Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Prayers


ptkds

Recommended Posts

ptkds Community Regular

Hey everyone,

My eyes started getting blurry this morning off to one side, so I called my dr's office since it wasn't the first time. They told me to get my eyes checked out first at the eye dr's. So I did. The eye dr dialated my eyes, and discoverd that the blood vessels in the back of my right eye are very tiny. My eyes were just dialated last year and they were fine. She said it is something systemic and I need to see my PCP. I have a call in to them and am waiting to see when I can go in. I have also been having lots of headaches. So, I am started to get really scared.

Please pray that they will quickly find out what is going on and that I will be fine. My kids need me, and I am scared.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Oh sweety, I will say a prayer right now that you find out quickly what the problem is and that is easily treated. :)

Try not to panic, and let us know how you do.

cruelshoes Enthusiast

You got it. I hope they find a quick and easy resolution. It is scary to think of something going wrong with ones eyes.

blueeyedmanda Community Regular

You are in my thoughts. Keep us posted!

Joni63 Collaborator

I will certainly say a prayer for you. Try not to worry and just take one day at a time.

Cheri A Contributor

((hugs)) and prayers of comfort, peace, and healing.

Guhlia Rising Star

You and your family will be in our nightly prayers. Please keep us up to date with what's going on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I hope they figure it out soon, you are in my prayers and please let us know how you are doing.

(((((((((((((HUGS))))))))))))

Krista

elye Community Regular

....Been thinking about you all day.... :):)

Any news?

ptkds Community Regular

I am going in on Friday morning. They are completely booked until then. I will push him to do a CT scan or MRI to check everything out. I will update you all when I know something.

Thanks for all the support!

Green12 Enthusiast

I'll keep you in my thoughts, hope all goes well with your appt on Friday :)

ravenwoodglass Mentor
I am going in on Friday morning. They are completely booked until then. I will push him to do a CT scan or MRI to check everything out. I will update you all when I know something.

Thanks for all the support!

Will be thinking of you, hope all goes well.

confused Community Regular

Will keep you in my thoughts and prayers. Please update us tommorow.

paula

jerseyangel Proficient

Good luck tomorrow--we're all behind you! :D

ptkds Community Regular

Thanks for all the support guys! That really helps me feel better.

I went to the dr yesterday. He wanted me to go to another eye dr that works at my insurance companies clinic and have them dialate my eyes and check them. I told him that I didnt want to and that I trust the dr I went to see. She did a very thorough exam, and I wanted an MRI or CT scan. He finally agreed to order an MRI. I will have it done next week sometime. He seemed convinced it was something wrong with my eye, when the eye dr said it wasn't my eye. I think he was just trying to do what the insurance company would want him to do. They don't like paying for MRI's without a really good reason :angry: . So I guess the possibility of an aneurysm or brain tumor isn't a good enough reason for them!

I hate HMO's.

I will update when I find out the results of the MRI.

Thanks!

mommida Enthusiast

My thoughts and prayers are with you.

(((HUGS)))

Lisa Mentor

Thinking of you and many well wishes coming your way.

  • 2 weeks later...
ptkds Community Regular

I just wanted to update you guys.

The MRI came back negative. My dr suggested that maybe I was anemic and I needed to take a multi-vitamin.

Needless to say, I am switching dr.s I have an appointment with an Osteopath/Family Practictioner on the 18th. Hopefully, I will get some answers. I am going to write up a list of ALL my symptoms to take to him so I won't forget anything.

Thanks for all the support! You guys are great!

mommida Enthusiast

This may be off the wall, but have you been tested for pernicous anemia?

gfcookie Newbie
Hey everyone,

My eyes started getting blurry this morning off to one side, so I called my dr's office since it wasn't the first time. They told me to get my eyes checked out first at the eye dr's. So I did. The eye dr dialated my eyes, and discoverd that the blood vessels in the back of my right eye are very tiny. My eyes were just dialated last year and they were fine. She said it is something systemic and I need to see my PCP. I have a call in to them and am waiting to see when I can go in. I have also been having lots of headaches. So, I am started to get really scared.

Please pray that they will quickly find out what is going on and that I will be fine. My kids need me, and I am scared.

Thanks

do you take any daily meds like steroids? I'm on steroids, and since i've started them, my eyes went completely wacky and i need glasses. Good luck and try not to stress too much!

ptkds Community Regular

No, I haven't been tested for Pernicious Anemia. What kind of testing do they have to do for that?

mommida Enthusiast

The start of testing should be a Complete Blood Count.

Other blood tests would be done looking for...

intrinsic factor and parietal cell antibodies

bilirubin, potassium or cholesterol levels in the blood

serum iron and iron binding capacity.

There is a strong link to Celiac or any type of intestinal lack of absorbing B12.

If there were any test results that made this present doctor suggest you "maybe have anemia" may be used to order the need for further testing.

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.