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strawberrygm

Scope Tomorrow

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my dd's scope is tomorrow

they are also doing a colonoscopy along with the endoscopy and biopsy.

what are they looking for with the scope and biopsy? what about the colonoscopy?

will she be sore after the colonoscopy? i havent told her she is having this, as i dont want her thinking about it and worrying.

also, i havent purchased a single gluten free bread, pasta, cracker, etc.

i should have been stocking up all along.

she was thrilled when we seen "gluten free" right on the vienna package the other day.


dd age 12 -- diagnosed celiac via 2 positive bloodtests april 08 & biopsy june 08

ds age 5 -- bloodwork negative aug 2008

ds age 3 -- not tested yet

ds infant -- not tested yet

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With both the endoscopy and colonoscopy, they are looking for whatever condition(s) may be causing her symptoms. Examples in the endoscopy can include hiatal hernia, reflux, ulcers, and all the way down to the villi damage that is indicative of celiac. My son, in addition to his severely damaged villi, was found to have several large polyps in his stomach. The Dr. said that they were probably caused by the constant irritation from the gluten, but took biopsies from them just in case (they were benign). The colonoscopy is not a test for celiac, but if you DD has been having lots of problems, they may want to do it since they have her out anyway, and to see if there is anything else to be concerned about (hemorrhoids, kinks in the intestines, etc.).

My son did not have a colonoscopy, but I did. I did not experience any pain, and I have no memory of the procedure. Are they having you do any prep for the colonoscopy? Any enemas or laxatives or anything? I know in adults that has to be done the day before, but I don't know if the prep is the same for kids.

As far as not having any bread and pasta in the house, you are going to be fine. You will find your favorites in time, and don't have to jump into replacing things right away. Do you have Trader Joe's near you? That's a great source for gluten-free food. What about an asian market? You can get all kinds of rice pasta there. If you don't have bread, you can use corn tortillas or lettuce leaves to make wraps.

Don't panic. Do one thing at a time. Get through the exams first, and then we can deal with the food part of things. If it helps you, my son came through his endoscopy with flying colors, and doesn't even remember it.


-Colleen

Dx 8/05 via bloodwork and biopsy (total villous atrophy)

13-year old son Dx 11/05 via bloodwork and biopsy

Daughters (16 and 5) have tested negative via bloodwork

A woman is like a tea bag - you never know how strong she is until she gets in hot water. - Eleanor Roosevelt

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i havent told her she is having this, as i dont want her thinking about it and worrying.

If she is 9 years old, and you are not telling her that this is coming up, you might be sowing the seeds of a very serious trust issue--if you are implying that tomorrow is going to be a normal day, and then she goes through hell, how will she ever be able to trust you again?

Please do tell her tonight, and tell her that it is not anything to worry about. Look up info online together with her so that she is prepared! For her to go to the hospital unprepared is going to be absolutely terrifying to her; it's actually less frightening to know in advance what will be happening.

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she knows she is having the endoscopy and the biopsy. i just have left out the colonoscopy part. afraid her anxiety will get the best of her a the thought of something going up "there".

but you are right, i do NOT ever want a trust issue with her.

no, we live in hickville, no trader joes, no whole foods, no asian market.

there is an amish store about 45 minutes away.

we will talk tonight.

thanks so much for your help and reassurance.


dd age 12 -- diagnosed celiac via 2 positive bloodtests april 08 & biopsy june 08

ds age 5 -- bloodwork negative aug 2008

ds age 3 -- not tested yet

ds infant -- not tested yet

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