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Harri Real

Hello From England!

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Hello everyone,

I'm just wondering if there's anyone else from England on this forum.

Ta ra!


Born 1988, almost died early 1989 due to weight loss, finally diagnosed just before my 1st b'day.

Perfecto now! It's easy when you know how!! :-D

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Hello everyone,

I'm just wondering if there's anyone else from England on this forum.

Ta ra!

I am! :D

My hubby & son both have coeliac disease.

Whereabouts in England are you??


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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Hi,

I'm actually in Australia but I usually spend 3 or 4 months of every year working in the UK, I usually stay with family in Harpenden.

If anyone can recommend gluten-free places to eat in and around London I would really appreciate it :)


Australian

Gluten Free Since mid March 2008

As well as gluten I can't eat: cantaloupe, honeydew, dairy and most nuts and seeds. I also seem to have a problem with a lot of fruits and vegetables but only when they are raw.

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sorry dont know London. Perhaps if you asked that question in the "Travel" thread some1 might know, because i just asked the same question in that thread about las vegas and some lovely people answered me, really helpful.

or you could have a look on the coeliac UK website and they have a part called gluten free on the go, where restaurants are advertised/recommended.

you not been gluten free long i see, me neither, your about my age too, im 26. bless you getting married how exciting!! im still waitin been engaged 3 years.... typical slow man!! te he :)

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sorry dont know London. Perhaps if you asked that question in the "Travel" thread some1 might know, because i just asked the same question in that thread about las vegas and some lovely people answered me, really helpful.

or you could have a look on the coeliac UK website and they have a part called gluten free on the go, where restaurants are advertised/recommended.

you not been gluten free long i see, me neither, your about my age too, im 26. bless you getting married how exciting!! im still waitin been engaged 3 years.... typical slow man!! te he :)

Oh dear, typical man. Perhaps you should just start booking things - he'll figure it out :lol:

I have been reading some pretty scary things about the labeling laws in england. There is a post in the international section that implies that the food labeled suitable for celiacs in the UK actually has gluten in it. What do you think?


Australian

Gluten Free Since mid March 2008

As well as gluten I can't eat: cantaloupe, honeydew, dairy and most nuts and seeds. I also seem to have a problem with a lot of fruits and vegetables but only when they are raw.

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Oh dear, typical man. Perhaps you should just start booking things - he'll figure it out :lol:

I have been reading some pretty scary things about the labeling laws in england. There is a post in the international section that implies that the food labeled suitable for celiacs in the UK actually has gluten in it. What do you think?

i dont know...i did comment a few times in that post. i just stick with what i know and that works fine for me! i know i get pasta, etc on prescription here, which says gluten free and is made from rice therefore cannot have gluten in! its organ stuff which is made in australia so you prob know. i wouldnt worry, i just buy normal none specialsit products, you just need look at the labels and if it has gluten in it will say, but i suppose if it does not have gluten in, it does not say gluten free, its just a case of you reading all ingredients lists. basically nothing says gluten free on the packet, (unless its a specialist product), but loads of it is, you just have to read ingredients for yourself, theyre not very helpful!

sorry if this does not make sense!! not good at explaining things, i just expect you to read my mind!! :):D

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Helloo peeps.

I am! :D

My hubby & son both have coeliac disease.

Whereabouts in England are you??

Southampton. You?

There's a Gluten Free pub in Botley, Hampshire. It's great, you can even eat soup of the day, WITH BREAD!!!! :D

Hey Jo,

Hope your having fun with the diet!!


Born 1988, almost died early 1989 due to weight loss, finally diagnosed just before my 1st b'day.

Perfecto now! It's easy when you know how!! :-D

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Southampton. You?

There's a Gluten Free pub in Botley, Hampshire. It's great, you can even eat soup of the day, WITH BREAD!!!! :D

Hi all - wow!, yes!!....the bread WITH the soup was a real find :D

I am in East London/Essex

Was someone asking about places to eat in London???

Here's a link to some restaurants

http://coeliac.info/suppboard/viewtopic.php?t=48


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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Hey Jo,

Hope your having fun with the diet!!

yea suppose so, trying to sound enthusiastic!! today at work a rep came and brought everybody lunch, she brought me a box of gluten free cakes which was very kind of her, but thats pretty much all you can get pre-prepared lunch wise from supermarkets, but i had my own stuff anyway so fine and just wolfed the box of cakes (such a pig!!)

Generally im following the diet to a T, other than the odd bit of malt extract, which i know i cant tolerate, but last night i thought stuff it and ate half box of those Lindt lindor chocolates containing malt extract and im suffering today, but hey self inflicted!!!

