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kschauer

Do You Cheat?

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Since my diagnosis I have not knowingly eaten anything containing gluten.

Lately I have been dreaming about pizza and donuts and pasta and bread and I'm going out of my mind. My mouth literally waters when I think about a bite of pizza.

My husband said to me yesterday, if I were you, I'd probably cheat all the time. I wonder if people do. <_<


Gluten free since October 2007

Houston, TX

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NEVER I get sick enough from just a microgram of CC and my gluten challenge that my GI ordered almost killed me. No way, no how, not for all the money in the world. :)


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You know, there is gluten-free pizza, donuts and pasta that are really good. It is harder to find good bread, but the selection gets better all the time.

You can buy frozen gluten-free pizza crust, or make your own. Kinnikinnik makes very nice donuts, and rice pasta is just as good as regular pasta. There are many brands, and you have to try them to know which one you prefer.

So, no need to go nuts thinking about those things, go ahead and indulge! Just make sure it is gluten-free, it won't pay to cheat.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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TWO words for ya Sweetheart...

HELL NO :lol:


Collette

Positive Bloodwork Oct 1st 2007. Gluten-free 3 YEARS Oct 1st!

Dairy & Soy free since Dec 1st 2007.

Potato free since January 3rd 2008.

Remaining Nightshades since April 1st 2008. Back on September 2010. :)

Developed Rice & Tapioca & Corn Intolerances...

NO Carageenan.

In a constant state of evolution... sending love! :)

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Since my diagnosis I have not knowingly eaten anything containing gluten.

Lately I have been dreaming about pizza and donuts and pasta and bread and I'm going out of my mind. My mouth literally waters when I think about a bite of pizza.

My husband said to me yesterday, if I were you, I'd probably cheat all the time. I wonder if people do. <_<

Some people do cheat. However most suffer as a result. For me certainly its not worth the ill health that inevitably ensues not to mention D, achey eyes, migraines, body aches, depression, mental confusion etc. For others they get a skin condition like my mother (DH). If you cheat a lot (whether you react in an obvious way or not) it sets you up for getting a variety of degenerative diseases like glaucoma, cancer or heart or kidney disease or some other auto immune disease like RA or lupus etc.

There are by the way gluten free alternatives. If you can eat cheese, make your own pizza. Plenty of recipes on line. Or get prepackaged mix for the dough. Ditto with cookies, cakes and breads. One alters one's tastebuds and comes up with new things to enjoy. For myself I avoid sugar as well as gluten due to candida overgrowth, but find baking "sweets" using stevia and a little applesauce or crushed banana is a great alternative.


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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Never


Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008

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I honestly dont miss all of that stuff. I am lucky.

I dont cheat.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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I miss it, but I don't cheat. Mainly because I don't want to deal with the physical ramifications of eating (like getting sick to my stomach). That's totally not worth it lol. I am sure it would be more tempting for someone with gluten intolerance who doesn't show any outward symptoms really. I do think about gluten foods sometimes, though. I don't think I can go within 50 feet of Panera Bread anymore. Though I wouldn't cheat, I would feel depressed.

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Never. Not worth it.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Never. Not worth it.

What she said!


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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The worst thing you can do is cheat and occasionally ingest gluten, even a trace. I don't remember where I found this paragraph, but it clearly explains why you should never, never, never cheat: "The gluten-free diet must be carefully and continuously followed. When untreated, the disease can cause life-threatening complications. A delayed diagnosis or non-compliance with the diet places the patient at risk for developing associated conditions such as infertility, miscarriage, osteoporosis, fractures, certain types of intestinal cancer, lymphoma, or other autoimmune disorders. Continued consumption of gluten increases the chance of gastrointestinal cancer by a factor or 40 to 100 times that of the normal population." You must get on a 100% gluten-free diet and remain on it for the rest of your life.

Eating out is probably the riskiest thing a celiac can do. Restaurants, delis at food markets, homes of family and friends, school cafeterias, snack days at work, etc., are all good sources of gluten. You have to ask a lot of questions and even try to read product labels, if they're available. There's a joke that illustrates the point: At a dinner party, do you know how to tell who the celiac is? It's the person in the kitchen digging through the trash to read labels.

Cross contamination is also a concern. Utensils, pots and pans, cooking surfaces, etc., may harbor crumbs or other traces of gluten. For example, you need a separate toaster that is dedicated only to gluten-free. If you dip a knife into peanut butter or jelly and spread it on bread, the knife is contaminated and must not be placed back into the jar. A fork used to stir wheat-based spaghetti must not be placed in a pot containing gluten-free spaghetti (by the way, Tinkyada brand rice pastas are the closest in flavor and texture to wheat-based pastas).

