Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Hi all! I have a long history of health problems that for years I ignored as "that's life". Stomach pains and nausea that I originally blamed on lactos and then later on overeating (even though everyone swears I don't eat enough). Intermittent constipation and diarrhea. Weight gain that I blamed on being lazy and overeating. Joint pain I blamed on the weight gain (ended up being RA).

A few years ago things just kind of imploded. The stomach pains became so bad that I would pass out from them. The doctor thought it might be gallbladder and then said it was acid reflux and told me to avoid spicy & fatty foods. Oddly enough, spicy foods & fatty didn't seem to trigger the attacks. BTW, my usual response to the start of the nausea was to eat crackers or dry wheat toast... oops?

Last year I decided to try the Atkins diet because of my weight. It was amazing. Within a week I noticed how much more energy I had and how much better I felt in general. I lost 25lbs within a couple of weeks and was eating more than I ever had. After a few months I realized I had not had any stomach problems. I lost 75lbs in 10 months.

Over the holidays I ate "bad" foods though I was still avoiding bread and had some stomach problems but not as bad as before (I also wasn't eating crackers at the first sign of a problem).

One thing that seems weird is that if I eat "bad" foods I gain weight right away. I can eat pancakes at breakfast and gain weight. Over a weekend of eating a few things here and there that I shouldn't I will gain 10lbs. I lose it fast but it seems crazy that such a small amount of breads can do that.

So, from what I am reading I suspect Celiac. It also seems that testing would not be conclusive since I have been eating very low carb for so long though I do cheat occasionally and have chips and dip at mexican restaurants or sushi, etc. Would the occasional cheats have been enough to allow for testing? I'd go straight to the celiac diet and see how it works. But I understand that if you get a dx some of your expenses may be covered under your health plan and be tax deductable. Is that true?

Anyone had similar experiences?


Share this post

Link to post
Share on other sites

Hi Deborah, and welcome to these boards. Your experience sounds very similar to mine. I am very intolerant to gluten, but can really not tolerate any starches at all (amongst other things).

I just stepped on the scales a couple of days ago and got a nasty shock. And realized that I had been backsliding and eating (gluten-free) crackers, cookies, bread, potatoes, bananas, cake, muffins....... more and more over the past months.

I had gone back into denial! Two years ago I realized that every time I ate anything starchy I'd gain at least two pounds overnight.

Well, guess what: Over these past few months I've been gaining all the weight back that I lost initially, which is about 25 pounds, plus ten more. And I can't afford that at all. I am disgusted with now weighing more than I ever have in my entire life!

So, on Sunday I went back to my terribly limited diet of meat, a few safe vegetables, salad, fish, peeled pears, limes (I use lime juice to make my own salad dressing), and occasionally cream of buckwheat cooked with apples, and topped with maple syrup and rice milk. My treat is two pieces of dark chocolate a day (otherwise I won't be able to keep it up).

In two days I have already lost four pounds. 'Only' about 80 to go to a healthy weight. :(

There is no way any testing for celiac disease would come out valid for you at this point. So, I say, the best thing to do is try a completely gluten-free diet. And really, it sounds like you need to be totally grain and starch free as well, except for occasional treats.

The only way you could possibly (and not necessarily) get valid tests would be to go back to eating a high gluten diet for at least three to six months. That could be suicide! You would likely get desperately ill and might even trigger other autoimmune diseases, as well as cause irreversible damage.

Your health is worth more than a few dollars saved because of an 'official' diagnosis. You really do know what is making you ill. You don't need a doctor telling you what you should and shouldn't eat, it is your choice. Make it a good one!

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
Hi, Celery is one of the top allergens, so it could be a reaction to celery. https://www.livestrong.com/article/207641-celery-allergy-symptoms/ By the way, I merged your two similar threads.  The forum rules don't allow duplicate threads,  They make things confusing.  But no problem, carry on!
  • Blog Entries

  • ×
    • Create New...