I cook are gluten-free, she is feeling gyped right now because she can't go out and have pizza with her friends and such.

I'm not sure that she will stay gluten-free (she is 16.5) but I hope so, not only does she feel better but her personality is different now that she has been off gluten for about 3 weeks. She is far more calm, settle, less anxiety. Really to me the mood change is huge.

I can tell you this, if you give this some time, a lot of your bread cravings go away and you also learn about products that are really good. I buy Chebe bread mix... its easy to mix up and we make a flat bread with it in the oven, we use it to dip in oils (olive oil, garlic, parsley, red pepper flakes) and for pizza. Both my daughter and I really love it just out of the oven.

So welcome to the list and hang in there for a while... it gets easier.

Susan

nicoleee Newbie
nicoleee
Posted
hey! well, i'm new to the forum and to celiac, and i was hoping to meet some other people who would actually get it... i mean, my family's really nice about everything, but i've only been gluten-free for 5 days, and i already feel like i'm just causing a bunch of problems for my family... :(

they've bought a lot of gluten-free food already, and some of it's really good, but i miss normal food! plus, i always feel guilty when some of the food tastes really bad cuz it's expensive... anyone who knows what i mean?

Hi! Im new to all of this too, and I know how you feel about everything!

Today will start my third day of gluten-free food. Yesterday was the first time I went shopping for food and I couldn't believe the amount it came to when we paid and I feel like we bought nothing. I couldn't even believe some of the prices of things on the shelves. I felt bad when it came time to pay. I know what you mean about missing the normal food, but I just hope that it will get easier as the days go by. I don't really know what to do about the prices of things I am kind of in the same situation with you there!

cooliactic-BOOM Newbie
cooliactic-BOOM
Posted

i got diagnosed with celi-*ACK* disease four days ago and i already miss the fried chicken and real pizza... and that gluten free frozen "bread" is closer to sawdust than my woodshop class... ive been kinda living off grapefruit and rice crispies for the past three days... hmmmm.... glad to know there might be some real food out there that is still gluten free tho... <_<

home-based-mom Contributor
home-based-mom
Posted
i got diagnosed with celi-*ACK* disease four days ago and i already miss the fried chicken and real pizza... and that gluten free frozen "bread" is closer to sawdust than my woodshop class... ive been kinda living off grapefruit and rice crispies for the past three days... hmmmm.... glad to know there might be some real food out there that is still gluten free tho... <_<

I'm not a teen either, but I once was! :lol: Anyway, I hate to tell ya, but Rice Krispies are not gluten free. There are almost NO "normal" cereals that are gluten-free. For whatever reason, the cereal makers put wheat or barley (but often only labeled "malt") into almost everything. It stinks, but that's the way it is.

If you must coat your chicken before frying, use corm meal. ;) There are LOTS of gluten free real foods, but most of them are unprocessed.

I still miss that hot, fresh Pizza Hut Pepperoni pizza, though. :(

Katester Enthusiast
Katester
Posted
hey! well, i'm new to the forum and to celiac, and i was hoping to meet some other people who would actually get it... i mean, my family's really nice about everything, but i've only been gluten-free for 5 days, and i already feel like i'm just causing a bunch of problems for my family... :(

they've bought a lot of gluten-free food already, and some of it's really good, but i miss normal food! plus, i always feel guilty when some of the food tastes really bad cuz it's expensive... anyone who knows what i mean?

I have the exact same problems!!! I'm new to the site and the disease also. I miss real pizza, you know? I also can't seem to find any bread or crackers that taste normal. As for now, I've been putting peanut butter and jelly on rice cakes but I know that will get old fast. I've found it entertaining and satisfying to make my own food. I bought a cookbook and have been baking new recipes very often. A lot of the recipes are delicious and this way I know they're gluten free. If you want any, just let me know!

