Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Hitting A Wall


cmsquyres

Recommended Posts

cmsquyres Newbie

I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Your talking about being really strict about the diet, which is good. But have you eliminated it from all your personal care products also? A lot of doctors either don't think to mention it or don't think it matters. Even stuff like hair color, shampoos and face makeup can be an issue. Also have you checked all your scripts and supplements for gluten? It sounds like you have gluten sneaking in somewhere. Even weird stuff like kissing someone who is drinking beer or has eaten a sandwich can get us. Gluten can be really sneaky.

Link to comment
Share on other sites
Ursa Major Collaborator

Are you still consuming dairy and soy? Either (or both) of those could be your problem. Dairy is known to cause horrible eczema. My oldest granddaughter used to be covered in eczema from head to toe, she looked like she had scales. It completely cleared up within weeks, to where she has the most beautiful skin now, after dairy was removed from her diet (incidentally, she is also gluten and soy intolerant).

Link to comment
Share on other sites
gfcookie Newbie
I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly

sounds like fibromyalgia/depression. or, maybe something else is up besides celiac, alot of other autoimmune diseases can cause skin problems.

Link to comment
Share on other sites
cmsquyres Newbie
Hi Carly,

Too bad you are not feeling as energetic as you need to be to do all that studying. You might consider that you have picked up a virus and your immune system is keeping it in control but not able to get rid of it. Echinaceae, a herb, may help a lot. You can buy the herb and make a tea or you can get one of the many preparation availale. The best are combiations of echinaceae, lysine and vitamin C with rose hips. You can also have a blood test for infectious mononudleosis. You might also stop the B12 supplement for a while to see if you feel better. It may claim to be gluten free, and maybe it is but there may be something else that is bothering you in it.

For the eczema you can read about a treatment that works for many people. Go to the Dr. Clark Information Center online and search for eczema.

I have made sure all my personal care products are gluten-free. I

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,210
    • Most Online (within 30 mins)
      7,748

    Sue Barnett
    Newest Member
    Sue Barnett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...