Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Newly Diagnosed With celiac disease

msaz

By msaz
in Coping with Celiac Disease

Recommended Posts

msaz Newbie
msaz
Posted

Hello I am new to this site and also newly diagnosed, It took many doctors and many years of pain and confusion to finally find out what was wrong with me. I would greatly appreciate any and all information on this disease as I am just starting to realize how difficult it will be. I am still in pain and was wondering if anyone can tell me how long they continued to have pain after they were diagnosed. I also suffer from chronic neck pain due to hierniated disks. I have also had a lot of lower back pain and osteoarthritis. Does anyone else feel the back pain?

masz

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hello I am new to this site and also newly diagnosed, It took many doctors and many years of pain and confusion to finally find out what was wrong with me. I would greatly appreciate any and all information on this disease as I am just starting to realize how difficult it will be. I am still in pain and was wondering if anyone can tell me how long they continued to have pain after they were diagnosed. I also suffer from chronic neck pain due to hierniated disks. I have also had a lot of lower back pain and osteoarthritis. Does anyone else feel the back pain?

masz

Welcome,

You have found a wonderful site to learn all that you need to know about Celiac.

The average diagnosis time is eleven years. You are in good company here.

The diet can certainly be overwhelming. But, good words of advise is to start simple. Simple, meaning meat, fish, rice, potatoes, fresh veggies, and fruit. No processed foods for a while. You can add food items a little at a time and more so when you have mastered the art of label reading.

A new toaster is a must, old wooden spoons and cutting boards should be replaced. Gluten can hide everywhere. That way you avoid contaminating your food with pre-celiac utensils.

Undiagnosed Celiac can lead to some unfortunate issues, but many have found that eliminating gluten from their diet, their issues have reversed themselves, or in the least improved. I doublt that the gluten free diet can help your disk issues, but it may very well help with the others.

This is a great site. Take some time to walk around.

Link to comment
Share on other sites
luvs2eat Collaborator
luvs2eat
Posted

And take your time. I was gluten-free for an entire year before my bowels returned to anything I'd consider normal... w/ lapses at any time!

There are plenty of gluten-free foods in your every day diet ... you don't have to go looking for pre-packaged convenience food.

Check out the bread threads... that's always an issue. I don't have a bread machine but make a loaf a week of either Anna's bread mix or Pamela's. They are awesome.

I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

Link to comment
Share on other sites
elye Community Regular
elye
Posted
I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

Kinnikinnik makes absolutely delicious bagels and english muffins (brace yourself for the cost, though!) You can order from them online, and they deliver. :)

Link to comment
Share on other sites
Kathe Newbie
Kathe
Posted
And take your time. I was gluten-free for an entire year before my bowels returned to anything I'd consider normal... w/ lapses at any time!

There are plenty of gluten-free foods in your every day diet ... you don't have to go looking for pre-packaged convenience food.

Check out the bread threads... that's always an issue. I don't have a bread machine but make a loaf a week of either Anna's bread mix or Pamela's. They are awesome.

I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

Try Kinnikinnick sesame bagels. They are awesome! Order at kinnikinnick.com Kathe

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,193
    • Most Online (within 30 mins)
      7,748
    Kmd2024
    Newest Member
    Kmd2024
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DjinnDjab
      Constant low back, abdominal and pelvic pain!

      By DjinnDjab · Posted

      i am a 37 yo male and this describes me perfectly. on a scale of 1-10, i am at 8. 9. 10, 11 for 8-12 hours a day, 6-7 days a week. this has been going on for about 5 years and i just found out i may have celiac. so needless to say i no longer have friends or relationships so i spend a lot of time with myself. and uhhh what really sucks is uhh, sorry to say, "enjoying myself" is a trigger for this pain. i can be fine all day until i take 5 mins to "myself" and then its all downhill from there. this has robbed me of every.single.thing in my once colorful life. 
    • cristiana
      Finding out I’m coeliac whilst pregnant

      By cristiana · Posted

      This might be helpful - from Coeliac UK.   https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=Usually%2C a biopsy of the,more about diagnosis of children.
    • Scott Adams
      Seeking Gluten-Free Advice for My Trip to South Korea!

      By Scott Adams · Posted

      Yes, wheat is common in most soy sauces now because it speeds up the fermenting process.
    • JoeBlow
      glutenfreedrugs.com

      By JoeBlow · Posted

      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Finding out I’m coeliac whilst pregnant

      By Beverage · Posted

      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
×
×
  • Create New...