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Got My York Allergy Results!


mela14

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mela14 Enthusiast

I finally got my food intolerance results. It's one thing to know that you feel sick after eating something but to have it in black and white through a blood test is something else.

It seems that my worst intolerance is to eggs...both the protein and the yolk. ............hhhhhmmmmmmmmmno. At least now I feel better knowing why I was so ill for days after having eggs. the next was milk, then wheat and gluten and a bunch of other things. Soy was listed as a low reaction but it really does a number on me and I have avoided having it. Some nuts but walnuts were ok. There was a lot of information there and I am going to try to the best of my ability to work out my diet. I am already feeling better and have not had diahrea just by avoiding gluten. I also put on 2 lbs! yeah....up to 94!

I went to the GI dr on Monday because of the IBS also acting up. He as pretty knowledgeable in gluten and wants to to a biopsy. At this point I don't want to have it done. He says that he needs it to make a real diagnosis especially since the trans glutaminase test was normal. the Gliadin AB IGg were high....but he said that's not enougn.

At this point I don't need the Celiac diagnosis.....feeling better without the gluten is good enough for me. I am not going to have the endoscopy. I may consider it when I move up North.... but then only at Columbia Presbyterian.

I am so happy I did this test. For me it was sooooooooooo worth the money. Although, I've been told not to rely on it 100%, I feel that it is helping me to get on the right track with my diet and therefore sooooooooo worth it.

Will keep you posted,


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burdee Enthusiast

Hi Mel:

I'm SOOOO glad to hear you got some useful info from the York tests, esp. to confirm what you already suspected. Knowledge is power. Now use all that to help yourself feel better. ;)

BURDEE

dizzy Rookie

Hello! Glad to hear your feeling better. Could you please tell me about the york test? I have heard about them, but I went to an allergy doctor, who gave me the skin prick tests, and said if Im allergic, it will show on these tests. I asked him about blood tests, and he said they arent reliable, how do I know what to believe? Just wondering if someone can help me with advice... thanks..

Maggie1956 Rookie
Hello! Glad to hear your feeling better. Could you please tell me about the york test? I have heard about them, but I went to an allergy doctor, who gave me the skin prick tests, and said if Im allergic, it will show on these tests. I asked him about blood tests, and he said they arent reliable, how do I know what to believe? Just wondering if someone can help me with advice... thanks..

Hi Dizzy. I was about to ask the exact same question.

Also, does anyone know if this test is available outside America? I'm in Australia. :huh:

plantime Contributor

Mel, If you are going to go glutenfree now, don't even consider the biopsy at a later date. You will start healing, and so the results might be negative. I am glad that you have answers, and that you now know what to do!

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    • lizzie42
      Thank you! This is helpful. I actually read her results wrong. It looks like her tTG test was just higher than the test goes (it only goes up to 100 and hers was higher than that so it just said greater than 100 and 0-3 would have been normal). And the 109 was a different iga test (immunoglobulin A, Qn, Serum). The ema was just a straight positive. I think I'll just move forward with gluten-free for her and have the other kids and us still eat some till our tests next week). How do you completely eliminate gluten from the kitchen? Like the flour shelf, I wiped it all down and got rid of flour but what if one tiny speck of flour got in something, does that derail everything? Is the dishwasher good enough to clean baking bowls, etc? Luckily she loves larabars and most fruits and veggies and rice. Once the kitchen is safe home will be fine. It all makes sense now why she hates waffles and pancakes and always asks for rice for breakfast.
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      My 5 year old had the blood test in August 2023, which came back negative.   We just had a well-visit & he has lost weight over the last 6 months.  My new Dr thinks its ENT issues causing his irritability & fatigue.  We recently switched pediatricians, and I'm not sure how much to push for a celiac re-test.  Obviously I'm not a Dr, but my gut feeling here is to re-test.  How common are false negatives & how much should I be pushing my Dr to prescribe a re-rest?   
    • trents
      The EMA is an older test that isn't run so often any more. I think it was the original test developed to detect celiac disease. It's fairly expensive to run because, if I recall correctly, it requires mammalian organ tissue to execute. But when it is positive, it's a pretty safe bet that there is celiac disease.  I would suggest discussing your options with your physician. One option would be to trial a gluten free diet for a few months and get her retested. If test scores decline significantly, that would be evidence that the high numbers were being caused by celiac disease and not something else. If you must proceed with an endoscopy/biopsy, push for getting one sooner than later and she would still need to be consuming gluten. https://www.beyondceliac.org/research-news/when-blood-tests-results-are-highly-positive-a-biopsy-might-not-be-needed-to-diagnose-celiac-disease/   https://www.gastrojournal.org/article/S0016-5085(24)00123-9/fulltext    
    • lizzie42
      It was the tTG iga. The first test the range was that it needed to be under .05 and hers was .9 The repeat was a different lab and it said normal was 0-3 and hers was 109. The first test was part of a free study our DR recommended be celiac seemed unlikely at the time. Of course now it all comes together! So hers would have been 18x the upper limit on the first test and then even more on the second one if I'm doing the math right. The tests were a few months apart because it took a long time to get the first one back. 
    • trents
      Welcome to the forum, @lizzie42! Can you also supply the reference range for that celiac antibody test? Each lab uses its own reference ranges for the celiac antibody tests so we can't comment otherwise until we know. And was that the TTG-IGA? There is also a TTG-IGG celiac antibody test. There is a growing tendency for physicians to forego the endoscopy/biopsy when the tTG-IGA score is quite high. In the UK the that is 10x the high end of the normal range but different docs here in the USA may have their own protocols and not all of them will bypass the endoscopy/biopsy regardless of the blood test score. I also think docs are generally reluctant to do scopes on small children. The celiac rash is called dermatitis herpetiformis. There is a drug called Dapsone that is often effective for preventing dermatitis herpetiformis outbreaks but it is a strong med with some risks such that patients on it must be monitored for signs of liver stress? I think. I would be surprised if a doctor would prescribe it for a toddler. Other than that, the only thing I know of (besides eliminating gluten) that might help is a low iodine diet. Yes, there are gluten free sourdough bread products available. My wife picked up at Costco last year but I wasn't very impressed with it. The sourdough taste and smell was barely noticeable.  
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