Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


Untested With Questions

Rate this topic

Recommended Posts

I believe I have celiac disease. My Aunt has tested positive. And my father negative but I don't think they were right about him. I had a doctor tell me I could go on the diet and I would know within a week if I had it. And I strongly believe I do. I have been eating mostly gluten free for a year now. I say mostly because I cheat just enough to not get severe symptoms. I know I shouldn't and I CAN tell it affects me but without an official diagnosis I make excuses and push it as far as I can.

So here is the dilemma. Unexplained infertility and miscarriages run in my family. In fact for 4 generations not one female born to my father

Share this post

Link to post
Share on other sites

If you have to limit the gluten you eat to avoid symptoms, then you have a gluten problem, be it celiac, preceliac, or non-celiac gluten sensitivity. What difference does it make? Your symptoms would show that you are having a reaction, and that can't be a good thing.

You could always get tested by Enterolabs. Your "cheating" is probably enough to give you antibodies, assuming you are gluten intolerant. This wouldn't tell you if you are officially celiac. But it gives you a test result, without your having to make yourself sick (and do damage to your body) -- just to have a doctor tell you what (I think) you already know.

Share this post

Link to post
Share on other sites

I'm sorta in the same boat, except that I'm much older.

There were two females in my family and neither of us could get pregnant. I finally did at 40 once I started taking lots of herbs and multivitamins, but then she came 8 weeks early.

Cheating is so easy when you don't know if you are really celiac. I am also cheating based on symptoms, but I never had the typical celiac symptoms. I'm an IBS'er. I'm currently doing experiments to test what does or doesn't cause my symptoms to reappear. I guess I'm gonna have to start a journal so that I'm sure what's affecting me. I don't feel that wheat is actually very healthy whether gluten intolerant or not, so I'm not wanting to go crazy, but I miss flour as a thickener and pizza mostly.

Share this post

Link to post
Share on other sites

Thanks for the input. My cheating usually consists of contaminated foods not straight flour. Like rice krispies or soy sause if I just have a little. It still makes me sick, but I can function if I don't do it too often.

Share this post

Link to post
Share on other sites

However, if you have Celiac, functioning does not equate to "no damage being done."

The executive director of the National Foundation for Celiac Awareness had fertility problems and tells her story here: http://www.celiaccentral.org/Other/Alice_Bast/272/

Heidi Collins of CNN is a spokesperson for the same group and also had fertility issues: http://www.celiaccentral.org/Newsletter/Ne...nouncement/305/

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
Yes, I had to stop eating Schar bread because I was getting sick on it all the time. I believe if I am not mistaken (it has been a long time) the Artisan line does not. I received this tip from someone else, and I don’t know if it is accurate but it seemed to help me, at least. 
  • Blog Entries

  • ×
    • Create New...