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sorry all for the big wrtiting.. need new glasses.. ok here we go vent first then the lab test that was done. and please somebody tell me what it is..

THE LAB DID THE WRONG TEST. IT WENT TO MAYO CLINIC.. IT SHOULD OF GONE TO PROMETHEUS I JUST FOUND OUT!!!!!!! :angry:

OK HERE IS THE LISTING OF THE TESTS THAT WERE DONE INSTEAD OF THE DQ2 AND DQ8-- WHICH BY THE WAY WERE DONE AGAIN TODAY AND SENT TO PROMETHEUS..

1ST TEST

RETICULIN ANTIBODIES IgG Negative

--EXPECTED VALUES----

NEGATIVE

test performed by

MAYO CLINIC

ETC.

NEXT TESTS

HLA A,B, AND C ANTIGEN SEE TEST

TYPING

SEE COMMENTS

HI EXPEXCTED

TEST RESULT LO UNITS VALUES

HLA CLASS 1 MOL. PHENOTYP0E, B

A LOCUS 1.30

B LOCUS 8.13

C LOCUS 6.7

Bw 4.6

METHOD PCR

HLA typing defined by molecular techinques. Serologic

equivalentw of defined alleses are reported

This test is performed persuant to a lixense afreement with

Roche Molecular systems inc

Test performed by

mayo clinic etd..

:angry:


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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Those are not celiac gene tests, but the antireticulin test is sometimes done but the ttg and antigliadin tests and the EMA are the standard celic tests together with total IGA.

The person ordering the tests really screwed up in my opinion. Did they play darts on the lab sheet?

I happened to open a alink now to HLA class 1 type A B and C

http://www.ncbi.nlm.nih.gov/pubmed/17900288 but I do not know what it means beside checking the migration of the Han chinese.


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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Those are not celiac gene tests, but the antireticulin test is sometimes done but the ttg and antigliadin tests and the EMA are the standard celic tests together with total IGA.

The person ordering the tests really screwed up in my opinion. Did they play darts on the lab sheet?

I happened to open a alink now to HLA class 1 type A B and C

http://www.ncbi.nlm.nih.gov/pubmed/17900288 but I do not know what it means beside checking the migration of the Han chinese.

THANK YOU!!!!!!!!!!! Did those tests already. The dr wanted to do the HLA FOR DQ2 AND DQ8 will post when i get the results..

THANK YOU AGAIN

LYNN


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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The lab doesn't "do the wrong tests". The doctor gives exact orders for what he/she wants tested, and the lab just performs the tests the doctor ordered. I work in the lab, and we never "just decide" what tests we do. Just wanted to clear that up.


Lisa

"The world is a book and those who do not travel read only one page" -St. Augustine

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The lab doesn't "do the wrong tests". The doctor gives exact orders for what he/she wants tested, and the lab just performs the tests the doctor ordered. I work in the lab, and we never "just decide" what tests we do. Just wanted to clear that up.

There seem to be several HLA tests, and I commented on the HLA class 1 type 1 2 and 3 test done.

For celiac, we want the MHC class II DQ tests for the 9 DQ types.

http://en.wikipedia.org/wiki/HLA-DQ

See also wikis :

http://en.wikipedia.org/wiki/Major_histoco...ibility_complex

http://en.wikipedia.org/wiki/MHC_class_I

http://en.wikipedia.org/wiki/MHC_class_II

http://en.wikipedia.org/wiki/HLA-DQB1

I have seen lab reports in the files of patients. Sometimes doctors ordered ft3 for thyroid tests together with TSH, sometimes ft4, sometimes total t4. Looked like they did not know what they ordered.

Looks to me that the doctor just ordered some random HLA tests when he wanted HLA tests for DQ2 or 8.

Some lab sheets are quite confusing.


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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Here I found some more about callsI and class II.

http://en.wikipedia.org/wiki/Human_leukocyte_antigen


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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The lab doesn't "do the wrong tests". The doctor gives exact orders for what he/she wants tested, and the lab just performs the tests the doctor ordered. I work in the lab, and we never "just decide" what tests we do. Just wanted to clear that up.

