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celiac3270

Thank God, They Found My Problem At Last!

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I am so happy! Yesterday, Feb. 10, I was at the hospital for an upper gi and small bowel follow through. Since I'm still getting sick, despite a small intestine that has been healed for months, he wanted to see if there was a structural problem. Basically, they took photos and looked at my intestines. Then they told me to drink this white liquid that tasted like chalk--disgusting--called barium. They had to wait for it to go through my system, so I walked for about four hours, trying to get it to go through my system. They took x-rays every 30 minutes--they started at 9:00 and I wasn't out of the hospital till about 2:00. When the stuff got through me, they took more x-rays. It sounded like there was a problem since the two radiologists kept questioning where something was or where it led to with my intestines.

The doctor called my mom today: I have malrotation of the intestines. Basically, when I feel stomach pains, it's that my intestines are twisting into a corkscrew and nothing can get through. After awhile, they twist back. Next Tuesday, Feb. 15th, I'm going in for the "surgery"--where they make a small incision at my belly button and do something to correct it.

I'm just so happy that they've found it. My 1 yr. anniversary of diagnosis will be the 18th--and I should be healthy by then! The doctor said I'll feel the results immediately.

I just wanted to share the news and thank everyone who tried to help me find my problem. It's been so long since I've felt healthy!

-celiac3270

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celiac3270-That is so great that they found that!! :D I had that done before to and had to drink all that chalk like stuff. At least they flavored it but it was still pretty nasty. I hope that makes you feel better when you have the surgery done...I'm so happy for you! :D Good luck

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Hey celiac3270, that is so awesome. I'm so happy for you :D. Keep us informed about the outgoing of the "surgery". In germany we press our thumbs to wish you good luck.

:P Now i have to figure out how to make my bread until next tuesday with pressed thumbs :P

Hugs, Stef

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Oh celiac3270, I am soooo happy for you!! That is amazing news!!! You must be on Cloud 9....... finally an answer......

I will be keeping you in my prayers for the "surgery" and pray that you will finally have some relief!!!! I can almost feel your joy over the computer!!!

Have a wonderful day!

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Hi again,

More news. First, they've changed it from Tuesday to Monday. Don't have a time yet. Also, I'll have to stay in the hospital for a few days--gosh, didn't realize it was that major--I thought of it kinda like an endo, but with a slight incision. I'm scared to even think of a hospital nutritionist w/ my food and all--after all, I've heard stories here about the dietician who brings you white bread and thinks it's all right since it's white, not wheat. I'd know not to eat it, but I'd be scared of contamination or hidden gluten they wouldn't check out. So I'm bringing my own food. Thank you for the well wishes :D.

I am really excited that they found it--on Cloud 9, as Karen said :) --just kinda scared about the procedure if I need to stay in the hospital for days--darn, that means I'll miss a couple days of posting...lol...I'm on multiple times a day--I'll go nuts :lol:

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Guest Leidenschaft

Hey celiac3270, in dogs and horses we call that "bloat"!! :D It's often instantly fatal! :blink:

Good to hear that you've finally learned something concrete AND they can fix it! :P

Hope they don't poison you in the hospital, and that you can thoroughly enjoy your favourite gluten-free meal on your anniversary!

Good luck!

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Oh, i'm so happy for you. That's so cool! :lol: Finally a really good happy end with all of our "scary" stories. Woohoooh! I'm sure, everything will work fine and we will think of you, while your not here. B)

Hugs, Stef

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celiac3270 ~ I am so happy they found out what was causing your pain! I will be looking for updates and keeping you in my thoughts next week.

BTW yep I get but what about white bread OR I am sure everyone can appreciate it, But it isn't Wheat flour, it's White Flour. <_< Yep and white flor is BLEACH wheat flour, sigh.

:wub: and Fingers Crossed!

~Jessica

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Guest jhmom

celiac3270, I am very happy they found your problem and now you are on the road to GREAT health!!!!! :D We will miss you while your in the hospital!!!!

You will be in my thoughts and prayers.

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celiac3270-

Congrats, on the diagnosis (is that proper to say when somebody has to have surgery?? ha :blink: ) I have a friend who has that condition. Take care of yourself and you will be in my prayers and thoughts!! Good luck and don't worry about things too much, the added stress isn't good for you.

-Jessica :rolleyes:

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celiac3270,

I am very happy that the doctors found your problem. We will all be thinking of you and know that you will feel much better after you recover from the surgery! :rolleyes:

Beverly

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Hi celiac3270,

Don't know if you've had surgery before, but I sure have...many times.

My best advice: As they put you under, sing your favorite song to yourself in your head, and think of your favorite person...you should wake feeling happy :)

Best wishes for a very speedy recovery,

Gina

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You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I had surgery in July 2004 for severe adhesions which were keep my intestines stuck to other organs. BM's were horrible....as there was so much pain afterwards. I feel soooooooooooo much better since having everything freed up! but.....I still have to watch my diet with respect to the intolerances.

Hang in there better days are coming!

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You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I am getting ready--and bringing many gluten-free foods in case I they try to give me white bread and saltines and I decide that I can't trust their food.

I will post when I get out--which will be Wed. or Thurs., I think.

And I know about the gluten-free diet--I'm just thrilled cause this should be the end of my symptoms.

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celiac3270,

I know you are probably already in bed getting a good rest for tomorrow but I wanted to wish you luck and send you healthy vibes..... You will do fine tomorrow and I will be thinking about you all day tomorrow!! A new world is opening up for you!!!!

Good Luck!!!!

Karen

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Hi celiac3270,

I just thought about you. Positive energy from me also. And get well soon.

Hugs, Stef

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Yeah, I really hope, everything is alright. He's a good kid!

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celiac3270, I'm so pleased to hear you finally have an answer to your problems. Try not to worry about your hospital stay. We'll all be thinking of you.

Let us all know the next exciting chapter when you can.

Prayers being said for you... :wub:

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:lol: I just realised that celiac3270's surgery is probably all over by now.

It's going to be good to get that update when he gets home!

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