Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positve Yet Inconclusive?

peetred

Recommended Posts

peetred Rookie
peetred
Posted

My doc ran the first bit of celiac testing for antibodies on my 2 year old son...

one of the antibodies came back elevated but the lab tells my doc that it is inconclusive (because the other three were normal). So, my doc admits he is confused about he results. He ran another full celiac panel and the nurse called this morning and told my husband that it was negative. I have heard a lot on here that the tests are not really reliable for children his age.

So, I am very confused. My son has gastrointeritus right now, but the doc told us to keep a food diary especially when he's feeling better. We have been doing lactose free for 2 weeks with no improvement (i think it's worse) in his bowel movements. I am just ready to try gluten-free to see what happens. What do you all think? At least then, I could take in the food diary and show the doc whether he was improving or not. <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Celiac testing is notoriously unreliable in children under six (and not a whole lot more reliable after that). There is no way that a doctor should say that it can't be celiac disease because the blood test was negative.

At your son's age trying the gluten-free diet is the ONLY reliable test for celiac disease. So, my advice is to start the gluten-free diet immediately. The food diary is an excellent idea, as it will help you determine if the diet is working or not, plus it will be good evidence to show your doctor if your son shows improvement on the diet.

mom2lucas Rookie
mom2lucas
Posted
My doc ran the first bit of celiac testing for antibodies on my 2 year old son...

one of the antibodies came back elevated but the lab tells my doc that it is inconclusive (because the other three were normal). So, my doc admits he is confused about he results. He ran another full celiac panel and the nurse called this morning and told my husband that it was negative. I have heard a lot on here that the tests are not really reliable for children his age.

So, I am very confused. My son has gastrointeritus right now, but the doc told us to keep a food diary especially when he's feeling better. We have been doing lactose free for 2 weeks with no improvement (i think it's worse) in his bowel movements. I am just ready to try gluten-free to see what happens. What do you all think? At least then, I could take in the food diary and show the doc whether he was improving or not. <_<

Hi! My son is 2 years old as well. When he first started having his sintoms (huge belly, throwing up all the time) it took awhile before we convinced his doctor to ran the celiac panel on him, but when he did, with the exception of the Igg, everything else came back negative, so she dismissed him as not being celiac. But I took him to a Gastro Pedi and it only took her a second to look at him, and say he was very probably a celiac, and did the biopsy which came back positive. So, yes, blood tests are highly unreliable.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748
    Sally Garber
    Newest Member
    Sally Garber
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.