Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Sukie

Still Having Stomach Bloating

Rate this topic

Recommended Posts

I'm hoping someone can give me some guidance.. I went to the doctor because I was having diarrhea for about 6 months. She gave me some medicine for IBS which I quit taking because it just slowed everything down and my other symptoms weren't relieved. I went online and read abuot gluten intolerance and quit eating it altogether and felt instantly better within 2 days. Now, I don't have the diarrhea, but I still feel like Santa Claus and I"m now having the OPPOSITE problem. I've taken citrucel and fiber sure both of which HELP, but make it too bulky?? Anyway, I haven't been back to my doctor since she gave me the med for IBS. Do I now need to go back to her, or see a specialist and if so what kind?? Does anyone recommend the Celiac Disease test?? I've heard conflicting stories.

Share this post


Link to post
Share on other sites
I'm hoping someone can give me some guidance.. I went to the doctor because I was having diarrhea for about 6 months. She gave me some medicine for IBS which I quit taking because it just slowed everything down and my other symptoms weren't relieved. I went online and read abuot gluten intolerance and quit eating it altogether and felt instantly better within 2 days. Now, I don't have the diarrhea, but I still feel like Santa Claus and I"m now having the OPPOSITE problem. I've taken citrucel and fiber sure both of which HELP, but make it too bulky?? Anyway, I haven't been back to my doctor since she gave me the med for IBS. Do I now need to go back to her, or see a specialist and if so what kind?? Does anyone recommend the Celiac Disease test?? I've heard conflicting stories.

Your problem may not be gluten alone. Many of those intolerant to gluten also have problems with dairy (either lactose intolerant or casein allergy or both) or soy or other grains such as corn. I was immediately better after going gluten-free, but continued to have problems. I had the Allergix IGg blood test

for 90 different foods and they came back positive for milk, beef, cranberries, yeast and chocolate. When I cut them out all of the problems (digestive and rashes) disappeared.

Good luck with the doctors - they are always looking for horses but gluten-free people are zebras.

Share this post


Link to post
Share on other sites

My suggestion is to cut out dairy (and anything with casein or caseinate added to it). This can cause both bloating and constipation. It could be that your body reacts one way to gluten and another to casein. Take away the gluten and the casein reaction can take over. Or you could be lactose intolerant, too.

How long have you been gluten-free, by the way? It took my system quite some time to work its way back to normal.

Did you ADD anything to your diet when you went gluten-free, or start having appreciably more of something? If so, that could be your culprit.

Share this post


Link to post
Share on other sites
I'm hoping someone can give me some guidance.. I went to the doctor because I was having diarrhea for about 6 months. She gave me some medicine for IBS which I quit taking because it just slowed everything down and my other symptoms weren't relieved. I went online and read abuot gluten intolerance and quit eating it altogether and felt instantly better within 2 days. Now, I don't have the diarrhea, but I still feel like Santa Claus and I"m now having the OPPOSITE problem. I've taken citrucel and fiber sure both of which HELP, but make it too bulky?? Anyway, I haven't been back to my doctor since she gave me the med for IBS. Do I now need to go back to her, or see a specialist and if so what kind?? Does anyone recommend the Celiac Disease test?? I've heard conflicting stories.

I also had this problem after giving up gluten 2 months ago. I gave up dairy (lactose) a month ago and things improved again but mild constapation was a problem until I tracked down cassein as a culprit, it's in lactose free milk, rice cheese, soy cheese. Try this for 6 months and you may be able to add some dairy back into your diet.

I have not been diagnosed as coeliac. The only test my doctor offered me was the single blood test a year ago which proved low IgG score therefore it's unlikely that I have coeliac disease i.e bad villous atrophy. However, I feel much better on this diet, no diarhea, no stomache ache, nausea, gas, bloating (unless accidentally eaten a glutinous food) and better digestion of other foods I prevoiusly thought 'difficult' - beans, raw vegatables, red meat. My mother and grandmother are coeliac/Dermititis Hepitiformis respctively and only found out when they reached 60. My mother has suffered a host of illnesses relating to gluten, anemia etc. I didn't want to wait intil I got really sick like her before trying this gluten-free diet and have been told by a couple of other doctors that if it makes you better then it probably is gluten.

Do get tested but if all comes back negative but you get better on a gluten-free diet. Stick with it, it's just not worth being sick all the time!

Share this post


Link to post
Share on other sites
Your problem may not be gluten alone. Many of those intolerant to gluten also have problems with dairy (either lactose intolerant or casein allergy or both) or soy or other grains such as corn. I was immediately better after going gluten-free, but continued to have problems. I had the Allergix IGg blood test

for 90 different foods and they came back positive for milk, beef, cranberries, yeast and chocolate. When I cut them out all of the problems (digestive and rashes) disappeared.

Good luck with the doctors - they are always looking for horses but gluten-free people are zebras.

Thanks to all of you for your input. I will definitely try to cut out the dairy, although I will find this difficult. I did finally go back and they did a blood test for celiacs disease which came back negative. They did however find out ( after a few very uncomfortable tests ) that I have an intestinal parasite, and diverticulosis. They told me to stay away from nuts and seeds. I do feel MUCH better. but not 100% and I'm staying gluten free.

