Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

Aidans Grandma

My House Is Now Gluten Free With Amazing Results!

Recommended Posts

I have posted earlier in the child forum regarding my grandson Aidan. All the research I did on Coeliac Disease for him has really enlightened me about my families health.

In the meantime, my house has gone completely gluten/wheat free. After doing all the research, I decided that my husband, myself and my younger daughter might benefit from the coeliac diet.

It has had an amazing impact on my husband!!! :D He has had chronic diarrhea for 30 years (he had all the enemas etc., they removed his gallbladder, all at the age of 20) He was diagnosed in his early 30's with rheumatoid arthritis. I have severe psoriasis and psoriatic arthritis, also diagnosed in my 30's. My youngest daughter has psoriasis on her scalp. My oldest daughter (Aidans Mom) has Samter's Triad ( nasal polyps, asthma and NSAID allergy ).

The good news is my husband was diarrhea free after 3 days on the diet. He had a few beers 5 days into the diet and now says he will never drink another. He had cramps, nausea and the diarrhea was back. My overwhelming fatigue is almost gone. I was having trouble getting through the day at work and I would have to go to bed as soon as I got home. I'm hoping this will help the psoriasis also. I think, my daughter must be feeling better too because she is right into looking up foods and will not eat anything with gluten in it.

Has anyone had remission of the arthrits or psoriasis on the gluten free diet. Right at the moment, after 10 days gluten free, I am almost feeling that I am having a flare of my psoriasis. It is geeting very red and painful. But it might just be the cold weather. Any info on RA or psoriasis and celiac disease is appreciated.


Gluten/Wheat Free - January 18, 2008

Myself - Dx Psoriasis 15 years ago

Dx PA 10 years ago

On methotrexate for 5 years and graduated to Enbrel 2 years ago.

Psoriasis gradually getting worse over the past 5 years and is now considered severe.

Overwhelming fatigue for past year

Husband - Dx RA 20 years ago

Has tried numerous drugs with them either losing their effectiveness or he was unable to tolerate

them.

He is now on Humira

Chronic diarrhea for past 30 years ( was tested for bowel problems when he was 20 yrs old and

they removed his gallbladder at that time ) He had no diagnosis at that time.

Daughter (26 yr old) - Dx Samter's Triad 4 yrs ago - nasal polyps, asthma and NSAID allergy

Has had surgery twice to remove polyps and is now getting them removed again in

March.

Her son Aidan is 16 months old and is suspected Celiac - blood test was negative

but had all the symptoms.

Daughter (14 yr old) - Dx Psoriasis 2 yr ago

My mother - Dx with Primary Biliary Cirrohis 15 yrs ago

Dx Psoriasis 3 years ago

My brother - Dx Sarcoidosis 10 yr ago

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


I have, my signature is very telling. In doing some research after I got my genes tested (5 years after my diagnosis) I found that the gene I carry is considered a RA gene here in the US. In Eastern medicine it is a recognized celiac gene. My arthritis has been in COMPLETE remission now for almost 5 years. I never in a million years expected anything other than my troubles with my tummy to go away with the diet. I felt reborn when all my other autoimmune problems just went into remission. Problems I had been told I needed to learn to live with as the powerful pain meds just dulled the discomfort.

My DH and DD have had psoriasis for most of their lives. Theirs went away completely, my DH only sees his crop up again when he is glutened. Hopefully your families will do the same.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Hi. I'm new to all this too, but I'll put my five penn'orth in for good measure!

It is great that you are all seeing a benefit from changing to Gluten. I have just started today so am yet to see the benefit, but I am looking forward to that one.

I was thinking though about your psoriasis that although you have benefitted from cutting out the Gluten, there may be something still in your diet that is acting as a trigger. I am also cutting out dairy along with the gluten as I know I am intolerant, but there are other things. Some are also intolerant of things like, oats, corn, onions, oranges, even obscure like toothpaste (perhaps a reaction to the Sodium Laureth Sulphate) and make-up!

I wonder whether it might not be an idea to follow the exclusion diet for a short while then try introducing other foods in one at a time to see if you can isolate the trigger.

