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    Do you have questions about celiac disease or the gluten-free diet?

jayhawkmom

Pa Recommended Enterolab!

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Yesterday my 6 year old (Celiac) daughter had pre-anesthesia testing as she has to undergo another EGD on Friday morning. She's 100% compliant with the gluten-free diet, but something still isn't "right" and they are trying to rule out and/or find other issues.

While discussing her issues with the physician's assistant, I was asked about my GI issues. I explained how I had the "questionable" blood tests and a negative endoscopy. She asked if I'd ever had the gene testing. When I said that I'd been considering it, she jumped right in with her "approval" for Enterlab and their ability to determine whether or not one carries the genes. She said, "No genes... No Celiac, but that doesn't mean no intolerance." It made me so happy to hear a medical professional make that statement. =)

So, I've ordered the gene testing. I'm *very* interested in the results. I'm hoping that if I do have the genes, I can convinced my mother and sister to have the testing done as well. *fingers crossed*

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Thanks for posting this, I needed something to cheer me up today. What wonderful news about the PA, hopefully the majority of the med professionals will start to see it's validity as a diagnostic tool.

I hope everything went well with your DD's endo and that they figure out what is going on.

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I wasn't going to post because I didn't think it would be a "big deal." And, judging from the fact that there are numerous views and only one response, I think I was right. But, since I made one person happy... I'm glad I posted.

I really was shocked when I heard positive remarks about Enterolab, as thus far... none of our doctors have had anything nice, at all, to say about their tests.

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My MD is very positive about Enterolab. He said clinically he has seen so many patients helped who have gone off gluten due to a positive Enterolab. He said he has had a lot of kids haven endoscopies, but not even one has come back with a positive, but still have a great dietary response.

He really respects Enterolab and said that they have consistently used it in their practice and found it very accurate.

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    Oh yes, it could, although to be honest I never got myself so wet with sweat that it would have been a serious situation.  However, I can remember one time when I got caught in a cloudburst while going to my car in a large parking lot, though, and got soaked to the skin, and of course had to wear those soaking-wet clothes while I drove the 45 minutes it took me to get home --- I will NEVER forgot the misery and agony of that drive!  I could just barely keep the car under control, in fact.
    Thanks for your response, Squirmingitch, but I have to almost laugh, as at this point I am not really stressing over these questions at all --- just curious.  I have always been an insatiable question-asker, so please don't take my frequent questions as a sign of my obsessing over celiac disease or DH.  Yeah, admittedly I was rather stressed out for a couple of days two weeks  ago or so, but I am significantly settled down now, even while negotiating the nutritional maze of trying to manage two
Water?! That's… unreasonably inconvenient. Did it happen with sweat?
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