If I go off of dairy does that include any and everything that has milk in it?? Could I try lactose free cheese or milk?? And is casein found in all dairy products??

Share this post


Link to post
Share on other sites
If I go off of dairy does that include any and everything that has milk in it?? Could I try lactose free cheese or milk?? And is casein found in all dairy products??

Casein isn't found in ghee, because that is 100% fat. I've heard that butter has very little casein, but still has some. Lactose-free products will obviously spare you the lactose (the sugar) but not casein (the protein).

To avoid casein, you have to avoid all dairy ingredients (milk, cream, yogurt, cheese, whey, etc.) plus anything with casein or a caseinate in the list of ingredients. The latter thing can trip people up if they don't look. Casein gets added to things labeled as "veggie" cheese, for instance.

Share this post


Link to post
Share on other sites
Thanks to all of you for your input. I will definitely try to cut out the dairy, although I will find this difficult. I did finally go back and they did a blood test for celiacs disease which came back negative. They did however find out ( after a few very uncomfortable tests ) that I have an intestinal parasite, and diverticulosis. They told me to stay away from nuts and seeds. I do feel MUCH better. but not 100% and I'm staying gluten free.

If I go off of dairy does that include any and everything that has milk in it?? Could I try lactose free cheese or milk?? And is casein found in all dairy products??

Share this post


Link to post
Share on other sites

If you were on a gluten-free diet when you got your blood test, you can't be diagnosed properly. The test measures antibodies in your blood. Celiacs only make antibodies in response to gluten. If you want a proper diagnosis, you have to do a gluten challenge. I can't believe your doc tested you although you have been gluten free. It's a wasted test.

You should see a GI who understands celiac disease. In what city will you be going to a doctor? Maybe we on the boards can help you find a good one.

Another cause of bloating in a healing celiac is SIBO, or small intestinal bacterial overgrowth. It can be treated with the Specific Carbohydrate Diet (see Elaine Gottshall's "Breaking the Vicious Cycle") or with intestine-specific antibiotics. If your doctor isn't aware that this is a common occurence after celiac disease diagnosis, you should get another GI or try to educate him.

Others are on the right track about other food allergies. I'd investigate that first.

Kit

Share this post


Link to post
Share on other sites
If you were on a gluten-free diet when you got your blood test, you can't be diagnosed properly. The test measures antibodies in your blood. Celiacs only make antibodies in response to gluten. If you want a proper diagnosis, you have to do a gluten challenge. I can't believe your doc tested you although you have been gluten free. It's a wasted test.

You should see a GI who understands celiac disease. In what city will you be going to a doctor? Maybe we on the boards can help you find a good one.

Another cause of bloating in a healing celiac is SIBO, or small intestinal bacterial overgrowth. It can be treated with the Specific Carbohydrate Diet (see Elaine Gottshall's "Breaking the Vicious Cycle") or with intestine-specific antibiotics. If your doctor isn't aware that this is a common occurence after celiac disease diagnosis, you should get another GI or try to educate him.

Others are on the right track about other food allergies. I'd investigate that first.

Kit

Share this post


Link to post
Share on other sites

thanks for that information. I will definitely go to a gi. My bloating is out of control, even if I DON'T eat, it's ridiculous. Also, my abdomin makes very loud noises quite often. Hopefully I will get this resolved soon, but thanks everyone for all of the useful info.!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,791
    • Most Online
      4,125

    Newest Member
    udayshankar
    Joined
  • Forum Statistics

    • Total Topics
      112,059
    • Total Posts
      956,643
  • Who's Online (See full list)

  • Forum Discussions

    Hi, Thanks for your answer! Unfortunately I have to follow the MAOI diet for as long as I'm taking the MAOI, so essentially nobody's going to be inviting me round to dinner from now on… This is a bit of a shock. I don't really have any clear-cut symptoms that I would've considered worth going to the GP about. I mean I'm always tired and I have a bit of IBS and so on but generally I put that down to the other things wrong with me and the medication I have to take for them (mostly the bi
    Thanks Posterboy, that was interesting information.  I believe that I had read something elsewhere about tetracycline, at least, being used instead of, or along with, Dapsone for severe or refractory cases of DH. Unfortunately, even if I had medical insurance (which I do not), and had a regular doctor who was even willing to recognize and accept my condition for what it is, I don't know what kind of luck I would have in persuading that hypothetical doctor to give me a particular and non-sta
Healthysquirrel,  Please have your doctor check your Vitamin D level!   Vitamin D deficiency is related to vertigo https://www.ncbi.nlm.nih.gov/pubmed/27386060 Vitamin D can help with high IgE https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5263170/ Low vitamin D and low ferritin are tied https://www.ncbi.nlm.nih.gov/pubmed/29385099 Dry eye problems including blepharitis can be helped with vitamin d and vitamin a https://www.ncbi.nlm.nih.gov/pmc/articles
  • Blog Entries

  • ×
    ×
    • Create New...