We live in a very polluted and chemical-laden world and our poor immune and endocrine systems have an awful lot to put up with. Some may find that they only need to cut Gluten, others need to look a little further. I have realised due to the fact I can't tolerate Tea, any alcohol except low, and now as I have just discovered, in Slippery Elm of all things, things that contain Tannin. I also sometimes get a reaction if I eat too many fruits and veg, possibly to a build up of Salicylates from them (like Aspirin which I am highly reactive to which is Salicylic Acid. It is not always easy to find, but patience and persistence is the key


Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

Share this post


Link to post
Share on other sites

[

The good news is my husband was diarrhea free after 3 days on the diet. He had a few beers 5 days into the diet and now says he will never drink another. He had cramps, nausea and the diarrhea was back. My overwhelming fatigue is almost gone. I was having trouble getting through the day at work and I would have to go to bed as soon as I got home. I'm hoping this will help the psoriasis also. I think, my daughter must be feeling better too because she is right into looking up foods and will not eat anything with gluten in it.

Has anyone had remission of the arthrits or psoriasis on the gluten free diet. Right at the moment, after 10 days gluten free, I am almost feeling that I am having a flare of my psoriasis. It is geeting very red and painful. But it might just be the cold weather. Any info on RA or psoriasis and celiac disease is appreciated.

Share this post


Link to post
Share on other sites

Hi ravenwoodglass! I'm happy you have had great success! Hopefully, my husband's RA will too and I can't wait to see some results with my psoriasis. I am currently on Enbrel and it just keeps it manageable enough so that I can still carry on with my life. Thanks for your story, it has made me think, that we are headed in the right direction


Gluten/Wheat Free - January 18, 2008

Myself - Dx Psoriasis 15 years ago

Dx PA 10 years ago

On methotrexate for 5 years and graduated to Enbrel 2 years ago.

Psoriasis gradually getting worse over the past 5 years and is now considered severe.

Overwhelming fatigue for past year

Husband - Dx RA 20 years ago

Has tried numerous drugs with them either losing their effectiveness or he was unable to tolerate

them.

He is now on Humira

Chronic diarrhea for past 30 years ( was tested for bowel problems when he was 20 yrs old and

they removed his gallbladder at that time ) He had no diagnosis at that time.

Daughter (26 yr old) - Dx Samter's Triad 4 yrs ago - nasal polyps, asthma and NSAID allergy

Has had surgery twice to remove polyps and is now getting them removed again in

March.

Her son Aidan is 16 months old and is suspected Celiac - blood test was negative

but had all the symptoms.

Daughter (14 yr old) - Dx Psoriasis 2 yr ago

My mother - Dx with Primary Biliary Cirrohis 15 yrs ago

Dx Psoriasis 3 years ago

My brother - Dx Sarcoidosis 10 yr ago

Share this post


Link to post
Share on other sites

Hello AliB!

I see we're in the same boat starting our new way of eating. So far, 11 days in, I am very happy with the way things are going except for the psoriasis. It took many years to get this bad so I am willing to try just the celiac diet for a few months and then graduate onto removing other things if I don't start to get better. I have an idea that I might have a problem with potatoes because I am a chipaholic. I am truly hoping this isn't so!

I hope you do well on the diet and don't find too many things that you have to give up! Hopefully, within a few days you will notice a difference.


Gluten/Wheat Free - January 18, 2008

Myself - Dx Psoriasis 15 years ago

Dx PA 10 years ago

On methotrexate for 5 years and graduated to Enbrel 2 years ago.

Psoriasis gradually getting worse over the past 5 years and is now considered severe.

Overwhelming fatigue for past year

Husband - Dx RA 20 years ago

Has tried numerous drugs with them either losing their effectiveness or he was unable to tolerate

them.

He is now on Humira

Chronic diarrhea for past 30 years ( was tested for bowel problems when he was 20 yrs old and

they removed his gallbladder at that time ) He had no diagnosis at that time.

Daughter (26 yr old) - Dx Samter's Triad 4 yrs ago - nasal polyps, asthma and NSAID allergy

Has had surgery twice to remove polyps and is now getting them removed again in

March.

Her son Aidan is 16 months old and is suspected Celiac - blood test was negative

but had all the symptoms.

