Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Hey guys it has been a while since i have been on here, some days are ok and some are not ok. I made a trip to my grandkids they live in MO. Been here about 2 weeks and have been doing better only 2 real bad days. The babies are 4 and 1, gluten has bound to be here but they kept a hyla water filter vacuum going quite alot. When I visited my father in Arizona i did pretty well also and was gone 10 days, ok here is the question, At home in my own home which is a new trailerhouse, I get sick almost everyday, and never feel like doing a thing, not even visiting my friends,afraid i will become ill at there house, and not be able to get home. I still am not driving, in too much pain and misery. I am wondering if there could be something in my home that is making me ill I do have lupus of the skin and DH and celiac of course but my home is clean and gluten free. which is not the case when i visit family, my husband thinks i am either crazy or just major depression. I have been gluten-free for about 6 months, Please help and give me some advise. :o

Share this post


Link to post
Share on other sites

Hello Barara, I think that celiacs is a constant journey. Febrauary 28th will be my one year anniversary that I have been gluten-free. There have been good days, and bad days. The bad days are depressing, fustrating and scary. On those days when you're feeling crummy, you just want to wrap yourself in your home, and not see or hear anyone.

I also learned that most celiacs have other allergies. Maybe because of the damage that was done to our intestines. I finally went to see an allergist/nutrtionist. My list of allergies goes on and on. Hopefully one day when I am healed, I will be able to enjoy those foods again.(except gluten, of course) I couldn"t figure out why one day I would be ok then the next I felt like I did on day 1. I wanted to pull my hair out( whats left of it :unsure: ) Maybe a ND would be able to help you too.

Hang in there, you are not alone :)

Share this post


Link to post
Share on other sites

While I don't have specific answers for you, I do have a few ideas for things to look into.

Here are some items I'd check into if it were me (all of which are documented to bother people):

Gas leaks

Compact fluorescent lighting

Fumes from carpeting, upholstery or paint

Mold (including from potted house plants)

Tobacco smoke or other pollutants from neighboring homes

Radon or other naturally occurring gases

Pollen, dust, or dust mites

Ultrasonic pets repellers (can be from neighboring homes)

HTH

Share this post


Link to post
Share on other sites
While I don't have specific answers for you, I do have a few ideas for things to look into.

Here are some items I'd check into if it were me (all of which are documented to bother people):

Gas leaks

Compact fluorescent lighting

Fumes from carpeting, upholstery or paint

Mold (including from potted house plants)

Tobacco smoke or other pollutants from neighboring homes

Radon or other naturally occurring gases

Pollen, dust, or dust mites

Ultrasonic pets repellers (can be from neighboring homes)

HTH

thank you one and all you guys are always so helpful.

Share this post


Link to post
Share on other sites
Hey guys it has been a while since i have been on here, some days are ok and some are not ok. I made a trip to my grandkids they live in MO. Been here about 2 weeks and have been doing better only 2 real bad days. The babies are 4 and 1, gluten has bound to be here but they kept a hyla water filter vacuum going quite alot. When I visited my father in Arizona i did pretty well also and was gone 10 days, ok here is the question, At home in my own home which is a new trailerhouse, I get sick almost everyday, and never feel like doing a thing, not even visiting my friends,afraid i will become ill at there house, and not be able to get home. I still am not driving, in too much pain and misery. I am wondering if there could be something in my home that is making me ill I do have lupus of the skin and DH and celiac of course but my home is clean and gluten free. which is not the case when i visit family, my husband thinks i am either crazy or just major depression. I have been gluten-free for about 6 months, Please help and give me some advise. :o

have you spoken to a doctor about depression? I know it sounds like a scary word, but, depression cuases physical pain and is usually linked with things like fibro...you should go to your dr and explain your symptoms instead of hiding. Also, when have you last had blood work and things tested about your lupus? because, if you are eating gluten-free you should not really be having gluten problems. go to your doctor! also, maybe journal your symptoms for a week, what happens when you eat, how you phsyically feel, how you mentally feel. You don't have to suffer by yourself! And, sometimes, as much as we all love men, they just don't get it!

Share this post


Link to post
Share on other sites

Since you're living in a new home, I'd suspect something like chemicals - the chemicals in the carpet, paint, etc. A slight possibility of mold. Or maybe something weird with the electrical wiring. I've read some stuff about electrical emissions on the human body. Dimmer switches emit a lot, if you have electronics like you clock too close to your head when you're sleeping it might cause a problem.

Share this post


Link to post
Share on other sites

Yeah, I agree with the others. If you are doing better outside of your home, then you should get your home tested. I know where I live, radon is a huge issue, especially in new communities. A friend of mine put in a bid on a townhouse that is no more than 2 or 3 years old, and the radon levels were unreal. Apparently, this is a common problem throughout the neighborhood, which has thousands of houses in it.

Not to say that radon specifically is your problem, but many people in that community live with that every day and have no idea. So, I would most definitely check into the list the other poster gave. Your home is supposed to be the one place you know you can feel good in. I hope you can figure it out soon!

On the other hand, I am glad you are feeling better so you can enjoy your time with your family! :lol:

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
It is not a rash, but hives and swelling.  Some doctors think it is a separate autoimmune disorder or that it piggybacks on to others.  It is more commonly associated with autoimmune thyroiditis.   My last bout lasted for six months.  They appeared (from my head to my soles of my feet) every afternoon around 4:00 pm and resolved by morning.  Oddly, they start with abdominal pain.  That is my first clue and next an itchy head.  I was on a cocktail of antihistamines and attempted a low histam
  • Blog Entries

  • ×
    ×
    • Create New...