Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Thank God For Wonderful Doctors!


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

Can it be true? A doctor listens to the parents and looks at the child in question. How is the child reacting to gluten? What are the symptoms? When you take the child off of gluten what happens? What happens when you challange the child with gluten? Let's do the blood test--negative. Let's go ahead and do the biopsy--negative. Let's re-examine the child's symptoms--

Diagnosis: We will treat Max as though he has Celiac disease. The biopsy is negative but all this means is that he's 2 and probably doesn't have enough damage to measure and maybe the samples weren't taken in JUST the right place. We won't have an official diagnosis, but as far as I'm (dr) concerned, Max has Celiac disease.

To Dr. William Marshall-

Thank you, Thank you, Thank you for listening to us!!!!!

For all the parents out there--you know your child better than any doctor could possbily know them. Don't take "no" for an answer if you know in your heart of hearts that there's something wrong! God Bless you all!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

Awesome! That doctor's a keeper!

Link to comment
Share on other sites
Ursa Major Collaborator

There are actually SOME good doctors out there, congratulations on having one of them for your doctor!

Link to comment
Share on other sites
nikky Contributor
Can it be true? A doctor listens to the parents and looks at the child in question. How is the child reacting to gluten? What are the symptoms? When you take the child off of gluten what happens? What happens when you challange the child with gluten? Let's do the blood test--negative. Let's go ahead and do the biopsy--negative. Let's re-examine the child's symptoms--

Diagnosis: We will treat Max as though he has Celiac disease. The biopsy is negative but all this means is that he's 2 and probably doesn't have enough damage to measure and maybe the samples weren't taken in JUST the right place. We won't have an official diagnosis, but as far as I'm (dr) concerned, Max has Celiac disease.

Yey congrats.. i think lol.

this proves that there are decent doctors in the world. I had the exact same thing happen to me .. negative biopsy.. but i was also pretty much asyptomatic (i had anemia and tiredness). But my GI (Dr P.J. Dale) diagnosed me anyway .. as far as i can tell most doctors would have said that the anemia was because im a girl and the tiredness is because of the anemia .. go take some iron and get over it. And its offical . its as if the biopsy was positive in everyones eyes.

thank God for doctors like ours :D i only wish all doctors could be so good.

Link to comment
Share on other sites
HAK1031 Enthusiast

I have a great GI too...my blood was neg., and I was already gluten-free so he didn't try to make me do an endo...I had genetics, was found to have DQ2, and that was enough for him!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,985
    • Most Online (within 30 mins)
      7,748

    Leenacut
    Newest Member
    Leenacut
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...