Managing fine really, im really quite lucky, my pharmacist is really kind and (quite naive!) and will order me any random gluten free stuff on prescription, plus i work in dietetics and literally sit next to a coeliac dietitian, so shes handy!! still sometimes get a bit peed off and feeling sorry for myself like when go to buffets and stuff and there is absolutely nothing i can have! but thats life, just accepting it i suppose, im quite pathetic really!! :)

How long have you been coeliac?? do you have any other intolerances, i dont (just work!!) :)

As far as work goes for me. I'm "Captain Healthy" :D. We've got a Onestop a few doors down from us and all my mates go in there for lunch and buy absolute CR*P. I have sandwiches, with salad, fruit bars and only ever drink water. Stopped eating chocolate 1 year ago maybe with the odd easter exception. ;) Might sound like even more of a freak here, but I actually like having a DISEASE because it restricts me from eating allot of rubbish.

I do allot of excercise, so eating rubbish ruins by fitness.

I've been a wierdo for 19 years and 11 months, diagnosed 1 year after birth. I took a year for them to find out what was wrong with me. I wouldn't stop losing weight. :(

No other intolerances though. Lucky me.

They where asking on a different post Nikki, the one called Boston/London.


Born 1988, almost died early 1989 due to weight loss, finally diagnosed just before my 1st b'day.

Perfecto now! It's easy when you know how!! :-D

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i dont even know what a Onestop is!!! take it its like a takeout cafe, but dodgey food?! :)

Wish i could contain myself and eat healthy, i mean i do try, im just a sugar addict with zero willpower!

Yea freaky but i know what you mean, the disease can be handy sometimes when you dont actually want to eat crap, particularly when people are shoving it in your face, its a good excuse to say no so you dont sound lke a total bore! god youve had it a lifetime and heres me moaning about 7 months, i really do need a slap!! just tell me to shut up! :)

Nikki, so if your hubby and son both coeliac, do you just eat the same as them, to make things easier?? very good of you if you do. I know if live with my boyfriend and he does not eat gluten free and it is a bit faffy always eating different, and i make his sandwichs for work and chuck his norml breadcrumbs all over the kitchen,etc. isnt too difficult i just wanna eat his food but sit and watch and drool instead!! :)

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Onestop is a small store - just a local shop, sometimes attached to a garage (gas station).

Hi all, I'm from the UK, Wales actually, but I know Southampton well Harri, - am 'ampshire born and bred and still have relatives down there, in Basset, Sholing, Eling, Marchwood, Hythe, Romsey and Totton. I lived in Totton for some years as a child then the New Forest before moving to London when I married in the 70's, back to Andover in '79, then to Wales in '04. Our daughter still lives in Andover, and our son in Petersfield.

There you are, my potted history.

It has taken me only 35 years to figure out what is going on and have been gluten-free 3 months but it is starting to work. I'm also following the diet for my Metabolic Type which has really got things going. It's good that they picked up on yours so early - funny isn't how it manifests so obviously in some yet not in others. One of my grandsons is being tested for it and I am pretty sure the other one is, if not Celiac, then at least very GI.

It is a huge problem - a lot bigger than most (except for us! :D) is aware of. Gluten (and carb) Intolerance is destroying swathes of the human race!


Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

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Hi Ali,

Just wondered how did you know you were intolerant to carbs/ sugar, dairy?? Must be very difficult and limiting for you, bu then if you feel much better obviously well worth it! I didnt realise you could be intolerant to carbs, i thought everybody needed them to function and have energy and stuff?? sorry im ignorant! :)

reading about your parents, sorry sounds like they really suffered, shame we didnt know more about these diseases then, Sorry about your mam, poor lady 10 miscarriages and 1 stillbirth, must have ben devastating for her.

Thanks for definition of onestop! i think i live out in the sticks, well its a world of its own, snows in the summer up here! :)

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Nikki, so if your hubby and son both coeliac, do you just eat the same as them, to make things easier?? very good of you if you do. I know if live with my boyfriend and he does not eat gluten free and it is a bit faffy always eating different, and i make his sandwichs for work and chuck his norml breadcrumbs all over the kitchen,etc. isnt too difficult i just wanna eat his food but sit and watch and drool instead!! :)

Hi Jo - yes, I am gluten-free also...... I feel healthier, IBS has lessened etc etc

Our main meal in the eve is always gluten-free....it's just easier

My other 2 non coeliac sons eat gluten, but we don't have much gluten in the house....they are not big bread eaters.

:)

NO take-aways in the house...but that's ok 'cos my hubby is an excellent cook!!!! :P


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Hi Ali,

Just wondered how did you know you were intolerant to carbs/ sugar, dairy?? Must be very difficult and limiting for you, bu then if you feel much better obviously well worth it! I didnt realise you could be intolerant to carbs, i thought everybody needed them to function and have energy and stuff?? sorry im ignorant! :)

reading about your parents, sorry sounds like they really suffered, shame we didnt know more about these diseases then, Sorry about your mam, poor lady 10 miscarriages and 1 stillbirth, must have ben devastating for her.

Thanks for definition of onestop! i think i live out in the sticks, well its a world of its own, snows in the summer up here! :)

Hi Jo. Can you get more in the sticks than Wales??? Where are you?

