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strawberrygm

Too Soon To Know?

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my dd has just been diagnosed.

my youngest child has been getting bumps, mainly on his face but some on his shoulders and upper arms, chest and neck.

he is eating more and more table food as he is getting older.

the bumps used to not be there at all.

they dont seem to itch or bother him.

they seem to be under the skin, if that makes sense.

he also has the yellowish nasty poops (not all the time, but sometimes)

i am going on a search for gluten free foods for my dd today, so i will also be looking for baby foods and trying him on it as well to see if it makes a difference.

what do you think?


dd age 12 -- diagnosed celiac via 2 positive bloodtests april 08 & biopsy june 08

ds age 5 -- bloodwork negative aug 2008

ds age 3 -- not tested yet

ds infant -- not tested yet

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It's not too early. My 7-year-old and I were both diagnosed in the same week in early 2007. At the time, I was nursing a 9-month-old who had serious skin rashes and food reactions that did not test out as "allergies." He had vomited cereals, so I wasn't feeding him cereals, but he was still getting gluten through nursing. When I was diagnosed and went on a gluten-free diet, his skin cleared up. DH does not clear overnight...I started to see a change in the appearance of his rash within a few days, but it took 3 or 4 weeks for it to go away.

We did have him blood tested for Celiac--he was negative, but that's not unusual in an infant. The important thing was the positive dietary response.

Oh, and we have 3 boys - oldest was frankly Celiac (all blood tests positive). Our middle son, 3 years old at the time, did not have the blood antibodies but has the DQ2 gene and had been losing weight....that cleared up off gluten. Three gluten intolerant boys initially seemed preposterous to us--we had seen stats that said more like 1 in 10 or 1 in 20 family members would be affected. BUT...the mystery cleared up months later when we discovered that my husband also had Celiac too, too. (He had decades of GI problems but didn't make the gluten connection until we went gluten-free at home and he started noticing his symptoms away from home.) So, Celiac/DH mom + Celiac dad = a bunch of gluten-intolerant kids. We all now happily eat gluten-free together.

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Also...the appearance of DH can vary a bit from person to person, child to adult. My own DH rash is the typical elbow rash...but my infant's rash was on his outer cheekbones, above his tailbone, etc. He did get also a few spots in the center of his chest, too. There is something about DH and pressure points--and if you think about it, an infant's pressure points are different.

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my dd has just been diagnosed.

my youngest child has been getting bumps, mainly on his face but some on his shoulders and upper arms, chest and neck.

he is eating more and more table food as he is getting older.

the bumps used to not be there at all.

they dont seem to itch or bother him.

they seem to be under the skin, if that makes sense.

he also has the yellowish nasty poops (not all the time, but sometimes)

i am going on a search for gluten free foods for my dd today, so i will also be looking for baby foods and trying him on it as well to see if it makes a difference.

what do you think?

I think you are a very wise Mom. You may want to consider making the house gluten free. There is a strong chance that the rest of the family will benefit as well.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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