No it just got sent to the wrong lab..it went to mayo instead of prometheus which does the dq2 8.. lol then prometheus did fax over the form and guess what? they ck'd off the wrong box.. the dr took 1 look at it crossed it off in thick black marker and circled the correct tests..

so we shall c what happens.. idk how long it takes..

thanks all for help..

lynie


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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There seem to be several HLA tests, and I commented on the HLA class 1 type 1 2 and 3 test done.

For celiac, we want the MHC class II DQ tests for the 9 DQ types.

http://en.wikipedia.org/wiki/HLA-DQ

See also wikis :

http://en.wikipedia.org/wiki/Major_histoco...ibility_complex

http://en.wikipedia.org/wiki/MHC_class_I

http://en.wikipedia.org/wiki/MHC_class_II

http://en.wikipedia.org/wiki/HLA-DQB1

I have seen lab reports in the files of patients. Sometimes doctors ordered ft3 for thyroid tests together with TSH, sometimes ft4, sometimes total t4. Looked like they did not know what they ordered.

Looks to me that the doctor just ordered some random HLA tests when he wanted HLA tests for DQ2 or 8.

Some lab sheets are quite confusing.

no what happened was it went to mayo clinic and they dont do it.. it should of gone to prometheus.. and then prometheus sent the dr the form and THEY marked the wrong tests down.. the dr crossed it off w/thinck magic marker and cirled the correct tests... thanks and sometimes its not the lab that draws the blood but the place that receives it..

thanks have wonderful holiday

lyhnnie


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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I feel relieved that your doctor does know which tests to order. Sounds like a good doctor.

Sounds like the Mayo clinic simply does not do celiac gene tesing, but only tissue typing for transplanting organs. That is what they use the other HLA tests for, or to look for other diseases.

Btw, have you read Dr. Lewey's recent articles on gene testing for celiac?

Some labs test both the alpha and beta chains of the gene, some test only for the beta chains, and if you read the wiki page they comment on the difference of serotyping, electropeheresis and the third test which the writer says is better.

http://thefooddoc.blogspot.com/2008/02/upd...ac-disease.html and a similar article at www.celiac.com

http://en.wikipedia.org/wiki/HLA-DQ

Note that some labs only test for DQ2 or 8, and you migend up needing the Enterolab test anyway.


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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I feel relieved that your doctor does know which tests to order. Sounds like a good doctor.

Sounds like the Mayo clinic simply does not do celiac gene tesing, but only tissue typing for transplanting organs. That is what they use the other HLA tests for, or to look for other diseases.

Btw, have you read Dr. Lewey's recent articles on gene testing for celiac?

Some labs test both the alpha and beta chains of the gene, some test only for the beta chains, and if you read the wiki page they comment on the difference of serotyping, electropeheresis and the third test which the writer says is better.

http://thefooddoc.blogspot.com/2008/02/upd...ac-disease.html and a similar article at www.celiac.com

http://en.wikipedia.org/wiki/HLA-DQ

Note that some labs only test for DQ2 or 8, and you migend up needing the Enterolab test anyway.

Hi Nora,

No I haven't read the article but now that you gave me the link i will not only read it but pass it on to my rock group as well.. Well the mayo clinic does some of the tests. I think it was the lab tech who sent it to the wrong lab, and the 2nd time the dr specifically wrote what test and the lab tech that was there I have known for a while.. The are the greatest at this hospital. I dont know how they do it but even if they dont remember your name they remember you on site.. Oh and thanks about the dr.. I never mentioned where I take my daughter.. I take her to Schneiders Childrens hospital on LI in NY.. I know other ppl who use them also.. In fact 1 person her dr there sent her to a another celiac specialist all the way down in Maryland.. Because her daughter was not getting better. Turned out more to the problem than expected. But is all cleared up now and she is doing better, btw my daughter has gained about 13.5 kilos since going on the diet and grown about if the conversion chart is correct or i did it correct she grew about 7 inches or 0.000177 km.. thats pretty good and she is heading into another growth spurt shortly.. she's getting pudgy again..lol

well once again thank you for your help..

talk soon

lynn


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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