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misdiagnosed6yrs

Gas Pains? What Could It Be

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The pains in my stomach are getting so bad that I just don't want to eat any more.

It's not gluten. It's not dairy, soy, casein, nuts, shellfish.. etc.. I have been doing an elimination diet since dec 26th. Everyday, I seem to be cutting out more and more food. I am getting worse with each day. I'm to the point where I eat and am instantly in pain. (its not gluten). My stomach hurt so bad last night that when I drank water, It hurt. I don't know how to explain it but trust me. I felt the water actually enter my stomach and bam! cramp/pain.

I have been posting under elimination diet gone wrong and tweaking the foods constantly.

I need to see a doctor but I have no insurance.

Please help

Which kind of dr. do I see? PCP, gastro?

What do I tell them?

What tests do I ask them to run?

What suggestions should I give them?

Thank You.

Bobbi

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Are you taking any OTC drugs to help with the gas? Not all are safe and while they can relieve the symptoms they can cause them to come back. A for sure safe one that helps many of us a lot is name brand Pepto Bismal.

You should start out with an internist. Hopefully you have been keeping a food diary that may help. He will start out with the routine run of testing and should also test your iron, B12 and folate levels. You could ask him for a celiac panel but if you have been gluten free the results may well be a false negative. You may want to ask for a referral to an allergist who can guide you in the elimination diet also. You really can't bounce around with stuff, they are a very long process that usually takes at least a couple months.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Are you taking any OTC drugs to help with the gas? Not all are safe and while they can relieve the symptoms they can cause them to come back. A for sure safe one that helps many of us a lot is name brand Pepto Bismal.

You should start out with an internist. Hopefully you have been keeping a food diary that may help. He will start out with the routine run of testing and should also test your iron, B12 and folate levels. You could ask him for a celiac panel but if you have been gluten free the results may well be a false negative. You may want to ask for a referral to an allergist who can guide you in the elimination diet also. You really can't bounce around with stuff, they are a very long process that usually takes at least a couple months.

I have been keeping a food diary but I was just looking it over and it's missing things. I also havent been noting my symptoms on it. Should I?

What is an internist? I am gluten-free.

I don't take any OTC drugs. I'm on thyroid meds and sleep meds. All of which are gluten-free.

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The pains in my stomach are getting so bad that I just don't want to eat any more.

It's not gluten. It's not dairy, soy, casein, nuts, shellfish.. etc.. I have been doing an elimination diet since dec 26th. Everyday, I seem to be cutting out more and more food. I am getting worse with each day. I'm to the point where I eat and am instantly in pain. (its not gluten). My stomach hurt so bad last night that when I drank water, It hurt. I don't know how to explain it but trust me. I felt the water actually enter my stomach and bam! cramp/pain.

I have been posting under elimination diet gone wrong and tweaking the foods constantly.

I need to see a doctor but I have no insurance.

Please help

Which kind of dr. do I see? PCP, gastro?

What do I tell them?

What tests do I ask them to run?

What suggestions should I give them?

Make sure its not ovarian cancer. I'm trying to think of the symptoms ... I know it includes bloating, becoming full when eating and difficulty eating, pain in pelvis area? not sure if its just pelvis or not. Frequent urination. I know I just read them not long ago but my memory is gone.

Anyway I thought I'd mention this because early detection is key, and you just want to rule it out.

Good luck,

Gail


Gluten Free since Jan. 06

Gluten intolerant. DQ 0301 DQ 0602

Lactose intolerant.

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I have been keeping a food diary but I was just looking it over and it's missing things. I also havent been noting my symptoms on it. Should I?

What is an internist? I am gluten-free.

I don't take any OTC drugs. I'm on thyroid meds and sleep meds. All of which are gluten-free.

Yes, you do need to list symptoms on the food diary. Intolerances cause delayed reactions so you need to list the way you are feeling (be sure to note all symptoms and not just physical ones) and I would also list the times and quality of your bowel movements. I used a little note pad and made rows to note the effects when they occured. The top of the page listed the food, how I was feeling, and bowel and urine columns with a space for the time that I noted the symptom or injested the food.

An internist is an internal medicine doctor. A general practitioner or family doctor would be about the same thing. They would be the place to start and would be the doctors to refer you to a specialist if needed.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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