Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

LuchoWa

2 Yr Old - 6 Days Gluten-free & Still Distended Abdomen!

Rate this topic

Recommended Posts

My daughter who is 2 year old and was diagnosed with Celiac last week, has been gluten-free for almost a week (6 days). Yesterday, we saw some improvements but today her belly is extremely distended.

Does anyone knows if this is normal? How long should it take for the abdomen to go back to normal??

Most postings in this blog talk about miraculous results after a couple of days gluten-free, we have not seen anything that dramatically! Could it be that she is lactose intolerant??

Any advice would be highly appreciated.

Thanks

Worried father!

Share this post


Link to post
Share on other sites

If she had villi damage, there is a good chance she is lactose intolerant. Many recommend avoiding dairy for the first few months.

Also, though six days seems like an eternity, it's really not. Healing takes time. Many here take many months to heal.

Another thing is that it often takes time to completely eliminate gluten. It's hidden, there are contamination issues, etc. It takes time to learn all about what to avoid. So, keep reading, and keep perfecting her diet. She'll see improvement. There will be ups and downs as she heals.

Share this post


Link to post
Share on other sites

It takes longer than 6 days to heal from Celiac. It can take from weeks to months, and in a small minority of patients, longer than that.

Gluten has to get out of her system, the damage has to be repaired, and then her body needs to replenish all the stuff that she has been malabsorping.

From a great site: http://www.celiacdiseasecenter.columbia.ed...nts/A02-FAQ.htm

Q: I've just been diagnosed with celiac disease. How soon will I feel better?

Most patients respond rapidly to a gluten-free diet and will often report an increased feeling of well-being. How well they feel, and how quickly, may vary depending on the nature, severity and duration of symptoms prior to diagnosis. There may also be some "ups and downs" as they work toward the goal of eliminating all gluten from their diet. There is usually a learning curve to finding what food, drink and drug products are safe and which contain gluten.

From another reputable site: http://www.celiacdisease.net/treatment

For most people, following this diet will stop symptoms, heal existing intestinal damage, and prevent further damage. Improvements begin within weeks of starting the diet, and the small intestine is usually completely healed--meaning the villi are intact and working--in 6 to 18 months. (It may take up to 2 years for older adults.)

Best of luck. Keep on the gluten free diet, 100%.

This website has a list of companies that will clearly list any gluten sources (wheat, rye, barley, malt, oats). http://www.glutenfreeindy.com/foodlists/index.htm It may make shopping easier not having to worry about hidden gluten.

Share this post


Link to post
Share on other sites

:) My daughter's abdomen took about six weeks to go down, and it took about a year for her to feel consistently fine. Cutting out most overt dairy really helped at first. We did notice and improvement after about a week, but it has taken a long time for full health.

She was 10 when she was diagnosed.

HTH :)

Share this post


Link to post
Share on other sites

We kept the dairy in, and it took about 4 months for my son (3 now 4) stomach to stop hurting and for his poop to look more normal.

It takes a long time for a lot of kids. Be patient. It also takes a while to get a grip on the diet, and to get used to all the stuff you have to do to make sure they're not getting any cross contamination.

Best of luck to you!

Share this post


Link to post
Share on other sites

When my son was diagnosed, we were told to crush up half a tablet of Lactaid and mix it with a little water or food each time before we gave him dairy since the enzyme that breaks down lactose is the first to go when Celiac Disease is active. Verify that it's still gluten free, and try it out. It really helped us.

My son (diagnosed at 2) had seen dramatic improvement on the 9th day, going from being awake for only a total of 3 hours out of the day and walking only a few feet, to suddenly on that very day walking to the point of stumbling and refusing to sleep just because he could move for the first time in months. This being said, the distended belly did not go away. In fact, his distended belly has finally started going away now after 2 years. And if for some reason he hasn't gone in a couple of days (he's still has issues with pooping, mainly because he's afraid of it still, so any change in routine such as people visiting, out a little late, etc., he holds it in), it's distended almost to the point of looking like he did when he was really sick, except at least this time we don't see veins popping out of his skin every time something starts to move in his intestines.

That distended belly problem is one mother of a problem!

Share this post


Link to post
Share on other sites

Thanks for the great feedback. It helps me to understand what to expect. The Lactaid is a great idea.

When my son was diagnosed, we were told to crush up half a tablet of Lactaid and mix it with a little water or food each time before we gave him dairy since the enzyme that breaks down lactose is the first to go when Celiac Disease is active. Verify that it's still gluten free, and try it out. It really helped us.

My son (diagnosed at 2) had seen dramatic improvement on the 9th day, going from being awake for only a total of 3 hours out of the day and walking only a few feet, to suddenly on that very day walking to the point of stumbling and refusing to sleep just because he could move for the first time in months. This being said, the distended belly did not go away. In fact, his distended belly has finally started going away now after 2 years. And if for some reason he hasn't gone in a couple of days (he's still has issues with pooping, mainly because he's afraid of it still, so any change in routine such as people visiting, out a little late, etc., he holds it in), it's distended almost to the point of looking like he did when he was really sick, except at least this time we don't see veins popping out of his skin every time something starts to move in his intestines.

That distended belly problem is one mother of a problem!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
I enjoy listening to Ted Talks.  I found this one on dementia.  The take?  No success in developing drugs to stop dementia, so they are looking for ways to prevent it through diet!  Food can heal!   https://m.youtube.com/watch?v=f0WCb23KPEw Interesting!  
  • Blog Entries

  • ×
    ×
    • Create New...