Daughter (14 yr old) - Dx Psoriasis 2 yr ago

My mother - Dx with Primary Biliary Cirrohis 15 yrs ago

Dx Psoriasis 3 years ago

My brother - Dx Sarcoidosis 10 yr ago

Share this post


Link to post
Share on other sites

[

All of my relatives, Brothers, Sisters, cousins and an Uncle have seen it disappear unless they eat Gluten which causes a flair up. Mine took a while but after 14 months free mine is completely gone.

My Other problems that cleared up are fatigue, headaches, aphthous ulcers, belly aches, acid reflux, and lung problems.

PS tell your husband that Budweiser sells a beer called Redbridge that is Gluten free.


Gluten/Wheat Free - January 18, 2008

Myself - Dx Psoriasis 15 years ago

Dx PA 10 years ago

On methotrexate for 5 years and graduated to Enbrel 2 years ago.

Psoriasis gradually getting worse over the past 5 years and is now considered severe.

Overwhelming fatigue for past year

Husband - Dx RA 20 years ago

Has tried numerous drugs with them either losing their effectiveness or he was unable to tolerate

them.

He is now on Humira

Chronic diarrhea for past 30 years ( was tested for bowel problems when he was 20 yrs old and

they removed his gallbladder at that time ) He had no diagnosis at that time.

Daughter (26 yr old) - Dx Samter's Triad 4 yrs ago - nasal polyps, asthma and NSAID allergy

Has had surgery twice to remove polyps and is now getting them removed again in

March.

Her son Aidan is 16 months old and is suspected Celiac - blood test was negative

but had all the symptoms.

Daughter (14 yr old) - Dx Psoriasis 2 yr ago

My mother - Dx with Primary Biliary Cirrohis 15 yrs ago

Dx Psoriasis 3 years ago

My brother - Dx Sarcoidosis 10 yr ago

Share this post


Link to post
Share on other sites

I was diagnosed with Ankylosing Spondylitis, a type of autoimmune arthritis, and was in terrible pain most of the time. I not only went gluten free but I adopted a paleo style diet which is basically no grains, no dairy, no refined starches or sugars. Pretty much I eat meat, fish, poultry, non-starchy veggies, low sugar fruits (berries being the best of the bunch), coconut products (without sugar). I found that the SE Asians eat pretty much like that (except the rice) so I do a lot of cooking of Thai curries and what not.

Anyway, I quit my AS meds a couple months back and never had the AS pain again. So many health things improved: My mental clarity, my intestines, my sleep... and the list goes on.

Here's to solving the puzzle!

Share this post


Link to post
Share on other sites

Hi! Very interesting!! I did some reading on the paleolithic diet and potatoes are a big NO! I am addicted to potatoes and always have been. I am going to have to do some serious thinking about this and some more research. I love hearing stories from people that have rid themselves of their autoimmune disease. It gives us all hope that with some hard work we can all be healthy again.


Gluten/Wheat Free - January 18, 2008

Myself - Dx Psoriasis 15 years ago

Dx PA 10 years ago

On methotrexate for 5 years and graduated to Enbrel 2 years ago.

Psoriasis gradually getting worse over the past 5 years and is now considered severe.

Overwhelming fatigue for past year

Husband - Dx RA 20 years ago

Has tried numerous drugs with them either losing their effectiveness or he was unable to tolerate

them.

He is now on Humira

Chronic diarrhea for past 30 years ( was tested for bowel problems when he was 20 yrs old and

they removed his gallbladder at that time ) He had no diagnosis at that time.

Daughter (26 yr old) - Dx Samter's Triad 4 yrs ago - nasal polyps, asthma and NSAID allergy

Has had surgery twice to remove polyps and is now getting them removed again in

March.

Her son Aidan is 16 months old and is suspected Celiac - blood test was negative

but had all the symptoms.

Daughter (14 yr old) - Dx Psoriasis 2 yr ago

My mother - Dx with Primary Biliary Cirrohis 15 yrs ago

Dx Psoriasis 3 years ago

My brother - Dx Sarcoidosis 10 yr ago

Share this post


Link to post
Share on other sites