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IMWalt

Gluttened, Not Sure If It Was Worth It

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I flew to NYC yesterday for a meeting, and had a few hours to kill before my flight home. So I met my brother up in Harlem at a place called Sylvia's. I guess it is Bill Clinton's favorite place to eat. I decided to see what would happen if I ate the corn bread, and then I had banana bread pudding for dessert, which contained vanilla wafers. About an hour after eating, my lips and tongue started tingling, then a few hours later the gas and rumbling started, which continues today. This morning included a runny BM.

I guess I should have stuck with the Salmon, collards and candied sweet potatoes. The meal was fabulous, and I guess I better start listening to my wife and admit that I have a problem with gluten. She says I am in denial. I have tried eating it 5 times now since going gluten-free, anf each time the results are the same. I keep hoping it is coincidence B)

Walt


Daughter diagnosed via positve blood work 09/2005 - she had negative biopsy

Sister Dx via bloodwork

Nephew has daughter with celiac disease Dx'd at age 6 months

Me - negative blood and biopsy, but HUGE dietary response. No question in my mind.

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...I guess I better start listening to my wife...

If not her, listen to your body. It's trying to tell you something.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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IMO no food is worth eating if it makes me sick. Based on your description gluten makes you sick. Your choice is to eat gluten and get sick or stay gluten free healthy. Listen to your wife and your body.


Phyllis

Gluten Free - 30 years

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Yup .... .listen to Peter, Phyllis, your wife & your body. :D


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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Well you have challenged 5 times with the same result. Do you believe you body yet? It is not just the immediate reactions that should encourage you to remain gluten-free but also the possible fatal 'side effects' that may not be as obvious. I am sure you want to be around as long as you can be, don't let gluten take you away from your family. Some of us take a while to get our minds around the idea that the gluten free diet is something that we just can't safely play with no matter how tempting, your not alone in that respect. I hope you have firmly decided it really is just not worth the risk.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Well you have challenged 5 times with the same result. Do you believe you body yet? I hope you have firmly decided it really is just not worth the risk.

I know I am being foolish. It is just one of those things that is not easy to fully accept. The first few times I kept thinking "maybe it was the salad I had with dinner, or maybe it was the green beans, etc" I am getting there.

Thanks for caring

Walt


Daughter diagnosed via positve blood work 09/2005 - she had negative biopsy

Sister Dx via bloodwork

Nephew has daughter with celiac disease Dx'd at age 6 months

Me - negative blood and biopsy, but HUGE dietary response. No question in my mind.

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Wow, you're lucky. Last time I accidentally ingested a large amount of gluten a couple months ago I was violently ill; we're talking projectile vomiting and intense stomach pain here. And my "large" dose was nothing compared to what you ate. I've been eating gluten free for over 18 months. It doesn't take much gluten now to make me sick as a dog.

So maybe the question is how sick will gluten have to make you to convince you that you can't safely eat it? If you're not convinced yet, give it a few more months and try that experiment again :D Soone or later if you keep at it maybe you'll get to the point where your body convinces you.

I flew to NYC yesterday for a meeting, and had a few hours to kill before my flight home. So I met my brother up in Harlem at a place called Sylvia's. I guess it is Bill Clinton's favorite place to eat. I decided to see what would happen if I ate the corn bread, and then I had banana bread pudding for dessert, which contained vanilla wafers. About an hour after eating, my lips and tongue started tingling, then a few hours later the gas and rumbling started, which continues today. This morning included a runny BM.

I guess I should have stuck with the Salmon, collards and candied sweet potatoes. The meal was fabulous, and I guess I better start listening to my wife and admit that I have a problem with gluten. She says I am in denial. I have tried eating it 5 times now since going gluten-free, anf each time the results are the same. I keep hoping it is coincidence B)

Walt


"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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I flew to NYC yesterday for a meeting, and had a few hours to kill before my flight home. So I met my brother up in Harlem at a place called Sylvia's. I guess it is Bill Clinton's favorite place to eat. I decided to see what would happen if I ate the corn bread, and then I had banana bread pudding for dessert, which contained vanilla wafers. About an hour after eating, my lips and tongue started tingling, then a few hours later the gas and rumbling started, which continues today. This morning included a runny BM.

I guess I should have stuck with the Salmon, collards and candied sweet potatoes. The meal was fabulous, and I guess I better start listening to my wife and admit that I have a problem with gluten. She says I am in denial. I have tried eating it 5 times now since going gluten-free, anf each time the results are the same. I keep hoping it is coincidence B)

Walt

You should have asked for Sylvia's gluten-free Menu!

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You should have asked for Sylvia's gluten-free Menu!

Sylvia's has a gluten-free menu? Wooooohoooo! Thanks for that info. I'll be back there soon, I hope.

Walt


Daughter diagnosed via positve blood work 09/2005 - she had negative biopsy

Sister Dx via bloodwork

Nephew has daughter with celiac disease Dx'd at age 6 months

Me - negative blood and biopsy, but HUGE dietary response. No question in my mind.

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