Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bone Pain And Stiffness


KimmyJ

Recommended Posts

KimmyJ Rookie

I'm very young to be asking a question about this, but I'm finding that I am having a lot of stiffness and, more recently, have developed some pain in the bones of my legs. I'm a little concerned about possibly a Calcium deficiency. The bone density scan is one that I have not had yet, but I was wondering if these could be symptoms of something other than osteoporosis. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

My pre-gluten-free constant every-bone pain and occasional bouts w/ "Stiff Man Syndrome" went away once I was 100% gluten-free.

Not while I was 98% gluten-free tho.

And it may have taken a few months 100% gluten-free.

Have you been gluten-free long?

missy'smom Collaborator

I used to have that in the large upper leg bone every month when I was menstuating. It's gone now that I'm gluten-free.

trents Grand Master

You really need to get the bone scan done and I would highly recommend you consider putting yourself on 1000 mg of Vitamin D3 daily. Bone density, once lost, can be very difficult to regain.

KimmyJ Rookie

Thanks - I am definitely working on stepping up my supplements. My father and I were talking last night about the vitamin D thing. I went to see a doctor finally last Friday, but he refused to run vitamin/mineral tests. I swear, men here just think they know better, and it's twice as bad when they're doctors. Really pisses me off because a man who has known me for five minutes can't possibly know better than me what I need. This is a seriously frustrating disease to get doctors to help you with! :angry:

RiceGuy Collaborator

The two supplements that helped me with pain, in muscles, nerves, and bones, are methylcobalamin (B12) and magnesium. The suggestion of vitamin D3 is a good one too. Just make sure it's D3 (cholecalciferol). There are really a lot of nutrients which have been proven to play an important role in bone health, but those are the main ones which come to mind.

trents Grand Master

I wish to make a correction on my earlier recommendation about vitamin D3 supplementation. Not 1000 mg but 1000 IU.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.