Glutino brand frozen pizzas are very good, esp if you add your own toppings. I don't know where you live, but in the Kansas City area, there are at least three restaurants that make gluten-free pizza. Kinnikinnick makes the best bread, bagels, English muffins, hamburger and hotdog buns (all in the freezer section). They are enhanced if you toast them before adding toppings or meat. After you have cooked meat in a skillet, toast the bread or bun in the skillet--it soaks up the grease flavoring. Kinnikinnick Bread and Bun mix makes very good dinner rolls, etc.

On Amazon, you can order "Gluten-Free Baking Classics" by Annalise Roberts--she has the best recipes I've found for pizza dough, cakes, etc. Her lemon cake is so good my non-celiac granddaughter requests it for her birthday. If you don't tell, no one will know it's gluten-free.

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Since my diagnosis I have not knowingly eaten anything containing gluten.

Lately I have been dreaming about pizza and donuts and pasta and bread and I'm going out of my mind. My mouth literally waters when I think about a bite of pizza.

My husband said to me yesterday, if I were you, I'd probably cheat all the time. I wonder if people do. <_<

I would never cheat on purpose. Why cause yourself pain? If you're still having that craving about gluten free pizza I've got the recipe for you! Have you heard of Tom Sawyer's Flour....it's amazing and they have a gluten-free pizza crust recipe on their website. It completely satisfied my craving and I fooled my non gluten-free friends! The thing I always crave is cheese its, and I've tried making a gluten-free version but it's just not the same.


Sacramento, CA

Rheumatoid Arthritis since 1986

Gluten Free since 2005

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Heck, no. I am so happy to be gluten-free. If I am accidentally glutened, even a trace, I experience insomnia. The prospect of losing half a night's sleep is plenty of incentive to be very, very careful.


Gluten free 3/07 self diagnosed

Specific Carbohydrate Diet 4/08--yes, it works.

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I cheated in the beginning. I had a hard time giving up gluten. I had stomach issues all my life as a child, teen and adult. I had no idea what was causing it. The dr's would tell me things to try/avoid but nothing helped. Since childhood I would eat stuff not understanding why I felt sick afterwards and would be curled up in bed pretty much crying from the pain and having to run to the bathroom.

When I went on the gluten free diet it was during my works busy season and I had a hard time figuring foods out and dealing with it and I was working from 8am to anywhere from 6pm-10pm (in-laws business)....I tried to stay away from gluten but when you have no time to cook ahead, that day or figure out what you can eat it was hard. I would eat gluten one day and not for a couple of days (would eat salads, safe things).

What made matters worse was one of the gluten free books I have mentioned you can treat yourself once in a while so I would be gluten free all week or two weeks then on Friday I would get pizza and "treat" myself ha big mistake there.

One day though it hit me that I had to stop doing what I was doing and now that I knew what the problem was after all the years of feeling like crap, I had to change. I have been completely gluten free for 5 months. I have NOT cheated in 5 months and do not plan on cheating ever again. I feel so much better. I know what I was doing was wrong and terrible for myself.

My question to everyone is -- Not counting "now" do you cheat.. BUT thinking back to the beginning did you cheat?

I can say "no I do not cheat now" but if you were to ask me did I cheat in the beginning I would say "yes".

Did you cheat in the beginning while you were trying to be gluten free and learning about it etc (I am not meaning by accident but on purpose)??


Rebecca

Partial Gluten Free March 2007

Completely Gluten Free February 2008

Tapioca Starch/Flour Free April 2008

No MSG July 2008

Cut out Nitrates//Nitrites January 2009

Problems with Tomatoes and Potatoes -- Cut out Nightshades Aug '09

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[quote name='GlutenGalAZ' date='Jul 7 2008, cheat?

I can say "no I do not cheat now" but if you were to ask me did I cheat in the beginning I would say "yes".

Did you cheat in the beginning while you were trying to be gluten free and learning about it etc (I am not meaning by accident but on purpose)??


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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There is no amount of money that could make me want to cheat and consume gluten.. I have had 2 accidental cross contaminations ( thanks to family members) that were absolutely horrible <_<. So if that is the reaction i get from a bread crumb in a spread, there is no way i would deliberately eat gluten.....

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I have enough problems with the accidental glutenings that there is nothing that makes me want to cheat. Seriously. I feel bad enough to want to take a handful of Vicodin and call it a day. I can't imagine willingly putting myself through it for a few minutes' pleasure.


Goal Checklist:

100% Gluten Free Home [x]

Endoscopy [ ]

Entero Labs Gene Test [ ]

Weight Gain (current: 105lbs.) [ ]

Husband's Support [x]

Learn to Cook [x]

First House [ ]

Pregnancy [ ]

Unhealthy for 25 years. Always too skinny, always "diagnosed" by a hypochondriac mother. Pre-diagnosed by a walk-in clinic doctor April 2008 despite a negative blood-test. "Gluten-free" since then -- barring, of course, all the learning curve accidents I'm still suffering! Official diagnosis still pending.