Alou123 Rookie
Alou123
Posted
hey! well, i'm new to the forum and to celiac, and i was hoping to meet some other people who would actually get it... i mean, my family's really nice about everything, but i've only been gluten-free for 5 days, and i already feel like i'm just causing a bunch of problems for my family... :(

they've bought a lot of gluten-free food already, and some of it's really good, but i miss normal food! plus, i always feel guilty when some of the food tastes really bad cuz it's expensive... anyone who knows what i mean?

ttly! I have been on the gluten free diet for 2 days! It helps b/c my mom has it and she is happy that we finally figured out what was wrong with us, but I'm tired of being on guard every time i put something in my mouth. I already had to read labels b/c my lil sis is allergic to peanuts. Now I have to read them twice? I just don't know if i'll ever get used to it.

Alou123 Rookie
Alou123
Posted
I have the exact same problems!!! I'm new to the site and the disease also. I miss real pizza, you know? I also can't seem to find any bread or crackers that taste normal. As for now, I've been putting peanut butter and jelly on rice cakes but I know that will get old fast. I've found it entertaining and satisfying to make my own food. I bought a cookbook and have been baking new recipes very often. A lot of the recipes are delicious and this way I know they're gluten free. If you want any, just let me know!

Do you know a gluten-free version of a pb&j????

That would help me!

~Small and Pizza-Less~

boof1024 Newbie
boof1024
Posted

Greetings! I'm really new to this too. I started going gluten free since around Thanksgiving. I was sick for about two years and no one knew what was wrong with me. I had every test done and went to every type of doctor there is...but it was my acupuncturist that helped me and told me to try to cut gluten and dairy out.

It's really really hard. People try to be understanding but it's hard to understand unless you are going through it. The food is expensive but what my mom and I did was we looked online at everyday food items that they sell in a normal food store. The breads of course I have to buy at a special health food store but after sometime it will get easier.

I think the hardest problem is the cravings. My friends and I used to go out to eat a lot and I couldn't do it for a while. Buuuuut there are actually a few restaurants that have a gluten free menu now! Outback for one thing, and it's delicious! Just do a lot of online research and be sure you are getting correct information.

I also would suggest reading the book Gluten Free Girl. I forget who it's by but it's an awesome book and have some yummy recipes in it.

caiticakes Newbie
caiticakes
Posted
I just wanted to say hi to all the new young people on the list (no I'm not a teen... but I have one... does that count?).

My daughter has a life threatening peanut allergy and its allergic to nuts too and now she had a positive Celiac test. (I have celiac and have been gluten-free for at least 5 years). Even though all of the meals I cook are gluten-free, she is feeling gyped right now because she can't go out and have pizza with her friends and such.

I'm not sure that she will stay gluten-free (she is 16.5) but I hope so, not only does she feel better but her personality is different now that she has been off gluten for about 3 weeks. She is far more calm, settle, less anxiety. Really to me the mood change is huge.

I can tell you this, if you give this some time, a lot of your bread cravings go away and you also learn about products that are really good. I buy Chebe bread mix... its easy to mix up and we make a flat bread with it in the oven, we use it to dip in oils (olive oil, garlic, parsley, red pepper flakes) and for pizza. Both my daughter and I really love it just out of the oven.

So welcome to the list and hang in there for a while... it gets easier.

Susan

hmm that story sounds fimiliar :)

nikky Contributor
nikky
Posted

hi im new to the forum, i was diagnosed 2 months ago and i am finding it a lot easier than i expected to, at the start i felt a bit guilty but i have a really supportive family and my consultant is great.

  • 2 weeks later...
Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted
hi im new to the forum, i was diagnosed 2 months ago and i am finding it a lot easier than i expected to, at the start i felt a bit guilty but i have a really supportive family and my consultant is great.

NIKKI???!!!! *tackleglomps* It's LightInTheDarkness from Celiacteens! This is random... I recognized your siggy... if this is the wrong person then by all means I apologize.

nikky Contributor
nikky
Posted
NIKKI???!!!! *tackleglomps* It's LightInTheDarkness from Celiacteens! This is random... I recognized your siggy... if this is the wrong person then by all means I apologize.

