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Emilysmomma

What About My Son?

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Should I be concerned about him, since my daughter was just diagnosed with Celiacs? The only sign he shows is he's skinny, and has a hard time gaining weight - other than that, he doesn't have bowel issues or stomach problems. He is 11 years old. I'm just wondering if we should all be tested for it. Our dinners will all be Gluton free because I don't want my daughter eating something different from us - I will make her pizza seperate from ours with gluton free crust from the store, and spaghetti, I will get the gluton free pasta.

I just started wondering if my son should be tested as well?


May 2007 - Emily went dairy free

April 2008 - took her back to pedi - she was getting worse

April 24, 2008 - first consult with Pedi gastro specialist

May 5, 2008 - doctor's office called with blood test results - Celiac levels highly elevated

June 9, 2008 - Emily's endoscopy

June 11, 2008 - doctor's office called with Emily's Celiac diagnoses, she has it

So now our new life begins, and hopefully that will be a happier, healthier life for her! I am glad I followed that little maternal instinct telling me something wasn't right!

Here's my little sweetheart:

http://img.photobucket.com/albums/v104/you...pictures018.jpg

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My daughter appears extremely healthy. Growing normally for her age. No major illnesses. No stomach problems or D (I have asked). Only 1 round of antibiotics in 12 years for an absessed tooth. Rarely gets a cold. Happy and healthy. So I am not testing her. But she knows that I have the genes. I told her that she doesnt need to be tested right now, but if she ever starts having health problems, it is the first thing she should check out. She accepts this. She is mostly gluten-free because my house is 100% gluten-free. Then now and again she gets gluten at a friends. No bad reactions.

If your son is old enough to understand, just talk to him. You can also casually ask him if he has tummy issues or D. At that age, he might not just tell you he has loose poop. That would be like.....sooooo embarrassing Mom. ;)


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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I think it would be prudent to test the whole family. My son was diagnosed with Celiac at age 10. He never had any GI symptoms. The reason I had him tested was that he was so short. His TTg bloodwork was positive, so we followed up and had an endoscopy, and that showed damage as well.

Now he has had negative bloodwork for 3 years, and it turns out the short stature was caused by something else.

So the point is, some people can have silent symptoms.

My husband, daughter, and myself all tested negative. But knowing that Celiac can develop at any stage of life, I would do future testing if any of us started showing symptoms.


Bev

Mom of Garrett - Mizzou freshman; diagnosed Jan 2005

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With his sister having celiac disease being too skinny should prompt you to have him tested also. Plus it is recommended that the whole family and all close relatives get tested anyway after somebody tests positive for celiac disease.

Being too skinny was the major symptom for two of my grandchildren, too. My daughter didn't have them tested, but put them on the gluten-free diet. They started to gain weight immediately, and other problems cleared up, too (like the emotional outbursts by my grandson).

Now those two will get diarrhea within half an hour after getting cross contamination (they didn't have D before they went gluten-free). They obviously have celiac disease.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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I totally agree on having everyone in the family tested. I am s celiac and I had my three children tested for a base line and to just make sure for my peace of mind. My middle daughter who is 8 is positive. She was the one I was least concerned about. She is happy, healthy and no tummy symptoms at all.....

Good luck,

Wendy

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In my opinion, yes I think your son should be tested, but either way try the gluten-free diet. I had all sorts of odd symptoms when I was little. Looking back, I can see that there were all sorts of things which should (but aren't) thought to be indicative of anything important.

Besides, being skinny and not gaining weight ARE common symptoms, and do indicate malabsorption. That means intestinal damage, of which Celiac is a likely cause.


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

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I would at least do the blood test. It's pretty harmless, and with his family history I think it's a good idea. If he tests negative, I wouldn't make him go gluten-free (aside from him eating the already gluten-free family dinners). I'd just monitor his health. A blood test now could also serve as a baseline. If he gets tested again in a year and his numbers have gone up but still aren't considered positive, you could assume he's reacting some to gluten.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Thank you for all your replies. I guess since my daughter was having the issues, I was more focused on dealing with her symptoms. But my son is so much like my BIL that has Celiacs when he was younger he was skinny just like Tyler, we'd joke that he could eat everything and not gain an ounce, Tyler is the same way. He's 11 1/2 and weighs 70, all of his friends weigh more than him. I am going to ask about getting him tested, at least the blood test, to see what it shows. I know, at 11, he won't be happy about it, he really likes his food!!! But, I want us all to be healthy. We are pretty sure it is my husband that is the carrier since there isn't any Celiacs on my side of the family.

Again, thank you for your replies, it just confirms what I already knew in my head, he should be tested!


May 2007 - Emily went dairy free

April 2008 - took her back to pedi - she was getting worse

April 24, 2008 - first consult with Pedi gastro specialist

May 5, 2008 - doctor's office called with blood test results - Celiac levels highly elevated

June 9, 2008 - Emily's endoscopy

June 11, 2008 - doctor's office called with Emily's Celiac diagnoses, she has it

So now our new life begins, and hopefully that will be a happier, healthier life for her! I am glad I followed that little maternal instinct telling me something wasn't right!

Here's my little sweetheart:

http://img.photobucket.com/albums/v104/you...pictures018.jpg

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