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bassgirls

Testing While Wheat But Not Gluten Free?

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I believe that both my girls may have celiac based on symptoms. Im taking them to a new GI and wonder about testing. My youngest as an allergy (neg. on RAST small 1 on skintest) to wheat. Funny thing is her only symptoms to it are GI and delayed. As in, if she eats it today shes sick (vomitting and diarreah) tomorrow and for a few days later. She still gets gluten though. How would testing go for wheat but not gluten free??? and just to make sure Im on the right track I'll list thier symptoms.

R- age 8 43lbs 46.5 in

-stomach aches daily

- poor weight gain/ growth in general

- chronic canker sores

- constipation, floating stools

-difficulty swallowing sometimes

-has what looks like DH on her feet

-has what looks like KP on upper arms and thighs

W- age 5 34lbs 41in

-constant stomach aches

-either diarreah or constipation foul stools

-unknowingling has BM in sleep occasionally

-blood in stool on occasion

-multiple chronic canker sores (usually has several at once)

- has what looks like cradle cap still but not so severe

- distended abdomin

-leg pains atleast 3x wk at night (wouldnt ring a bell except she also has leg pains during the day if she walks too much)

-has what looks like KP in her upper arms

Your thoughts would be wonderful. Thanks! -BETH

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I would ask my doctor for a panel, he can call in the order. Then after the blood is taken do a trial of the gluten free diet. Or you could go with Enterolab testing and try the diet. The Enterlab tests are more likely to be accurate than the blood draw. But regardless of the test results a gluten free trial will most likely give you the most accurate results.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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If she's not eating wheat, she could get a false negative to the bloodtest (I have the same problem -- wheat allergy). The U of Chicago suggested I try the diet and get genetic testing for the tendency to gluten intolerance. In addition, they told me the small amount of gluten I was getting from other grains would not cause a positive on the bloodwork.

But boy howdy, your children sure sound like they've got celiac disease based on their symptoms!

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