Hey yep its me :D

Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

Except here it's... COLORFUL!!! Oh, And I must go.... Piano practice... >.<

nikky Contributor
nikky
Posted

ah whats life without colour

have fun

Lshetler Rookie
Lshetler
Posted

I know how you feel. I'm 21, but I still feel like a teen. I make all my own food and things were going pretty well (it's hard because I'm not healthy enough to work because of celiac's, so my parents are hugely upset that they have to buy my food). I got a lot better, but I still have many problems and hormonal imbalance issues.

Anyways, things were fine and my parents were ok, until I found out about cross contamination... Now my parents think I'm crazy, but I need to get healthy. Somehow I need all new cooking equipment, new utensils, clean counter space, etc... I have no income so I don't know how I can get healthy enough to work. It's like a vicious cycle.

Fortunately my mom has a minor case of it, so she knows that there's some truth to my fanaticism.

Lollipop Newbie
Lollipop
Posted

Hi! I'm becca, i was diagnosed in may of last year. I can totally understand feeling guilty, I have other health problems in addition to celiac (they also deal with food, or at least we think so) and the food that is allergen free and gluten free gets really expensive. Some ideas for food:

Chebe is aweosome

Envirokidz (made by natures path) makes pretty good cereals, but be careful, cuz some aren't gluten free (I know for sure cheetah chomps aren't, I was eating those for a while till i checked the ingredients) if they are gluten free it will say so right on the front

be careful with corn meal cuz some has gluten in it (I think quakers does)

Anyways, feel free to pm me or if you prefer i can give you my email.

becca

num1habsfan Rising Star
num1habsfan
Posted

Welcome new people :). This is definitely the place to make some great friends off the forum and learn a LOT of imformation!! We're always here to help!

If you have any instant messengers and want to actually chat (since you know, its quicker than replying on the board hehe) I'm always up for that, you can find all of mine in my profile and add me. I love talking to people I can relate to especially when it comes to Celiac ;)

~ Lisa ~

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    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Thanks @trents I'll keep that in mind.
    • trents
      11 yo waiting for diagnosis

      By trents · Posted

      One thing to be aware of is that reactions to gluten can sometimes be more severe after having been gluten free for a significant period of time. Something to think about in connection with a gluten challenge.
    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Hi @trents Thanks for your reply and the clarification on terminology—most appreciated. My GP has referred us to a Paediatric Gastroenterologist, and we're waiting for an appointment. She mentioned they might want to do an endoscopy or run further testing. But that often with children they try to avoid scoping them.  She also said it could take months to get an appointment, which is why she recommended starting a gluten-free diet immediately to see if there's any improvement in his symptoms, growth, and blood tests. I have an appointment in 5 weeks with the Paediatrician (who ordered all the tests)—not the Gastroenterologist. I expect the Paediatrician will also recommend a Gastroenterologist referral for further testing and diagnosis. I understand the reasons for confirming with biopsies. I'm just eager to help him feel better and I don't want to keep him eating gluten for months while waiting for a specialist when it's clearly affecting him. I really appreciate your input on this, especially your thoughts about this pointing to celiac rather than NCGS. Intuitively, it feels that way—he's always been incredibly healthy and strong, but he's suddenly wasting away. We're in Australia, so I'm not sure about benefits, etc. and needing a formal diagnosis. I’ll have to investigate.  If necessary to do a gluten challenge down the track for confirmation I'm happy to cross that bridge when I come to it. Thanks so much for your advice!
    • trents
      11 yo waiting for diagnosis

