Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gas Pains? What Could It Be


misdiagnosed6yrs

Recommended Posts

misdiagnosed6yrs Apprentice

The pains in my stomach are getting so bad that I just don't want to eat any more.

It's not gluten. It's not dairy, soy, casein, nuts, shellfish.. etc.. I have been doing an elimination diet since dec 26th. Everyday, I seem to be cutting out more and more food. I am getting worse with each day. I'm to the point where I eat and am instantly in pain. (its not gluten). My stomach hurt so bad last night that when I drank water, It hurt. I don't know how to explain it but trust me. I felt the water actually enter my stomach and bam! cramp/pain.

I have been posting under elimination diet gone wrong and tweaking the foods constantly.

I need to see a doctor but I have no insurance.

Please help

Which kind of dr. do I see? PCP, gastro?

What do I tell them?

What tests do I ask them to run?

What suggestions should I give them?

Thank You.

Bobbi

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you taking any OTC drugs to help with the gas? Not all are safe and while they can relieve the symptoms they can cause them to come back. A for sure safe one that helps many of us a lot is name brand Pepto Bismal.

You should start out with an internist. Hopefully you have been keeping a food diary that may help. He will start out with the routine run of testing and should also test your iron, B12 and folate levels. You could ask him for a celiac panel but if you have been gluten free the results may well be a false negative. You may want to ask for a referral to an allergist who can guide you in the elimination diet also. You really can't bounce around with stuff, they are a very long process that usually takes at least a couple months.

Link to comment
Share on other sites
misdiagnosed6yrs Apprentice
Are you taking any OTC drugs to help with the gas? Not all are safe and while they can relieve the symptoms they can cause them to come back. A for sure safe one that helps many of us a lot is name brand Pepto Bismal.

You should start out with an internist. Hopefully you have been keeping a food diary that may help. He will start out with the routine run of testing and should also test your iron, B12 and folate levels. You could ask him for a celiac panel but if you have been gluten free the results may well be a false negative. You may want to ask for a referral to an allergist who can guide you in the elimination diet also. You really can't bounce around with stuff, they are a very long process that usually takes at least a couple months.

I have been keeping a food diary but I was just looking it over and it's missing things. I also havent been noting my symptoms on it. Should I?

What is an internist? I am gluten-free.

I don't take any OTC drugs. I'm on thyroid meds and sleep meds. All of which are gluten-free.

Link to comment
Share on other sites
bluejeangirl Contributor
The pains in my stomach are getting so bad that I just don't want to eat any more.

It's not gluten. It's not dairy, soy, casein, nuts, shellfish.. etc.. I have been doing an elimination diet since dec 26th. Everyday, I seem to be cutting out more and more food. I am getting worse with each day. I'm to the point where I eat and am instantly in pain. (its not gluten). My stomach hurt so bad last night that when I drank water, It hurt. I don't know how to explain it but trust me. I felt the water actually enter my stomach and bam! cramp/pain.

I have been posting under elimination diet gone wrong and tweaking the foods constantly.

I need to see a doctor but I have no insurance.

Please help

Which kind of dr. do I see? PCP, gastro?

What do I tell them?

What tests do I ask them to run?

What suggestions should I give them?

Make sure its not ovarian cancer. I'm trying to think of the symptoms ... I know it includes bloating, becoming full when eating and difficulty eating, pain in pelvis area? not sure if its just pelvis or not. Frequent urination. I know I just read them not long ago but my memory is gone.

Anyway I thought I'd mention this because early detection is key, and you just want to rule it out.

Good luck,

Gail

Link to comment
Share on other sites
ravenwoodglass Mentor
I have been keeping a food diary but I was just looking it over and it's missing things. I also havent been noting my symptoms on it. Should I?

What is an internist? I am gluten-free.

I don't take any OTC drugs. I'm on thyroid meds and sleep meds. All of which are gluten-free.

Yes, you do need to list symptoms on the food diary. Intolerances cause delayed reactions so you need to list the way you are feeling (be sure to note all symptoms and not just physical ones) and I would also list the times and quality of your bowel movements. I used a little note pad and made rows to note the effects when they occured. The top of the page listed the food, how I was feeling, and bowel and urine columns with a space for the time that I noted the symptom or injested the food.

An internist is an internal medicine doctor. A general practitioner or family doctor would be about the same thing. They would be the place to start and would be the doctors to refer you to a specialist if needed.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,193
    • Most Online (within 30 mins)
      7,748

    Kmd2024
    Newest Member
    Kmd2024
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DjinnDjab
      i am a 37 yo male and this describes me perfectly. on a scale of 1-10, i am at 8. 9. 10, 11 for 8-12 hours a day, 6-7 days a week. this has been going on for about 5 years and i just found out i may have celiac. so needless to say i no longer have friends or relationships so i spend a lot of time with myself. and uhhh what really sucks is uhh, sorry to say, "enjoying myself" is a trigger for this pain. i can be fine all day until i take 5 mins to "myself" and then its all downhill from there. this has robbed me of every.single.thing in my once colorful life. 
    • cristiana
      This might be helpful - from Coeliac UK.   https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=Usually%2C a biopsy of the,more about diagnosis of children.
    • Scott Adams
      Yes, wheat is common in most soy sauces now because it speeds up the fermenting process.
    • JoeBlow
      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
×
×
  • Create New...