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Jipps

Family Members With Celiac?

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Hi everyone!

I just found this forum and I must say it has lots of good information!

I was just wondering, if you have other family members with celiac disease or if you're the only one in your family?

I myself am the only one in the family and that's quite hard sometimes, but I'll manage. :P

What about you guys? Do you have other family members with celiac disease?

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I am gluten intolerante (undiagnosed) figured after years (about 15yrs+) of the dr's not figuring out what the problem was and once I tried being gluten free it didn't matter anymore b/c I feel soooo much better now than when I was growing up etc.

I believe my dad is gluten intol. as well as one of my three brothers. My Dad claims he is not, but has made comments that when they move to AZ that he wants to eat better next year. One of my brothers I have talked to about eating gluten free b/c I know he has the same type of stomach problems my dad and I have but he cannot afford it right now but he does change out what he can i.e. spaghetti sauc and has noticed a difference.

From what I understand some families you can be the only one with the gene and other families have it where the gene is there but just not where you have the reaction.

GOOD LUCK with everything :)


Rebecca

Partial Gluten Free March 2007

Completely Gluten Free February 2008

Tapioca Starch/Flour Free April 2008

No MSG July 2008

Cut out Nitrates//Nitrites January 2009

Problems with Tomatoes and Potatoes -- Cut out Nightshades Aug '09

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Welcome to the forum!! Nope, I am not alone, my sister has been gluten free for 8 yrs too, and our dad will be gluten free for 4 yrs in Nov. We consider this a family trait now! ;)


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I was the first diagnosed in my family at age 48... altho I'm fairly certain my older sister and brother may have it. Sis suffers terribly w/ weeping eczema and food allergies galore, altho her doc blood tested and it was negative and my brother gets eczema on his hands that he finds to be much better if he even cuts back on wheat.

My middle daughter (of 3 daughters) was diagnosed several years ago. She was also the lucky recipient of bipolar disorder from my exhusband's side of the family.


luvs2eat

Living in the beautiful Ozark mountains in Arkansas

positive blood tests and later, positive biopsy

diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day

Dairy free since July 2010 and NOT happy about it!!

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I was diagnosed at age 13 a few years later my great grandmother(dad's side) was diagnosed at age 83. My

grandmother (dad's mom) had chronic stomach problems her whole life and got colon cancer. My dad refuses to

believe there is a problem even though we fought over the bathroom until I went gluten free. My sister also is in

denial along with her 2 kids. My mom self diagnosed herself a year and a half ago at the age of 62. She feels 200%

better since going gluten free. Mom's grandfather died of colon cancer. So yes it does run in the family.

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My cousin was diagnosed at age 6, Aunt was self diagnosed at 40, GMa was diagnosed in her 70s, and I was diagnosed when I was 21. This is all on my fathers side, he has diabetes and refuses to get tested fro celiac....he thinks that this is a load of crock. Needless to say, I have to now do my own cooking at my parents house now.


Jami

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My little sister was diagnosed at a year old with Celiac Disease. I am self diagnosed. My little sister visited my mother in Florida a few months ago and notice that Mom's gas smelled like celiac. My mother has suffered from very itcy rashes for a couple of years now and also has osteoarthritis. I remember my father being on the toilet immediately after dinner every night and wonder about him too. It does run in families that is for sure.

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In order of age, a grandmother finally dx'd in her 90s, an uncle w/ DH, mom gluten-free w/out dx, a cousin who was very sick before gluten-free, sister went wheat-free in the 70s but is now somehow in denial?, I was dx'd as a toddler in the 60s when Dr.s thought ppl "grow out of it", 1 niece (so far) dx'd a couple yrs ago at age 8.

Recently, mom ran across an OLD obit of my great-great grandmother.

In 1895, at the age of 42,

" Mrs. Mary xxxxx passed away at her home at 713 Chippewa Street yesterday afternoon from inflammation of the bowels after an illness of ten days."

I'm guessing she may have had problems for longer than 10 days. ;)


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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I have been actually diagnosed w/ celiac, but my mom hasn't and she went gluten free with me because it was easy. she is now comletely gluten free and feels much better. also-my aunt had the same kind of thing, so she's always looking for good gluten free foods

becca

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My mother, father, brother and myself are all celiacs. It's funny because when we were being tested, it was my mom first, and then a month or two later the rest of us, so I was thinking, "There's still a chance I don't have it", then the doc said "Well, your brother tested positive," my expression changed from hopeful to a visual condamnation as he said "and you dad is positive too, and you did as well."

My mother and I are the only ones on a gluten-free diet, while my brother scarfs down doughnuts and these crappy little (they're tiny) 120 calorie-each sausage rolls...

The part that's the least fair about all of this:

He's underweight and eats those things like a tiger shark

I'm overweight and I eat like a rabbit most of the time.

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Hey Ya'll! My momwas diagnosed when she was 26 years old, I was diagnosed 6 months later at the age of 6. I think I remeber my brother having a test a while back and it coming bck border-line. He hasn't gone to the g.f. diet, I don't know if he will or not. My mom's sister was tested quite a few years ago, but she didn't call to get her results, major case of denial. I am almost positive that she has it. My mom also thinks that her dad might have had it, but he passed away 5 years ago, so we have no way of knowing. He was very tall, and skinny. My brother is built just like him. I really don't know of anyone else in my family.


"Delight yourself in the Lord and He will give you the desires of you heart." Psalm 37:4

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paternal side: grandma was diagnosed 20 or so years ago. not sure if it's related but grandpa has had diabetes for as long as i can remember.

maternal side: no known history of Celiac but my uncle died recently of colon cancer.

i suspect my sister has it but she won't get tested. she's overweight, has problems with her thyroid and was always the kid with the "nervous stomach". i also suspect there's a decent chance my parents have it too but neither has been tested. my dad certainly won't...he's already said he can't/won't give up bread.


5/23/2008 - blood positive for antibodies

6/24/2008 - negative biopsy

8/11/2008 - DQ2 gene present

7/1/2008 - gluten-free

(and dairy-light until 12/1/2008)

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Hey. As far as I know I am the only one. So if you need to talk let me know. It sucks not knowing anyelse that has it or having your family eating the foods you once loved. :(

missnbagels :):P

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I'm the only one <_< . . . though, I strongly believe my mother has Celiac Disease as well. She refuses to do a biopsy due the fear of being put down under. She had inconclusive blood tests, then they were negative. But, she's got so many symptoms.

It gets furstrating. I have to constantly clean everything or get cross-contaminated.

-Ash.


-Diganosed with Celiac's Disease on April 15, 2005.

"Art washes away from the soul the dust of everyday life"-Picasso

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Paternal grandmother - probably undiagnosed DH

Father - biopsy diagnosed celiac

Cousin (paternal) - DH/celiac

Cousin (paternal) - self diagnosed GI

Cousin (paternal) - Juvenile diabetic

(That's all my paternal cousins!)

Sister, sister's daughter, self and son GI via Enterolab

Other 4 siblings and our 26 other respective children not yet tested...

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