Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

WeThreeEs

Gluten And Rice Intolerance?

Rate this topic

Recommended Posts

My 16 month old son was recently diagnosed with a gluten intolerance through the blood test. We started a gluten-free diet about 6 weeks ago and things seem to be on the right track. We are also doing dairy free for some other symptoms for the same amount of time. He has always had many GI issues including a severe reaction to rice (vomiting, dehydration, ER visits) starting with rice ceral at 4mos and continuing to regular rice once he started solids. After his dx as Celiac's his doctors told us that his reaction to rice was likely due to contamination from gluten to try the rice again. I was hesitant and avoided it for the first few weeks but it is so limiting. I decided to try it again and see what happened. I have not fed him straight rice but I have given him the gluten-free foods with rice as an ingredient. It seems that these foods bring back a lot of the cramping, foul smelling diapers, and sleep isses that were taken care of with the gluten-free diet.

Does anyone know if there is a possible connection to the gluten problems? Is it a separate issue? Have you heard of any condition that would include rice and gluten problems? My family seems to think it is just the roller coaster of trying a new diet and it is probably not the rice but I am not convinced. We have been off rice again for a week and he is doing better.

I am also feeling quite down about this diet right now. No dairy, rice or gluten seems so hard. Any advice?

Share this post


Link to post
Share on other sites

I can relate - tho its me, not a kid. I was off wheat and milk as a kid for a few months due to intestinal reactions, but never dx'd with anything. I decided to quit 3 mo ago to see if i felt any better. I quickly noticed that most rice-based substitutes for baked good gave me the same problems - but it turned out it was the tapioca, which i react violently, and is in most gluten-free flour mixes.

However, I then got some testing which put me off of rice as well - and eggs, onions, a whole bunch of things. I was pretty depressed!

But yesterday I bought some quinoa-corn pasta, and it was great! I also managed to make a gluten-free, dairy-free, egg-free, rice-free banana bread which was ok . . . good enough to put some sunflower butter on and enjoy breakfast!

So first of all, you might want to try to test rice seperately from tapioca, sine tapioca bothers a small percent of celiacs. Pure rice is really the best way to know if rice is really the problem or not.

Then if rice really is the problem, you'll have to learn to get even more creative about cooking. Its really hard - i've been eating mostly corn and potatoes day in and day out, but i'm learning about quinioa, millet, buckwheat, and a few others. Post here if you need help w specific recipes, or do some searches. I only made my first bread yesterday, but i did make some ok tortillas last week, too.

Good luck getting this all sorted out

Share this post


Link to post
Share on other sites

I have recently had a problem with rice. You know they have genetically altered rice, so it is not the same as we used to eat. I do not eat rice or rice flour.

I also cannot eat soy flour, tapioca flour or bean flours, or potato flour.

For baking I suggest you try various combinations of sorghum flour, almond flour, corn flour, coconut flour & cornmeal. I use coconut milk for baking.

Somehow after 4 years I have just adjusted to gluten-free baking from regular recipes. For a banana bread I would sub cup for cup with a cup of sorghum flour & then corn flour & then either some almond flour or coconut flour to fill in the amount of flour needed. It should also turn out okay with just sorghum flour & corn flour, add a little extra of the levening agent & about 1/2 teaspoon xanthan gum & it should turn out perfect.

I look for recipes that have plenty of eggs, fat, added dried fruit, apples, bananas, or other veggies like grated carrot. Those type of recipes are easy to convert.

I do not bake bread I just use corn bread. I just sub corn flour for the wheat flour in any recipe & do not use any xanthan gum, cornbread does not need it. you can also make it into corn muffins or fry little corn cakes. You can also make hush puppies, the recipe is a little different, all kids love hush puppies, there again just sub the corn flour for the wheat flour & do not add xanthan gum.

I also suggest white corn tortillas for your little one. heat them up in a skillet & then roll up with PB & jelly, add bacon or whatever else. anything is good rolled in a corn tortilla. :P

Share this post


Link to post
Share on other sites

I had IgG (delayed allergy) testing for multiple foods at 18 months gluten free and was shocked to come up allergic to rice. I now avoid products containing rice flour, rice syrup, all forms of rice as well as other foods to which I tested allergic and my gut health has improved dramtically.

It IS possible to be allergic to rice. You could have him allergy tested or just let your son's reactions be your guide, Mom. :)

Share this post


Link to post
Share on other sites

I had my youngest on a completely grain-free diet for many months because of similar issues. I am positive that the primary issue was gluten, but he also seemed to react to corn and rice.

I was told that sometimes people develop secondary intolerances when they are gluten intolerant, and sometimes those secondary intolerances can resolve over time after gluten is removed.

Share this post


Link to post
Share on other sites

Our dd is also allergic to rice. I bake mostly with sorghum flour/tapioca starch/cornstarch or potato starch. Any recipes that call for rice flour are easily changed to sorghum flour. She loves potatos and quinoa.

((hugs))

Share this post


Link to post
Share on other sites

Hi, I'm not sure I'll be much help but your post sounded a bit like my life a year ago. My daughter first had a severe reaction to rice cereal at 5.5 months old. It was her first solid food. Within about 3 feedings she was vomiting so much that only yellow bile was coming up. We did try it a few more times but basically gave up and she was only getting fruits and veggies for awhile. I could write a novel about our trials and tribulations with our daughter. She had the same reaction to oatmeal when we tried her on that at about 7 months. It wasn't until 10 months we tried her gluten free. She has never been diagnosed with Celiac and may never be since I won't make her go through a challenge if she has any symptoms. We are planning a challenge in a couple years. She is only 2 now. ANYWAY..my daughter eats rice all the time now with no problems. I'm not sure when I reintroduced it but it is a staple in her diet.

Feel free to email me if you want to chat. We went through hell for about 18 months (even though she was gluten free and it helped, she had lots of other problems that have sort of resolved with no diagnosis or treatment) Frustrating beyond belief but she is much better now although still has many more illnesses than other kids her age.

Not sure I helped much but wanted you to know that your child might be able to eat rice at some point and not to stress to much about it

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,807
    • Most Online
      4,125

    Newest Member
    MeresaI
    Joined
  • Forum Statistics

    • Total Topics
      112,067
    • Total Posts
      956,699
  • Who's Online (See full list)

  • Forum Discussions

    Oh yes, it could, although to be honest I never got myself so wet with sweat that it would have been a serious situation.  However, I can remember one time when I got caught in a cloudburst while going to my car in a large parking lot, though, and got soaked to the skin, and of course had to wear those soaking-wet clothes while I drove the 45 minutes it took me to get home --- I will NEVER forgot the misery and agony of that drive!  I could just barely keep the car under control, in fact.
    Thanks for your response, Squirmingitch, but I have to almost laugh, as at this point I am not really stressing over these questions at all --- just curious.  I have always been an insatiable question-asker, so please don't take my frequent questions as a sign of my obsessing over celiac disease or DH.  Yeah, admittedly I was rather stressed out for a couple of days two weeks  ago or so, but I am significantly settled down now, even while negotiating the nutritional maze of trying to manage two
Water?! That's… unreasonably inconvenient. Did it happen with sweat?
  • Blog Entries

  • ×
    ×
    • Create New...