Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


I Want To Prove To Doc That One Must Eat Gluten Before Blood Tests

Rate this topic

Recommended Posts


I've been gluten free for 4 years, it has changed my life. I live in a new place, so new doc. This doc wants to re-order all tests and another biopsy as he suspects IBS instead. (I found out the medication I was taking contained wheat starch and I had this one really terrible episode of diarrhea and abdominal pain in November. Pharmacy said, it was gluten free-manufacturer of drug said it did have wheat...so I was taking it for 2 weeks as I got sicker and sicker) Forget the fact that I have lived with this disease and biopsy 4 years ago showed celiac. He ordered the blood work, I asked if I had to eat wheat-and was told no. I've just cancelled all my tests, biopsy...this is nuts...I'm not asking him for a second opinion on a proven diagnosis.

Is there a sight with lab protocol I could copy to educate this doctor? I'm not going back to him, but I also want to write a nice letter explaining why I am confident he is not the doctor for me.

Thank you!

Share this post

Link to post
Share on other sites

From Dr. Peter Green of Columbia University's Celiac Disease Center:


"A gluten-free diet should not be started until all diagnostic tests are completed, as the withdrawal of gluten can change test results."

This is also re-iterated in his book, Celiac Disease: A Hidden Epidemic

From the National Foundation for Celiac Awareness:


"It is important to continue eating a normal, gluten-containing diet before being tested for celiac."

From the National Institute of Health's consensus statement on Celiac Disease, 2004


"All diagnostic tests need to be performed while the patient is on a gluten-containing diet."

Celiac Disease Foundation

http://www.celiac.org/celiac disease-diagnosis.php

"A person seeking preliminary diagnosis of celiac disease must be consuming gluten."

Share this post

Link to post
Share on other sites

Personally I dont think I would be as nice as you and want to explain to him why... nicely. I do believe he would have heard my thoughts on the matter right after he opened his mouth and all the bull flew out (lol)

But then again I have had my fair share of foolish male doctors tell me I am wrong, granted sometimes I am but that doesn't give them any right to ignore what I think. I now take my own health into my own hands and have found I do a pretty good job and have now found at least 1 doctor who listens objectivly and conciders my opinion and research... to bad I am going to loose them soon (sigh) oh well off to the yellow pages for interviews.

Share this post

Link to post
Share on other sites

Yeah, I don't think I would have been so nice, either :) Why the heck does he want to re-prove you have celiac? You had a positive biopsy four years ago - that's the current medical "golden" standard - what more does he want??? And say he changes your diagnosis to IBS. Where does that leave you? Probably taking drugs and not feeling that much better. I'm strongly on the side of IBS being a description of symptoms, not a cause of symptoms, and, yes, many celiacs display IBS symptoms. Good for you not going back to him, and for trying to educate him on your way out. It's obvious this guy doesn't know much about the disease.

Share this post

Link to post
Share on other sites

Wow...thank you for the excellent links, for the words of encouragement and the support. I have been so angry about this doctor visit. And I've had enough of doctors right now... UGH.

Share this post

Link to post
Share on other sites

I'd look at him and say "Uh, you're testing me for ANTIBODIES. How am I supposed to have ANTIBODIES if I don't have the thing that causes them to be produced in my system?! This isn't like TB, where you produce antibodies forever and ever."

Share this post

Link to post
Share on other sites

I'd tell him to go back to medical school because he obviously didn't learn anything the first time around.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Forum Statistics

    • Total Topics
    • Total Posts
  • Who's Online (See full list)

    There are no registered users currently online

  • Forum Discussions

    Hi, Thanks for your answer! Unfortunately I have to follow the MAOI diet for as long as I'm taking the MAOI, so essentially nobody's going to be inviting me round to dinner from now on… This is a bit of a shock. I don't really have any clear-cut symptoms that I would've considered worth going to the GP about. I mean I'm always tired and I have a bit of IBS and so on but generally I put that down to the other things wrong with me and the medication I have to take for them (mostly the bi
    Thanks Posterboy, that was interesting information.  I believe that I had read something elsewhere about tetracycline, at least, being used instead of, or along with, Dapsone for severe or refractory cases of DH. Unfortunately, even if I had medical insurance (which I do not), and had a regular doctor who was even willing to recognize and accept my condition for what it is, I don't know what kind of luck I would have in persuading that hypothetical doctor to give me a particular and non-sta
Healthysquirrel,  Please have your doctor check your Vitamin D level!   Vitamin D deficiency is related to vertigo https://www.ncbi.nlm.nih.gov/pubmed/27386060 Vitamin D can help with high IgE https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5263170/ Low vitamin D and low ferritin are tied https://www.ncbi.nlm.nih.gov/pubmed/29385099 Dry eye problems including blepharitis can be helped with vitamin d and vitamin a https://www.ncbi.nlm.nih.gov/pmc/articles
  • Blog Entries

  • ×
    • Create New...