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Need To Be Eating Gluten To Be Tested?


DMarie

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DMarie Apprentice

Hi,

I

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celiac3270 Collaborator
I
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tarnalberry Community Regular

Yep, you need to be eating gluten to do blood tests (or biopsies) for it.

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Dustyman Newbie

Hi. I think I need some help...quick. Many years ago an allergist told me I had a mild wheat allergy. I didn't pay a whole lot of attention to it until recently when my symptoms got totally out of control. Told my GI I thought I might have celiac disease and I am going to have blood work done this Wednesday and a biopsy the following Wednesday (have an endoscopy yearly for another digestive problem). Anyway, in early December I stopped eating anything with glutin and I feel amazingly better. The problem is, it occurred to me that perhaps my blood work and biopsy will turn up negative because I've changed the way I eat. Checked with the doctor's office to see if I should start eating wheat again for these tests and they told me it's not necessary. After reading the postings on this site, I'm really nervous that I'm going to end up with negative results. What say you all? I don't want to do it, but if it means positive versus negative results... Obviously, at this point I don't have a month to do it, but I know what some of my worst triggers are.

By the way...I am thrilled to have found this site! Thanks for any input.

Carol

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MySuicidalTurtle Enthusiast

If the diet is working well for you you can stick with it if you'd like but if you really want the test diagnosis then should eat gluten.

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celiac3270 Collaborator

Your other option is Open Original Shared Link (depending on how long you've been gluten-free). You can order a test kit for celiac and you'll get accurate results as long as you haven't been solidly gluten-free for a few years....and I assume you haven't been gluten-free for 4 years or something :)

P.S. It's unlikely that your doctors would accept Enterolab, but many here have used it and been very satisfied. ;)

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