      By trents · Posted

      Welcome to the forum, @cococo!  So. let me first clarify some terminology. Gluten intolerance is a general term that can refer either to celiac disease or NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity" for short). Having said that, in common, informal usage there is still a lot of mix up in the use of the terms "gluten sensitivity" and "gluten intolerance".  Elevated DGP-IGG can certainly indicate celiac disease but the IGG tests are considered not quite as specific for celiac disease as are the IGA tests, especially the TTG-IGA. If it were the TTG-IGA that gave a 250 score it would have been grounds for declaring an official diagnosis of celiac disease without further testing in the UK and many European countries. With children, however, because their immune systems are immature, we often see their celiac disease show up in the IGG tests rather than the IGA tests. Has their been any talk about an endoscopy with biopsy of the small bowel lining to confirm or disprove a diagnosis of celiac disease? The endoscopy/biopsy is considered the gold standard of celiac disease diagnosis. Physicians are not eager to do scoping on pediatric patients, however, and try to avoid that unless there is a very good reason for it.  I think to proceed with a gluten free diet experiment at this time is a reasonable approach. If there is improvement in labs, symptoms and growth then it is reasonable to assume that there is celiac disease to blame or at least NCGS. At the end of the day, both conditions require a gluten free diet anyway. But I would also have to say that when looking at the total body of evidence you present, it looks much more like celiac disease than NCGS.  One caution, however, and that is if you are in the UK there are certain government provided benefits that incur from a formal diagnosis of celiac disease. I mention that because some of your spelling suggests that to me.
    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Hi all, I'd love some feedback on my 11 year old son who is waiting for a diagnosis. He has been unwell for about 6 months. His symptoms include: early morning (4/5am) nausea and vomiting, loose bowels, fatigue, headaches, aching legs, persistent dermatitis on cheeks. Recently, I noticed he wasn't growing as expected. After measuring him, we found his height had dropped from above 50th percentile to 25th, and weight from 50th percentile to 5th. I took him to our GP who confirmed he only grew 2cm in the past year and lost weight, and subsequently referred us to a paediatrician. We saw the paediatrician who ordered extremely comprehensive tests (including urine and poo testing, x-ray on wrist, hormones, thyroid, liver, kidney, diabetes checks, etc). While waiting for all results, our GP received some preliminary findings indicating coeliac disease. The GP recommended starting a gluten-free diet and referred us to a paediatric gastroenterologist. Most test results are normal except: Iron levels:  18 (normal range 20-200) Anisocytosis and Microcytosis (abnormal sized red blood cells indicating iron deficiency anaemia) Coeliac-related results: DGP IgG:     >250 (normal <15) DGP IgA:      8 (normal <15) Tissue IgA:   1 (normal <15) Tissue IgG:   1 (normal <15) Genetic markers are present for coeliac A comment was made on the blood tests that total serum IgA would be tested and commented on if below 0.07. There was no comment so I assume it wasn’t that low. While I understand it could be coeliac disease, gluten intolerance, or wheat allergy, his significant growth issues suggest coeliac. The paediatrician won't see me for 5 more weeks (because he's waiting for one more test he did on his chromosomes), but I'm concerned about waiting that long given his symptoms. Clearly he shouldn't be eating gluten regardless of the diagnosis, and I'm keen to help him feel better and start growing again, especially with puberty approaching. The blood tests were extremely comprehensive and ruled out everything except coeliac disease or a strong gluten intolerance. My GP is adamant it must be coeliac because of his symptoms. My GP said, "Don't worry about the chromosome test—that's just precautionary. His blood tests, weight loss, lack of growth, iron deficiency, fatigue, dermatitis, and other symptoms all point to coeliac." Would starting a gluten-free diet now and doing a gluten challenge later be unreasonable? (I do understand the reason to wait for a clear diagnosis, I just want him to feel better. Also, he is homeschooled so I can very much be in control of his food to ensure no cross contamination, etc) Also, does anyone have experience with highly elevated DGP IgG (but normal other results) and testing positive for coeliac? For what its worth, I personally have had many checks for Coeliac over the years and the results are always "unclear". Apparently I'm a complicated case, so I just eat gluten-free. Thanks!
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