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crittermom

Michael Update

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So Michael has been completely gluten-free for 10-12 days. He was doing beautifully. BM's completely normal with no signs of undigested food AT ALL! He was also only voiding 1-2 times per day instead of 4-6. His appetite has skyrocketed, no more mood swings or temper tantrums and the rash on his cheek has dissapeared. (don't know if that is gluten related but it did)

On Saturday we decided to test him one more time on a smaller scale for documentation purposes for appt next Friday to show the doctor after the neg biopsy. We went to McDonalds. I know this is a very passionate subject here but I am not trying to start the fry debate, some have problems some don't. Michael ate the fries, within 15 minutes he was in tears that his belly hurt, started passing gas, the temper tantrums were extreme, he has been crying and clingy since then and yesterday his BM's were green loose and had undigested food in them again. He was a tad bit better today. Well needless to say he will not be eating gluten ever again under my watch or his preschool teachers'! Thank goodness his teachers are so with me on this. They even did research before I brought the paperwork in for them to read!

Anyway, we have our appt March 7th after the negative biopsy for a check up and discussion. I will go in there with my "handy dandy notebook...right" ;) and show it to the doctor. It is proof positive that gluten is our culprit. She doesn't have to agree, I know it to be true! When he gets to school age if I need someone to back my up in the medical field, I will fight with her then, and if she won't help out... my oldest friend became a doctor! I will post after out appointment! Thanks again for reading about my little man, it is nice to know that there are people out there who not only understand but care about little people they have never met! Take care and be well!


Melissa

Diagnosed Fibromyalgia March 2007

Mom to Katharine, 5 years old diagnosed Celiac Disease Sept 2006

Peanut allergy

Michael 3 years old diagnosed infant reflux at 6 weeks

Dairy Soy allergy until 22 months

Neg blood tests and biopsy Feb 2008

Positive gluten-free dietary response

You may have to fight a battle more than once to win it.

Margaret Thatcher

Fall down seven times stand up eight.

"I've decided that after air, water, and dirt, the next most common substance on the planet must be gluten!"

Toni Nolte, Overland Park, Kansas

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Hi Melissa,

I totally agree--you have your answer! :D

Best of luck with the doctor--but I'm glad to hear you are going to stick to your guns no matter what she says. I hope your little guy feels better soon :) By catching this early, you will be saving him a lifetime of problems.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Yay! Sounds like you have your answer...and I too am glad you will stick to your guns even if the doc doesn't quite agree. I haven't had a doctor yet get on board with me putting the other kids on the diet w/out a positive biopsy, but they are much happier w/out gluten. I think we moms have a difficult enough job as it is...we don't need gluten induced temper tantrums to make things more challenging, lol. Congrats again, I hope your little man continues to improve!


Tamara, mom to 4 gluten & casein free kiddos!

Age 11 - Psoriasis

Age 8- dx'd Celiac March 2005

Age 6- gluten-free/cf, allergy related seizures

Age 4 - reflux, resolved with gluten-free/cf

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