How did I know. Hmm. Well. I noticed some years back, probably 30-odd that if I didn't get enough protein every day I would end up with a headache.

When pregnant with my first child my weight soared and I never lost it again. About 25 years ago I went to an 'Alternative' practitioner who explained about my weight gain, and the hypos I regularly suffered with, and put me on a low-carb diet - long before it was 'fashionable'!

I did well on it, lost weight and gained energy so I knew it was right for me, but eventually it fell by the wayside and the old habits crept back in. So I carried on dragging the weight, and fatigue, and hypos, and latterly IBS and diabetes ( a sure sign I can't cope with carbs) around with me for the next 20-odd years.

About 10 years ago I did Atkins and that worked well for me too - you think I would have twigged by then, but no, back I went again - the lure of gluten was way too strong. But then I wasn't off it fully, not realising the gluten link at the time.

When my digestion finally collapsed in Jan, and the hospital could not find anything I had to do my own research - using the 'typical' stool type as a reference point, and up popped Celiac. I suddenly remembered that about 4 weeks before she died my Mum was put on a gluten-free diet in the Hospital and a light-bulb went on.

I had the test done (negative of course!) and immediately dropped gluten. I also dropped dairy as I have always been lactose intolerant with lots of mucous so that went too, then within a few days I realised that I was not coping with carbs in general so had to radically cut them which is what my body needed anyway, and sugar went as Candida has always been an issue for me and sugar feeds it.

It was a mixture of information, understanding and good old common sense!

Contrary to popular opinion not everyone needs much in the way of carbs. Some of us have metabolisms that don't cope with it. Metabolic 'Protein' types like the Inuit for instance, live almost exclusively on protein and fat. Veg and fruit does not grow in frozen ground! Other communities, like the Mayans, for instance, live almost exclusively on a vegetarian grain-based diet with very little protein, so their Metabolism is the complete opposite. Many fall somewhere in between as mixed metabolisers, but unless we know where we sit on the scale, we cannot tailor our diet to suit our body's needs.

Those who function well on carbs can glean energy from it. Those who can't, can't. Typically those who don't tolerate carbs very well may get a short initial spurt of energy but then slump after 20 - 30 minutes and become very sluggish.

It is extremely interesting and a concept I hadn't thought about before. I knew I needed protein and couldn't cope with carbs, but didn't know why. Now I do.


Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

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Hello everyone,

I'm just wondering if there's anyone else from England on this forum.

Ta ra!

Hi

Im from england to Bedfordshire, very new to this been gluten free for 1 week, have had a positive blood test, and awaiting biopsy result. Can you tell me more about that place in Botley as my son lives that way and could do with a plce to go for meals( dont trust his girlfriends cooking at the best of times but especially not now)

poppins

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*waves*

Helloooo all!!

I'm from Berkshire.

I only joined here today while looking up some info for a friend on another forumbut have been gluten-free for over 5 years now..so pretty clued up and used to it now..

Good to see you all here!

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Hi

Im from england to Bedfordshire, very new to this been gluten free for 1 week, have had a positive blood test, and awaiting biopsy result. Can you tell me more about that place in Botley as my son lives that way and could do with a plce to go for meals( dont trust his girlfriends cooking at the best of times but especially not now)

poppins

The Horse and Jockey - http://www.thehorseandjockeycurbridge.com/

The quality of the food isn't amazing but it makes a change to be able to eat 99% of the food they serve.

I never trust anyones cooking, peeps don't realise that gluten is not just in flour! Resturants are cool though, just ask to speak to the head chef and they'll gladly sort you out.

Hope the diet's going alright... get on the prescription program!!!! As much bread/biscuits/flour/pasta as you can eat for one small yearly fee!!! :D


Born 1988, almost died early 1989 due to weight loss, finally diagnosed just before my 1st b'day.

Perfecto now! It's easy when you know how!! :-D

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Hi Jo - yes, I am gluten-free also...... I feel healthier, IBS has lessened etc etc

Our main meal in the eve is always gluten-free....it's just easier

My other 2 non coeliac sons eat gluten, but we don't have much gluten in the house....they are not big bread eaters.

:)

NO take-aways in the house...but that's ok 'cos my hubby is an excellent cook!!!! :P

No take-aways! :o

You'll be suprised how much indian food is gluten free.

They tend not to use flour in their sauces. If unsure stick to the Pasanda or Kurma. Allways a sure bet B)


Born 1988, almost died early 1989 due to weight loss, finally diagnosed just before my 1st b'day.

Perfecto now! It's easy when you know how!! :-D

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Hello, I know a bit late in the day for my reply but havent been on in a while!

I'm originally from Swansea, Wales! Moved to Indiana though in January for university!

*waves*

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Hello everyone,

I'm just wondering if there's anyone else from England on this forum.

Ta ra!

[/quote

I'm not from England, but would like to know where to order foods and flours from in Europe to be shipped to Ukraine. Could you help me?

Thanks, Wynna

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