Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

mama2two

Got Enterolab Results

Rate this topic

Recommended Posts

my daughter was having problems, mostly GI, celiac panel was inconclusive, did better on gluten free diet, so we are gluten free, for 8 months or so, and she was tested with enterolab and they recommended she be gluten free for life. She does have a gene predisposing her to celiac disease and one predisposing her to gluten sensitivity. Now we have tested my husband who has horrible GI problems that is better when he can manage to stay gluten free and I really thought he had celiac disease, well he is gluten intolerant and was recommended he and my son be gluten free, but neither of them have the genes that predispose you to celiac disease, so does that mean that my daughter had to get that celiac gene from me? I never really suspected that I was the one with celiac genes, but I guess no one ever really knows until they are tested. Has anyone tested with enterolab and gotten results saying that they tolerate gluten? Just wondering. also, it also showed that they all have positive anti-casein antibodies. I guess I am also wondering about the validity of enterolabs testing does anyone have any positive feedback, like dr's accepting it, or any negative? I mentioned it to my pedi once and she asked was it FDA approved and I emailed them with this question and they replied that the test they do is FDA certified or something like that. My pedi has said with my daughter's positive dietary response she figured she needed to be on the diet. Sorry for the lengthy posting, I guess the reality of all of us needing to be gluten free and the possiblity of my having celiac disease too, is just overwhelming me at the moment and I am questioning everything. Any input on any of my 20 questions would be appreciated. thanks!

Share this post


Link to post
Share on other sites

Hi, I have been investigated this thouroughly. I have a wheat allergy. So don't know if the blood work would work for me since I consume lower amounts of gluten normally. I googled enterolab and searched on here. Yes, people have come up gluten ok on the tests. Not many, but most people looking have a large reason to suspect they have it to begin with. I read yesterday about a lady getting her kids tested cause they were related to someone with it. Her son came up ok for gluten. Good for him!!!

I think I will get the tests. Currently eating gluten free, but only for a few weeks. Then depending on the results I will get my kids checked. I NEVER want them to go thru what I have gone thru since I was 10. Also, if your daughter has 2 genes and your hubby had one of them, she would Have to get the other one from you. Gluten intolerance rears it's ugly head in many ways. Good luck

Share this post


Link to post
Share on other sites

One thing that is important to keep in mind with the gene testing is that gene knowledge is in it's infancy. At this point there are only two genes recognized in the US as celiac genes but there are some of us who have developed full blown celaic with the 'intolerant' genes. In my instance the main difference between being celiac and being gluten intolerant was the areas of the body that the antibodies chose to effect the worst. For me the damage to my neurological system and joints was present for over 25 years before GI problems were more than an very off and on thing. Folks with gluten intolerant genes need the diet just as much as true celiac defined genes. In addition genes that are not celiac genes in the US may be found to be recognized as such in other countries. My gene is defined as a rheumatiod arthritis gene here but in Japan it would result in a celiac diagnosis. There is still a lot to learn about genetics.

Share this post


Link to post
Share on other sites
Has anyone tested with enterolab and gotten results saying that they tolerate gluten? Just wondering. also, it also showed that they all have positive anti-casein antibodies. I guess I am also wondering about the validity of enterolabs testing does anyone have any positive feedback, like dr's accepting it, or any negative?

There are five in our family and we tested my husband and son first as they were most suspect of the disease. Because they both came back positive for both DQ2 genes, we all got tested. Lo and behold, I was surprised that I have a main gene and sub-gene and so does my son. We both tested positive. My daughter, the youngest, tested for both DQ2 genes but came back negative...so far. I just ordered her yearly test, so we'll see if that's still the case.

As far as the drs, our allergy doc had never heard of Enterolab so we did some educating. Our pediatrician and GI looked at the results I emailed him from E-lab, and they accept the results.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
I just had my kid retested for celiac disease and we are waiting for the results.  Her doctor does not hesitate to test since I have a firm diagnosis.  I can also say that my PCP and GI  never hesitate to check for other AI issues either.  They know that you can develop more than one autoimmune disorder.  Better to catch it early before damage!   If you get an endoscopy, be sure to do a gluten challenge 2 to 4 weeks prior or your result will be negative!  
  • Blog Entries

  • ×
    ×
    • Create New...