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Nan2N

Why Am I So Unbelievably Tired?

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I don't know why, but I keep getting more tired all the time. It's been a month gluten free and I'm pretty sure I'm not getting any cc, but I seem to be getting weaker. Some days it's hard to get out of bed at all. Anybody else get this way? I need to eat more but find I'm too tired to even think about it especially since it's so restrictive. The last thing I want to do is cook. My B12 is around 642 so I don't know if I should supplement with any more. Can having too much cause other problems? I need some energy. Feel like I'm wasting away trying to get well.

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I think that is normal. I was like that too. Find a good liquid vitamin and let your body get the rest it needs.

Do what you can and take a break. I got through my spring cleaning in one hour intervals. I was taking what ever

time I needed in between. It took me a bit longer than last year....but I got it done! You'll gradually start feeling better.


4/30/2008 Went Gluten Free

Gluten Sensitivity Gene Test

HLA-DQB1 Molecular analysis, Allele 1 0202

HLA-DQB1 Molecular analysis, Allele 2 0301

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7)

3/19/2009 11 Months Gluten Free:Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 21 Units (Normal Range <10 Units)

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I'm was actually JUST diagnosed with gluten intolerance, and i'm 3 days into the diet... and i feel SO burnt out...

Maybe the body has to readjust itself?

I'm too new to all of this so i have absolutely no idea... but i'll just continue trying to take it easy.. eat the right foods, take my multi-vitamins.... exercise etc..

Hopefully it passes though... it's a little disheartening when you feel worse than you did before the diet haha..

Makes you want to go back to your old ways! :)

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Ive only just been diagnosed and i feel the same way. I have less energy, more hunger and cant be bothered with preparing all my food!

It will pass im sure. Im scared about the wasting away too. Im only 103pounds, 5'8

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http://www.acu-cell.com/nico2.html

this site is interesting... talks about overdoses of vitamins... I didn't see anything on there about B12 causing fatigue but it does say high levels of B15 does... anyway maybe you should take a look at it

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Despite the fact that you blood test levels are showing fine your body may still not be able to utilize it. It can take a long time for the numbers in your blood to reflect this. Do not hesitate to get the sublingual B12, you do most likely need it and it will help with the fatigue. B12 is not a vitamin you can OD on, it is not toxic and also if you were taking any supplements with folic acid this will skew the numbers on the blood test also and give you a false high reading for the B12.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I can relate to the fatigue. I am 2 months gluten free and 1 month dairy free. I sleep 10 hours at night and 2 hrs every afternoon. I was never one to nap but I sure am now. I keep thinking that the body is cleansing. My diet is pretty darn healthy as I basically eat meat, vegs, fruit, eggs, brown rice and a few nuts.

I became very fatigued when I gave up dairy.

Anyway I have made getting well my full time job.


Brenda

Diagnosed with chronic fatigue, fibro, anemia, chronic constipation, low blood pressure, migraines, headaches, severe low sugar reactions and bipolar disorder. I was basically disabled.

March/08

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I don't know why, but I keep getting more tired all the time. It's been a month gluten free and I'm pretty sure I'm not getting any cc, but I seem to be getting weaker. Some days it's hard to get out of bed at all. Anybody else get this way? I need to eat more but find I'm too tired to even think about it especially since it's so restrictive. The last thing I want to do is cook. My B12 is around 642 so I don't know if I should supplement with any more. Can having too much cause other problems? I need some energy. Feel like I'm wasting away trying to get well.

Hi Nan2N,

I had similar symptoms and recently got my vitamin levels checked. Both my Serum Ferritin and my Vitamin D were extremely low. From what others say, that could cause severe fatigue.

Celiacs usually have not absorbed vitamins properly for quite some time before diagnosis. Can you ask your doctor to check your A, D, E, K, all B's, and full iron panel (possibly magnesium too)? It's quite possible your lacking something and it's causing the fatigue. If so, it's best to figure out what it is and treat the deficiency with high doses of supplements.

I'm beginning to think it should be standard procedure for a newly dx'd Celiac to get their vitamin levels checked and a bone scan to check for calcium/magnesium deficiences. The quicker these things are resolved the better we will feel.

Good luck to you, I know how lousy it feels to be fatigued all the time! :)


Joni

Dx'd with Celiac Disease 8/01/07

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Thanks everyone! I just got some test results back. I thought they were checking for vitamins but all I see is ferritin,folate and iron. My ferritin is low normal. I'd like to get it up but what should you do for that? I know taking too much iron can be bad for you and my iron is okay but lower end. I feel like I'm constantly running to the doctors for tests. Guess I'll need to get some more blood drawn! Although now I've been on vitamins for awhile and that may change the results. This is all such a pain!

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Thanks everyone! I just got some test results back. I thought they were checking for vitamins but all I see is ferritin,folate and iron. My ferritin is low normal. I'd like to get it up but what should you do for that? I know taking too much iron can be bad for you and my iron is okay but lower end. I feel like I'm constantly running to the doctors for tests. Guess I'll need to get some more blood drawn! Although now I've been on vitamins for awhile and that may change the results. This is all such a pain!

My ferriton was only 7, the lowest range on the chart was 12. My doctor told me to take a large amount of iron every day.

Didn't your doctor tell you what you should do about it? I would think if it's in the low/normal range they could give you some type of iron supplements for it, but I have no idea what amount. I would think that's something you shouldn't try to figure out on your own, since too much iron in your blood is a serious problem. You might want to call back the doctor and see what they suggest.

I know how you feel about running around for tests. I'm doing that right now - a lot. The good part about it is that you will start to get answers and be able to address any deficiencies or problems that might be creeping up.

Have you had a full thyroid panel done? That might be another test you could suggest.


Joni

Dx'd with Celiac Disease 8/01/07

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