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2kids4me

Scoliosis Anyone?

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Sigh...you can tell from my signature that my daughter just cant win some days. She now has been diagnosed with scoliosis. A reverse S curve in the thoracic spine ...only at 15 degrees right now and they will watch it closely...explains her rib hump and back pain...

I know its mild but I am in the coping mode right now where we have just learned about it and its like ....for crying out loud, doesnt she have enough to deal with?????????!!

Feeling sorry for my kid and hoping for a non progression in the curve...

sigh


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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My daughter had scoliosis, due to one leg being shorter than the other. She goes to the chiropractor once a week, who has over the course of about four years pretty much been able to straighten out her spine.

You may want to start taking your daughter to the chiropractor, he may be able to reverse the scoliosis.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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I have a 17 degree curve of scoliosis and another back problem. Make sure they watch it closely because I literally one day had 6 disc bulges from the stupid curve!! :angry:

See if you can maybe get her into physical therapy because they can really help with ways to strengthen the muscles that are weak, thus allowing a curve. I did PT for a while and it made a huge difference, not really in the curve, but the uncomfort I was dealing with.

Be careful with chiropractors, they don't always know what they're doing. Some do, and I don't doubt that, but some REALLY don't. Make sure you get a good referral and someone who has lots of experience with this. Also, if you can, make sure they look at the X-Rays so they know what they're dealing with. And, if it sounds too good to be true, it probably is.


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Needed to ask: is anyone meaning that the scoliosis is a result of celiac?


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Sigh...you can tell from my signature that my daughter just cant win some days. She now has been diagnosed with scoliosis. A reverse S curve in the thoracic spine ...only at 15 degrees right now and they will watch it closely...explains her rib hump and back pain...

I know its mild but I am in the coping mode right now where we have just learned about it and its like ....for crying out loud, doesnt she have enough to deal with?????????!!

Feeling sorry for my kid and hoping for a non progression in the curve...

sigh

Oh Sandy,

She really has had far more than her share....I'm sorry about this.

I have a "slight curvature of the spine" detected 15 years ago by x-ray for back pain. As far as I know, it's never given me any trouble (that bout of pain was due to a muscle spasm), and I have no idea how long I had it before it was found.

Hopefully, her curve will not progress.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I ws diagnosed with a 12% curve in elementary school. It hasn't ever given me any trouble, although new doctors do mention it when they examine me for the first time. They run their fingers down my spine during an exam and say "do you have scoliosis?" My posture is a bit slouchy, and my mother seems to think that is a result of the scoliosis, but if I really think about it, I can stand up straighter.


-Colleen

Dx 8/05 via bloodwork and biopsy (total villous atrophy)

13-year old son Dx 11/05 via bloodwork and biopsy

Daughters (16 and 5) have tested negative via bloodwork

A woman is like a tea bag - you never know how strong she is until she gets in hot water. - Eleanor Roosevelt

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I wanted to second the recommendation to find a chiro, along with the caution from confusedks about finding a good one. A good, structurally-based chiro will make sure that she is spending more time doing postural exercises than traction than getting adjusted - all of which are necessary, but just getting adjusted a couple times a week isn't going to do a lot in the long run other than line the chiro's wallet. The younger the better, for correcting spine curvatures, really.

(I have been seeing a chiro since last year - about 12 weeks fairly intense, but I'm too flexible, which means that my corrections from traction and posture exercises don't 'stick', as it were. I now go every other week. I pretty much entirely corrected a 6 mm lateral shift in my lumbar spine (not curved, just tilted) which was partly caused by an asymmetric pelvic - kinda the equivalent to different leg lengths when it comes to the spine, so I use a heel lift, and got about 60% - 70% improvement in regaining a curve in my cervical spine (which was totally missing) as well as correcting a significant forward head posture and upward head tilt. By doing this, I no longer get rotations is my pelvis as often which can cause pain (unstable sacroilliac joint, even after months of physical therapy - I'm hypermobile) and I have significantly fewer headaches. (This isn't meant as a "sing the praises" - even my chiro will note that I did most of the work, and it the postural exercises are long and tedeious hard work, and the traction is hard/painful/unpleasant work. And it was expensive But it's helped a lot, and it's something that I now know how to better maintain going forward.)


