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kayavara

Linchen Sclerosis A Part Of Celiac Disease?

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Does anyone know if Linchen Sclerosis ....an autoimmune skin disease....could be connected to Celiac Disease?

Kay


Kay

Gluten free since 4/11/08

Positive dietary response

Blood test negative

Endoscopy negative biopsy

but found :" Villous blunting and atrophy" and

"Gastric mucosal abnormality characterized by erythema"

Doctor insisted I need to go gluten free for at least 4 months

Best thing I ever did!

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I don't know if this specifically has been identified as being associated with celiac but any autoimmune disease has the potential of being triggered by celiac. The autoimmune process that results from celiac disease can effect almost every organ of the body.

If you have this and you are celiac or think you might be the gluten free diet could give you the answer. I was frankly shocked at all the autoimmune disorders I had that went into remission gluten free.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I think it must be connected.I can't tell yet if the diet is helping that problem because I am currently on Prednisone for it ...which helps it anyway.After the med is ffnished I'll be anxious to see how much diet alone works.I had no idea how much I was/am affected by Celiac! As I mentioned I'm brand new to this thing...but trying to absorb everything I need to learn. It may be in my head but I think I already see results although I still have some bloating at times..It's been 5 days since my doctor informed me of the scope results.....although my lab tests are not in yet.

Kay


Kay

Gluten free since 4/11/08

Positive dietary response

Blood test negative

Endoscopy negative biopsy

but found :" Villous blunting and atrophy" and

"Gastric mucosal abnormality characterized by erythema"

Doctor insisted I need to go gluten free for at least 4 months

Best thing I ever did!

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It's not Linchen Sclerosis, it's Lichen Sclerosis. Pronounced Liken, or lyken.

This is so wierd. I had a strange skin condition about 20 years ago. It was only one small, smooth circle about the diameter of a cigarette. It didn't itch or cause me any physical problem. But, it was on a certain private part of my anatomy that immediately resulted in me totally freaking out. I was certain that God had inflicted me with a rebuke of my careless (albeit limited) behavoir.

My personal doctor had no idea what it was, and so referred me to a dermatologist who identified it in short order. Lichen Planus. It is not contagious (so I didn't "catch" it from anyone), and it's origin is not known. It is thought to be related to your disorder, but is a separate and less severe malady. It is said to be aggravated by eating toast, and crunchy foods such as cereals and chips, etc. DUH, I was the toast and all things crunchy fiend. Crusty bread chief amongst my many bread obsessions. They give you a topical cortasteroildal cream which makes it go away. But, here's the kicker, it's an autoimmune disorder. Granted, there are many autoimmune disorders. But still, given that I now have bonafide Celiac Disease, maybe there was an early connection.

This is the first I've ever heard either of these skin conditions mentioned here. Thanks for your post.

best regards, lm


gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa

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It's not Linchen Sclerosis, it's Lichen Sclerosis. Pronounced Liken, or lyken.

This is so wierd. I had a strange skin condition about 20 years ago. It was only one small, smooth circle about the diameter of a cigarette. It didn't itch or cause me any physical problem. But, it was on a certain private part of my anatomy that immediately resulted in me totally freaking out. I was certain that God had inflicted me with a rebuke of my careless (albeit limited) behavoir.

My personal doctor had no idea what it was, and so referred me to a dermatologist who identified it in short order. Lichen Planus. It is not contagious (so I didn't "catch" it from anyone), and it's origin is not known. It is thought to be related to your disorder, but is a separate and less severe malady. It is said to be aggravated by eating toast, and crunchy foods such as cereals and chips, etc. DUH, I was the toast and all things crunchy fiend. Crusty bread chief amongst my many bread obsessions. They give you a topical cortisteroildal cream which makes it go away. But, here's the kicker, it's an autoimmune disorder. Granted, there are many autoimmune disorders. But still, given that I now have bonafide Celiac Disease, maybe there was an early connection.

This is the first I've ever heard either of these skin conditions mentioned. Thanks for your post.

best regards, lm

Well it all makes since now.I had no clue that toast,chips etc. bothered the condition.I lived off of that stuff.I should see a huge difference now being gluten free.I did know that it was an autoimmune disorder and it was not contagious.I've been having it off and on for 3 years now.....along with soooo many other symptoms of celiac disease.Thanks for the info.

Kay


Kay

Gluten free since 4/11/08

Positive dietary response

Blood test negative

Endoscopy negative biopsy

but found :" Villous blunting and atrophy" and

"Gastric mucosal abnormality characterized by erythema"

Doctor insisted I need to go gluten free for at least 4 months

Best thing I ever did!

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Maybe? As has been mentioned, autoimmune disorders tend to run in groups, so there's a maybe right there. Additionally, some people with similar issues have found that going gluten free helps them. I found my way to being gluten free from a listserv for vulvar vestibulitis, a gynecologic pain disorder, which often is misdiagnosed as (or vice versa) lichen sclerosis or planus, or occurs simulatenously, and some people would find the diet helpful.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Dear Tiff,

I'm more than happy to be sharing yet another autoimmune related disorder with you. B)

yours truly, lm


gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa

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