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celiac-mommy

Thank God For Wonderful Doctors!

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Can it be true? A doctor listens to the parents and looks at the child in question. How is the child reacting to gluten? What are the symptoms? When you take the child off of gluten what happens? What happens when you challange the child with gluten? Let's do the blood test--negative. Let's go ahead and do the biopsy--negative. Let's re-examine the child's symptoms--

Diagnosis: We will treat Max as though he has Celiac disease. The biopsy is negative but all this means is that he's 2 and probably doesn't have enough damage to measure and maybe the samples weren't taken in JUST the right place. We won't have an official diagnosis, but as far as I'm (dr) concerned, Max has Celiac disease.

To Dr. William Marshall-

Thank you, Thank you, Thank you for listening to us!!!!!

For all the parents out there--you know your child better than any doctor could possbily know them. Don't take "no" for an answer if you know in your heart of hearts that there's something wrong! God Bless you all!


Rachelle 20dance.gif

Daughter diagnosed 1/06 bloodwork and biopsy
-gluten-free since 1/06

Son tested negative-bloodwork (8/07), intestinal issues prompted biospy (3/08), results negative, but very positive dietary response, Dr. diagnosed Celiac disease (3/8)

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


There are actually SOME good doctors out there, congratulations on having one of them for your doctor!


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Can it be true? A doctor listens to the parents and looks at the child in question. How is the child reacting to gluten? What are the symptoms? When you take the child off of gluten what happens? What happens when you challange the child with gluten? Let's do the blood test--negative. Let's go ahead and do the biopsy--negative. Let's re-examine the child's symptoms--

Diagnosis: We will treat Max as though he has Celiac disease. The biopsy is negative but all this means is that he's 2 and probably doesn't have enough damage to measure and maybe the samples weren't taken in JUST the right place. We won't have an official diagnosis, but as far as I'm (dr) concerned, Max has Celiac disease.

Yey congrats.. i think lol.

this proves that there are decent doctors in the world. I had the exact same thing happen to me .. negative biopsy.. but i was also pretty much asyptomatic (i had anemia and tiredness). But my GI (Dr P.J. Dale) diagnosed me anyway .. as far as i can tell most doctors would have said that the anemia was because im a girl and the tiredness is because of the anemia .. go take some iron and get over it. And its offical . its as if the biopsy was positive in everyones eyes.

thank God for doctors like ours :D i only wish all doctors could be so good.


"great works are performed not by strength but by perseverence"

 

Diagnosed coeliac - aged 14

                  Asthma

                 Osteopinia

                 High blood calcium

                 Crohn's disease -december 2012 

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I have a great GI too...my blood was neg., and I was already gluten-free so he didn't try to make me do an endo...I had genetics, was found to have DQ2, and that was enough for him!


Gluten Free since 10/07

Mildly Lactose Intolerant, slight intestinal symptoms after eating milk products, but easily corrected with lactase enzyme

Endometriosis- DX'd 5/07

Gluten Antibodies- "negative"...don't know exact numbers, am highly suspicious...

DXed celiac 12-19-07 via genetics/elimination diet- DQ2 allele

Brother with Celiac, aspergers...his tests were all negative (he didn't have genetics done), including endoscopy, but he definitely is at the least gluten intolerant...highly suspect my mother has it as well- she has hyperthyroid, fibromyalgia, hemochromatosis, and now colon cancer, and she has been weak and exhausted and just generally sick. She's going to get tested.

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