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JennyC

Once Well Adjusted To The gluten-free Diet & Lifestyle...

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My son has been gluten free since March 2007. I think we have done a very good job with the diet. I do buy processed foods, like cocoa pebbles and Ora-Ida fries, but I have also learned some brands to avoid due to cross contamination. We have also replaced everything in the kitchen except glass things. No food or utensil touches any kitchen surface. We are mindful of gluten in non-food items too. I don't put any gluten products on my or my son's body. Even the dish soap is gluten free and the very few dirty gluten dishes are kept separately. We also VERY rarely eat out. My son's daycare provider even "gets it" and also does all of the above things!

So, why does my son get diarrhea about once or twice a week? :( I feel that we are so careful. How often do people well adjusted to the gluten free diet get D? Is this normal? His tTG is down to below normal range. We went from 21 to 4.3 in eight months (normal tTG range is below 7).

Please help!!! Thank you.


Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.

Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

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Is Cocoa Pebbles the one that added gluten back in recently? Or was that another mainstream chocolate cereal? You might want to check that.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Maybe he has another food intolerance too, like dairy or soy.

Those can certainly cause upset digestive systems too.


Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07

Enterolab positive for gluten, casein, soy, egg

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07

Casein free 8/27/07

Soy & egg free 9/8/07

Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09

Starting various supplements/vitamins in hopes of feeling better!

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Thanks for the replies. He was tested for common food allergies and tested negative. I'm just wondering if this is normal??? :unsure: Maybe I should contact his ped. gastro and do additional allergy tests. I just hate putting him through that. If he does not have common food allergies it could be any little thing. A little boy only has so much blood to give away! :(


Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.

Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

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please use enterolab for the food allergy testing. They are the only ones i have 100 percent confidence in. www.enterolab.com


28 yr old Male

Diagnosed Celiac in February 2007

Gluten-free/Casein Free

HLA DQ 2,3 Subtype (2,8) I have both celiac genes!

Married

1 child 9 months- Levi

Yeast/Bacteria overgrowth

" CHANGE THE WAY YOU LOOK AT THINGS AND THE THINGS YOU LOOK AT CHANGE"

Wayne Dyer

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it depends on what else he's taking in. if I eat too many banana muffins, with all their flax meal, I'll get looser stools. if I come across something that doesn't sit well with my stomach, (sometimes happens at a restaurant, and I don't think it's gluten, because that usually has the opposite effect on me), I'll get it. if I get a stomach virus, that'll do it. if I'm on a med that bothers me, that'll do it too. if I were taking in too much magnesium, without something to balance it out, that would do it. if I had way too much of some vegetables (sometimes spinach or beets will do it to me), that's set me off as well.

perhaps keep a food diary?


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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it depends on what else he's taking in. if I eat too many banana muffins, with all their flax meal, I'll get looser stools. if I come across something that doesn't sit well with my stomach, (sometimes happens at a restaurant, and I don't think it's gluten, because that usually has the opposite effect on me), I'll get it. if I get a stomach virus, that'll do it. if I'm on a med that bothers me, that'll do it too. if I were taking in too much magnesium, without something to balance it out, that would do it. if I had way too much of some vegetables (sometimes spinach or beets will do it to me), that's set me off as well.

perhaps keep a food diary?

Thanks. I think maybe it was too much yogurt. I know some people here mentioned it can give them problems.


Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.

Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

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