Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


Strange Symptoms, Any Ideas?

Rate this topic

Recommended Posts

My 5 year old was glutened about 10 days ago while at my parents, my poor dad bought Vans regular waffles instead of the gluten free ones. So she ate TWO, and was very sick that day. It was a typical gluten reaction for her....vomiting for about 6 hours, then just really tired and moody for a few days after.

Over the weekend, she was back to her old self, and even had enough energy to go to a birthday party. Now she's running a fever, which at first was 102, but now it's been running 99 for a couple of days.

She also has a double ureter and grade II reflux, so I went ahead and brought her in for a urine culture yesterday since she didn't have any other symptoms besides the fever. Urine looked clear, still waiting to hear back about the culture. My big concern is that she is drinking a ton of water, and not making much urine. Yesterday she went 18 hours before she voided, and she had been drinking alot of water. She's also been complaining that her eyes feel funny, and things look blurry. Today, she's vomiting again and is really, really lethargic.

If this keeps up, I'll bring her back in. I just don't know if this is gluten related, or possibly a kidney problem. ARGH! Her reactions typically do not last this long, or come back suddenly after she seemed to be recovered. The doctor really didn't have a clue, but said if she gets worse to bring her back. Any ideas guys?

Share this post

Link to post
Share on other sites

Wow, poor child!

My first thought is that maybe the waffles got stuck in the intestines. That would make me drink a lot, and would also explain the fewer bathroom visits. I'm guessing the party was all gluten-free, since you didn't mention any possible second glutening?

I do know magnesium draws water into the intestines, but what I don't know is if that would be wise right now, and just how much to give. That might be a question for the doctor, but I would expect some sort of scan be done first, to see if there's some obstruction in the digestive tract.

I don't doubt she'll be reading the packages herself from now on.


Share this post

Link to post
Share on other sites

I'm pretty certain she didn't get glutened at the party.....I brought her a safe cupcake, but there's always the possibility of crumbs being left somewhere. And it was at one of those indoor bounce house places, so there's always the chance of gluteny fingers touching things.

She could have also picked up a regular old bug at the b-day party I suppose. It's so hard to differentiate between a glutening, urinary tract problems (although at least those are easy to rule out), or just a plain bug like other kids get! The only reason I got a tad bit worried was b/c she didn't pee when she woke up yesterday morning, and didn't end up going until about 10am. Even then it was only a little bit, not even 1/4 cup (I only know b/c that's when I took the sample, lol) Then today, she didn't want to get out of bed.....and has just been extremely lethargic all day.

When she said her eyes felt blurry (of course, she is only five, so who knows what this means, lol), I thought the low urine output, thirst, lethargy, and nausea didn't sound too great. But maybe she's also just sleeping off a bug and is a bit dehydrated. Anyway, we'll see what happens! Thanks.

Share this post

Link to post
Share on other sites

Could she have a virus or the flu? That would make her dehydrated and that's why she's not eliminating all the water she's drinking. Being glutened could have made her more vulnerable to getting sick--especially this time of year...just a thought.

If the vomiting continues with the low grade fever, definately check back with the doctor to rule out a kidney infection.

Share this post

Link to post
Share on other sites

I was also thinking some sort of virus. Getting glutened is rough on the immune system; I find I get every little bug going around when I'm glutened. I'll get things that no one else had, probably because their immune system could fight it off before they got really sick from it.

Share this post

Link to post
Share on other sites

Not sure of where you live but here in Indiana, we are getting our butts kicked by the flu . . . even those that have had flu shots (like my daughter) are coming down with it. One the nearby elementary schools had about a 100 kids out with the flu (out of about 650).

Hope she's feeling better soon!!

Share this post

Link to post
Share on other sites

Yep, ya'll hit the nail on the head, I think it is the flu. It's been a few years since we've had to deal with it, so I completely forgot how much it can wipe you out. I really worry too much over her, I always assume it's something worse. We haven't had a year yet where she doesn't get diagnosed with something new, so I'm always waiting for the other shoe to drop. Now I can rest...it's just the flu, lol.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
  • Blog Entries

  • ×
    • Create New...