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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I have mild scoliosis as well. I also had a reverse curve in my neck- talk about a bummer of that day. I went to the chiropracter for my headaches, she took xrays, and when I went back she broke the news. The good news is that she has helped TREMENDOUSLY for the constant dull ache in my back, along with some magnesium supplements I've been taking b/c mag is supposed to be good for preventing muscle weakness, which helps to retain what the chiro does. But be sure you find a good one!!! If you do, they are worth it!! Ask around, that's usually the best way to find a good DR.

I am so sorry for your daughter. She's dealing with quite a bit at such a young age. Hopefully the scoliosis will stay as is, and will not really cause any other problems for her.

I am 25 and just found out in Sept. My chiro told me that I probably have had it since I was a child, and because it is so mild, the school nurses missed it. She also told me I had about an 11mm difference from side to side on my hips. She also said it's very common for her to see my situation... so there's a good chance it may not progress.

Best wishes and hugs to you and your daughter!


Be yourself, everyone else is taken.

Oscar Wilde

Gluten free November 2007

IgA Deficient, Neg Bloodwork, Double DQ2 Positive

Dietary and Genetic Diagnosis June 2, 2008

Soy free Jan 09

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Husband has scoliosis and so does his sister.....is there a connection between this and celiac? Just curious.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Scoliosis is a birth defect, which can be hereditary. My mom has it, as does my sister, to a much slighter degree. It has never been mentioned to me, so I am keeping my fingers crossed. My sister is a celiac, but the celiac disease is from our dad, not out mom--so, our parents both shared! ;)

http://www.mayoclinic.com/health/scoliosis/DS00194 Says here that it runs in families, something like you have a 20% higher chance of having it if someone else in the family has it. I do not think there is any connection to celiac disease though.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Husband has scoliosis and so does his sister.....is there a connection between this and celiac? Just curious.

Deb--

I've never seen anything that would suggest a link between the two.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Reason I am questionning; both my husband (celiac) & his sister (probably celiac-won't get tested) have scoliosis and they had a baby brother die of spina bifida in 1945 - he was two weeks old. Just looking to see if celiac is the culprit in spinal deformities and such. I didn't think so. But I wasn't certain if anyone else knew otherwise.

Thanks


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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I wanted to say that there may be a possibility of Celiac contributing to scoliosis. I mean, if it causes failure to thrive, why would it not attack the spine also? I have 2 spinal disorders (the scoliosis is way less problematic than the other one) and nobody else in my family does. So...where did that come from? Obviosuly it's not genetics in my case. But Celiac does run in the family.


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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I wanted to say that there may be a possibility of Celiac contributing to scoliosis. I mean, if it causes failure to thrive, why would it not attack the spine also? I have 2 spinal disorders (the scoliosis is way less problematic than the other one) and nobody else in my family does. So...where did that come from? Obviosuly it's not genetics in my case. But Celiac does run in the family.

Kassandra...in your case it could be because you also have Lyme Disease. The bacteria is known to attack the spine...causing spinal disorders in many cases.

Sandy,

Sorry to hear that your daughter is having something else to deal with. ((((((((((hugs)))))))))))


Rachel

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Thank you all for your replies..it means so much to have a place where all understand. As far as scoliosis goes - the onset in adolesence is considered idiopathic - no known cause. the congenital forms are related to defects in the vertebrae or neuromuscular conditions. Childhood onset has many causes - underlying disease, neurofibromatosis in one...

As far as I know there is no connection to celiac and the cause of scoliosis varies with age of onset as well as muscle disorders. There is definitely a genetic link as it does "run in familes". Kathryn has hypotonia which is likely a contributing factor for her,

Spina Bifida is linked to a lack of folic acid during pregnancy. Certainly a celiac (untreated) would be nutritionally deficient and that would be the connection to spina bifida.. not that celaic causes spina bifida - but rather the nutient deiciency would increase the risk.

I am going to check out a chiroprator and see what is suggested.

Yikes, brutal weather here right now - minus 44 with the wind chill. Nothing like Canadain weather!

Sandy


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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I'm sorry your daughter has scoliosis on top of everything else.

I, too, am a Celiac with Sulfa allergies and have scoliosis. I have an S curve of 32 degrees on one side and 34 degrees on the other. And that is why, you see, the doctors told me I could never have kids.

Umm, yeah. After 5 babies, I'd say they were wrong, huh?

So I tell you this to say, it's more than you'd like to deal with, but it'll be okay. You can live a happy life.

Going gluten free this early in life is the best thing you can do, besides trying to keep a positive outlook.

Good luck and God bless!

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