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DonnaD

Enzyme Potentiated Desensitisation Treatment For Coeliac?

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Has anyone any experience of having these 'shots' for celiac? Any information or reasearch would be helpfull. This treatment has been suggested to a friend as a treatment instead of the gluten-free diet but I cannot find any details.

My own daughter is doing really well gluten-free and is growing like a weed!


Mum of 11yo dx celiac disease Nov 05 by biopsy

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Celiac.com Sponsor (A8):

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I have never heard of this, but it sounds fishy to me. I am sure if there really was a valid treatment that got rid of celiac disease, we would all know about it. As far as I know, the gluten-free diet is the only valid treatment for celiac disease at this point.

I am glad your daughter is doing well.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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This sounds like an allergy treatment. You can be desensitised for allergens but not for autoimmune reactions. Even a small amount can keep the autoimmune process going. I wouldn't do it, it is snake oil if they are trying to sell it as a treatment for gluten intolerance or celiac.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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