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I have celiacs and my 5yo daughter has SEVERE skin issues. It seems that her skin is better gluten-free. PRIOR to making her gluten-free I had testing done on her. SHE WAS EATING GLUTEN FILLED diet at the time of testing. The tests are negative.

Does that mean she will NEVER have celiacs?

This is the results:

IgA <4 (negative 0-4)

IgG <9 (Negative 0-9)

(tTG) IgA <4 (negative 0-3, Weak Pos 4-10)

Tissue Translutaminase (tTG) IgG <6 (Negative 0-5, weak positive 6-9)

Endomysial Antibody IgA Negative (negative 27-195)

Immunoglobulin A, QN, Serum 135

Celiac Disease HLA DQ assoc.

DQ2 (DQA1 0501/0505, DQB1 02XXNegative

DQ8 (DQA1 03XX, DQB1 0302) Negative

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well,

although she doesn't have the main 2 genes for celiac, that can't 100% rule out that she can't get it. Some people get celiac without those two main genes.

Even without celiac, she could still be gluten intolerant.

HOw old is she? Is the Immunoglobulin A, QN, Serum 135 the total IgA level?


gluten . . . Kiss my grits!

pork and beef free- 1994

wheat free or wheat light- 2003

gluten free- January 2008

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I have celiacs and my 5yo daughter has SEVERE skin issues. It seems that her skin is better gluten-free. PRIOR to making her gluten-free I had testing done on her. SHE WAS EATING GLUTEN FILLED diet at the time of testing. The tests are negative.

Does that mean she will NEVER have celiacs?

This is the results:

IgA <4 (negative 0-4)

IgG <9 (Negative 0-9)

(tTG) IgA <4 (negative 0-3, Weak Pos 4-10)

Tissue Translutaminase (tTG) IgG <6 (Negative 0-5, weak positive 6-9)

Endomysial Antibody IgA Negative (negative 27-195)

Immunoglobulin A, QN, Serum 135

Celiac Disease HLA DQ assoc.

DQ2 (DQA1 0501/0505, DQB1 02XXNegative

DQ8 (DQA1 03XX, DQB1 0302) Negative

I'm new to this gluten problem and diet, but from the research I've done (and it's been a lot) but some people don't develop celiac until later in life or at least enough damage to notice it. I think it depends on each person. She may have the genes for them but perhaps it hasn't kicked in or done enough damage. But she also might have gluten intolerance, which is what I'm believe to have. That means you have the same systems but gluten doesn't do as much damage if at all as what it would do to a celiac. If you keep her on a gluten free diet, she will never develop celiac disease, even though she might have the genes for it. So if it's helping her skin (which I've had eczema since I was a baby) then keep her on it because from my perspective, even the skin rash was embarrassing for me and lowered my confidence a little bit because of my skin. I wish I could've gotten rid of mine earlier!

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hi, it seems to me that she is at the the closest one can come to being positive, and it looks like the tisssue test is positive. did she have the skin biopsy done, is that what the tissue sample is? i dont know with those results i would be carefull with her, what did the doc say?


Nadine

mom of 4 great kids - 2 diagnosed with autism and 2 typical kids (thank goodness)

all this started after my hysterectomy in March of 2006

G.F. since Feb 2007

Soy free since April 2007

Blood work was negatvie (after 2 weeks of being on the gluten-free diet)

entrolab results:

Antigliadin 9 (normal <10)

HLA-DQB1 Allele 1 - 0302

HLA-DQB2 Allele 2 - 0502

HLA-DQ 3,1 (subtype 8,5)

carrying one celiac gene and one gluten intolerant gene

nurse at entrolab figures i caught this early and dont eat gluten anymore

life is like a box of chocolates;sometimes you get stuck with the yukky coconut fillet one

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Thanks for the responses....

I am worried that her skin will cause her embarresment soon. That is why I am forcing the gluten-free for now. However, the doctor says her testes are negative so with the expense, and disappointment on her cute little face.....You get the idea.

It is so easy to talk yourself in and out of whether the diet is helping her. We have a pool...is it the chlorine???? She snuck Cookie Crisp BUT she swam the same day....Is it eczema or DH? One doctor says eczema one says DH.

No she did not have the DH biopsied. Tissue Transglutaminase (tTG) was one of the tests on the Lab paper....I thought it seemed like a Weak Positive too!

We are going to continue on the gluten-free diet and see what comes of it.

Shannon

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Thanks for the responses....

I am worried that her skin will cause her embarresment soon. That is why I am forcing the gluten-free for now. However, the doctor says her testes are negative so with the expense, and disappointment on her cute little face.....You get the idea.

It is so easy to talk yourself in and out of whether the diet is helping her. We have a pool...is it the chlorine???? She snuck Cookie Crisp BUT she swam the same day....Is it eczema or DH? One doctor says eczema one says DH.

No she did not have the DH biopsied. Tissue Transglutaminase (tTG) was one of the tests on the Lab paper....I thought it seemed like a Weak Positive too!

We are going to continue on the gluten-free diet and see what comes of it.

Shannon

With 21 years of experience with eczema...chlorine is our enemy...so that could be a possible reason too...but also with 21 years of experience, being gluten free has cleared it up pretty good!

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Tissue transglutaminase means just Ttg test, which is the newest test. They did not test any tissue, it is just thename of the test.

The < and the number just means it was below 6 and negative, it does not mean it was 6 or 5, just below 6 and therefore negative.

often we see here that those without the main genes for celiac have negative tests, but that does not rule out gluten sensitivity. Just read people's signatures and there are several with other genes that were very ill from gluten and finally got much better off gluten, often after many years of misdiagnosis.

The esiest way to explain to people it is to say they are gluten-sensitive. (very gluten-sensitive)


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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