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I was gluten-free for 2 years, then I slowly started to cheat, didn't feel anything. No pains...no D...nada. But after 2-3 years of being off of the gluten-free diet, I noticed even though I was working out a lot and losing weight but I looked pregnant. I was also having the "gluten brain farts" and studdered so much, more often than not. I've been gluten-free for about 2 weeks and my pregnant belly is going away and my "brain farts" and studdering are less apparent. If I had a cross contamination, I probably wouldn't feel anything...but I can't go down the street to the pizza place and have a slice of pizza anymore. Definately not worth it anymore now that I'm feeling and looking better (well except for this stupid sumburn - but i digress).


Jami

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I gave up gluten the day of my diagnosis and have never looked back (3 years next month). I never want to return to feeling like that again. No gluten cookie or slice of pizza is worth it, especially since I can make something as good or better myself. I don't really miss the food all that much, but occasionally get bummed out that I have to do so much planning now about what and where to eat.


-Colleen

Dx 8/05 via bloodwork and biopsy (total villous atrophy)

13-year old son Dx 11/05 via bloodwork and biopsy

Daughters (16 and 5) have tested negative via bloodwork

A woman is like a tea bag - you never know how strong she is until she gets in hot water. - Eleanor Roosevelt

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I gave up gluten the day of my diagnosis and have never looked back (3 years next month). I never want to return to feeling like that again. No gluten cookie or slice of pizza is worth it, especially since I can make something as good or better myself. I don't really miss the food all that much, but occasionally get bummed out that I have to do so much planning now about what and where to eat.

That's what gets me -- the planning. I have to continually reassure my friends that it's okay they don't have anything gluten-free for me, and that I can bring my own, but it definitely gets hard to work around. It just gets easier to stay at home, which is bonkers on my social life. ^^;


Goal Checklist:

100% Gluten Free Home [x]

Endoscopy [ ]

Entero Labs Gene Test [ ]

Weight Gain (current: 105lbs.) [ ]

Husband's Support [x]

Learn to Cook [x]

First House [ ]

Pregnancy [ ]

Unhealthy for 25 years. Always too skinny, always "diagnosed" by a hypochondriac mother. Pre-diagnosed by a walk-in clinic doctor April 2008 despite a negative blood-test. "Gluten-free" since then -- barring, of course, all the learning curve accidents I'm still suffering! Official diagnosis still pending.

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Umm, no. I do not cheat. I like my current life of being able to get out of bed and do whatever I want. No amount of gluten could possibly taste good enough for me to give that up.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Nope, only been gluten-free for 2 months, but oh what a change in those 2 months. I didnt realize how bad I really felt til I started to feel good, if that makes any sense.

I didn't realize I had the brain fog and the exhaustion. I just thought I was tired from work and looking after 2 teenage boys! The D was bad and I sure do NOT miss that. But nope, while I do miss some foods on occassion, there is nothing worth going back to the way I was before.


Sue

positive Biopsy diagnosis May 2008

allergic to strawberries and grapes

Mom to peanut allergy kid.

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Nope, even thought it is tempting.....even after a few years I still have the temptations, heck I am human. I do have lots of good gluten free alternatives which I enjoy.

Besides overall, I would not want to deal with the whole GI symptoms that come with cheating, those are never fun and it would render me to staying home and spending my day near the bathroom.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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I am currently living in Chile, so the good subsitutes are a little harder to come by. I do buy flours and things online and have my mother ship them down here. I just get so frustrated at the change in everyday life. So much planning ahead, so much preparation for everything I can eat, never being able to pick up a pizza or eat anything a party. I do want to cheat, but the thought of increasing my risk of cancer is too much for me.

And although I know I feel so much better than I did, I still don't feel great. I still cannot concentrate to save my life. I recently had my bloodwork done and everything is in the normal ranges, including iron, and no accidental glutening showed up. But I'm falling asleep at my desk, I feel anxious and I have no energy. I don't want to do anything. If I'm going to feel like crap anyway, I'd love to eat BREAD!!

I'm not going to, but some days I would love to.


Gluten free since October 2007

Houston, TX

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I cheated once when I first went gluten-free because my stomach was alreay messed up from antibiotics. So anyway, I will not EVER cheat again, at least on purpose. Never ever again, it is so not worth it. Now if I crave something I just make it. I went and bought all sorts of flours, everything I need to bake. Freeze stuff so I can have it later etc.


Gluten Free going on 5 years and counting!

gluten-free is a life change and not a diet.

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