Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Hi Everyone,

I was having a conversation with a friend of mine who told me his sister was diagnosed with something called celiac disease. The more he talked the more it sounded just like me. So I started researching, and reading and thought this might be me. I started a small experiment. On January 2, I started phasing out gluten from my diet. It was really hard for the first couple of days trying to figure out what not to eat. I by no means was pure, I know there were some dinners with some cream soups, and a sneaks of things I should not have been eating but overall the amount was way down or none. Overall I was starting to feel a bit better. I promised myself to try it for 10 days.

On January 11, we went for a pizza. That night I had so much gas and next day I had the diarehha. Duh why did'nt I think of this, I had gotten so much better and lost weight on a low carb diet years ago. So I went off again and continued to feel much much better. I continued staying as off until Tuesday February 12. When I scheduled an appt for my annual exam at which point I planned to ask for the test. I have read over and over that you have to be eating gluten to be properly diagnosed. So went back to gluten on Tuesday the 12th.

I ate a few cookies and stuff. On the 13th we went for Pizza, on the 14th I had pasta. Boy am I sorry. It took a few days for the symptoms to return but I am all around feeling awful now.

So let me outline the symptoms I have when eating gluten:

Tons of Gas,

Foul smelling, and violent diarehha with cramping.

Stools that are frothy, light in color

Belly bloating and distension

Wheat craving

Mouth sores when I am sick

Back pain

Muscle soreness and weakness

Weight gain


easy to bruise

dark circles under my eyes

acne, cyst like acne

During my 6 weeks off of gluten all of these cleared up or were on there way to resolving. I almost did not what to do with myself by having to have a hard stool, it was almost scary to have to actually make an effort to have a bowel movement.

Not all of these symptoms have returned yet after 3 days but many have. I am convinced that this is the problem. As soon as I get the blood test I will go back to gluten-free living. I need to get this test over with. I feel terrible. During the 6 weeks, I tried to broach the subject with my mother who also has all these symptoms and she was not receptive. She outright told me she would not believe me till there was medical proof. :( She said I was wasting the doctors time and I am just being a hypocondriac because people who have celiac are underweight not big like us.

On an interesting note I started on Jan2 at 165 lbs. Down from 177 in October. During the 6 weeks I got down to 163. Today after 3 days on the gluten I am 167. This is madness.

Am I crazy, and hypocondriac-ish, or could this really be what has been dragging me down for so long. Any thoughts from you all would be very nice.

Thanks in advance for finding time to answer,

H. W.

Share this post

Link to post
Share on other sites

Present your symptoms to your doctor, and ask to be tested for Celiac. The five blood tests in the panel are:


Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

A common misconception about Celiac is that Celiacs are underweight, not overweight. Read this information. http://www.celiac.com/articles/1077/1/39-o...bese/Page1.html

Celiac Disease prevalence in the USA is 1 in 133. However, 97% of Americans that have it are not diagnosed.

Good luck!

Share this post

Link to post
Share on other sites

Sounds like you already have your answer. Plus, if the tests come back negative, I'm sure you aren't going to celebrate with a pizza. No, you aren't a hypochondriac.

So glad you found this site!

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
  • Blog Entries

  • ×
    • Create New...