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maddysmom

celiac disease Tests And Epilepsy Meds

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Hi MM,

Welcome to the board!

Personally, I don't know of anything that would affect the Celiac blood testing other than going on a gluten free diet.

There was an episode of Mystery Diagnosis (or something like that) on Discovery a few years ago that involved a little boy who had seizures. Turned out later that it was Celiac.

Certainly can't say that it applies to your daughter, as it seems to be a side effect that isn't often discussed, but still, may be something to consider.

See this link, from a Celiac support group, page 15. http://www.twincitiesrock.org/documents/Ce...resentation.pdf

Also: http://www.montanaceliacsociety.com/physiciansmanual.htm "Seizures: Described to be frequently associated with Celiac Disease, due to intercranial calcification, particularly in the posterior of the brain, causing seizures. We had a four year old girl with recurrent seizures who did not respond to anti-epileptic drugs and was brought to our office because of weight loss. She had had seizures for 2 years. She tested positive for the anti-gliadin and anti-endomysial antibodies. The biopsy showed her to be Celiac, and for the first time her seizures were controlled. Folic Acid deficiency secondarily causes the calcification. Rarely does the calcium deposit almost disappear, but it did in this case. "

Even though the tests are negative, it may be worth it to you, as a mom, to do a trial gluten free diet to see if her symptoms improve. Just something to think about.

Best of luck to you and your daughter!!! Regardless of whether gluten is/isn't a problem for your daughter, I sincerely hope you find some answers.

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Hi, new here but had to comment.

My nine yr old has adhd & odd. At Christmas 2007 he had a seizure. Took him off adderal immed. Got eeg and allergy tested.

eeg came back abnormal

got mri tues

allergic to all dairy (casien, whey)

eggs

gladin/gluten

wheat

mild allergy to peanuts (which i elimanated) and beef

so far no other seizures!!


Whole family is allergic to Gluten, eggs, dairy, most are allergic to garlic. Few other various allergies.

Did you know it's best to wait until 21 months to give a baby wheat??

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Seizures are a fairly common problem caused by celiac disease. Unfortunately your doctor didn't order the whole celiac blood panel, and therefore celiac disease can't be ruled out.

The blood work is not very reliable and yields many false negatives. Stunted growth and digestive problems also point towards celiac disease.

Constipation is also a common symptom of celiac disease, but could also be caused by dairy or soy.

I agree that you might just want to try a gluten-free diet with your daughter, and it would be a good idea to also eliminate all dairy and soy. It wouldn't surprise me if her digestive problems would clear right up, and her epilepsy resolve. And she might start growing, too.

rick-spiff, adhd and odd are common symptoms of celiac disease. I hope that your son will improve tremendously on the gluten-free diet.

All the best to both of you.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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