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Thank God, They Found My Problem At Last!


celiac3270

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I am so happy! Yesterday, Feb. 10, I was at the hospital for an upper gi and small bowel follow through. Since I'm still getting sick, despite a small intestine that has been healed for months, he wanted to see if there was a structural problem. Basically, they took photos and looked at my intestines. Then they told me to drink this white liquid that tasted like chalk--disgusting--called barium. They had to wait for it to go through my system, so I walked for about four hours, trying to get it to go through my system. They took x-rays every 30 minutes--they started at 9:00 and I wasn't out of the hospital till about 2:00. When the stuff got through me, they took more x-rays. It sounded like there was a problem since the two radiologists kept questioning where something was or where it led to with my intestines.

The doctor called my mom today: I have malrotation of the intestines. Basically, when I feel stomach pains, it's that my intestines are twisting into a corkscrew and nothing can get through. After awhile, they twist back. Next Tuesday, Feb. 15th, I'm going in for the "surgery"--where they make a small incision at my belly button and do something to correct it.

I'm just so happy that they've found it. My 1 yr. anniversary of diagnosis will be the 18th--and I should be healthy by then! The doctor said I'll feel the results immediately.

I just wanted to share the news and thank everyone who tried to help me find my problem. It's been so long since I've felt healthy!

-celiac3270

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celiac3270-That is so great that they found that!! :D I had that done before to and had to drink all that chalk like stuff. At least they flavored it but it was still pretty nasty. I hope that makes you feel better when you have the surgery done...I'm so happy for you! :D Good luck

Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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Hey celiac3270, that is so awesome. I'm so happy for you :D. Keep us informed about the outgoing of the "surgery". In germany we press our thumbs to wish you good luck.

:P Now i have to figure out how to make my bread until next tuesday with pressed thumbs :P

Hugs, Stef

Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Oh celiac3270, I am soooo happy for you!! That is amazing news!!! You must be on Cloud 9....... finally an answer......

I will be keeping you in my prayers for the "surgery" and pray that you will finally have some relief!!!! I can almost feel your joy over the computer!!!

Have a wonderful day!

Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Hi again,

More news. First, they've changed it from Tuesday to Monday. Don't have a time yet. Also, I'll have to stay in the hospital for a few days--gosh, didn't realize it was that major--I thought of it kinda like an endo, but with a slight incision. I'm scared to even think of a hospital nutritionist w/ my food and all--after all, I've heard stories here about the dietician who brings you white bread and thinks it's all right since it's white, not wheat. I'd know not to eat it, but I'd be scared of contamination or hidden gluten they wouldn't check out. So I'm bringing my own food. Thank you for the well wishes :D.

I am really excited that they found it--on Cloud 9, as Karen said :) --just kinda scared about the procedure if I need to stay in the hospital for days--darn, that means I'll miss a couple days of posting...lol...I'm on multiple times a day--I'll go nuts :lol:

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Oh, i'm so happy for you. That's so cool! :lol: Finally a really good happy end with all of our "scary" stories. Woohoooh! I'm sure, everything will work fine and we will think of you, while your not here. B)

Hugs, Stef

Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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That's great they found it!!! Good luck with the surgery, and a speedy recover!

Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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celiac3270 ~ I am so happy they found out what was causing your pain! I will be looking for updates and keeping you in my thoughts next week.

BTW yep I get but what about white bread OR I am sure everyone can appreciate it, But it isn't Wheat flour, it's White Flour. <_< Yep and white flor is BLEACH wheat flour, sigh.

:wub: and Fingers Crossed!

~Jessica

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celiac3270-

Congrats, on the diagnosis (is that proper to say when somebody has to have surgery?? ha :blink: ) I have a friend who has that condition. Take care of yourself and you will be in my prayers and thoughts!! Good luck and don't worry about things too much, the added stress isn't good for you.

-Jessica :rolleyes:

Jessica

Gluten Free since 12-31-2002!!

Kansas

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celiac3270

I am so happy for you... Finally an answer to all your troubles.

You will feel better before you know it! I hope the surgery goes well! B)

Best of luck,

Carrie

Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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Hi celiac3270,

Don't know if you've had surgery before, but I sure have...many times.

My best advice: As they put you under, sing your favorite song to yourself in your head, and think of your favorite person...you should wake feeling happy :)

Best wishes for a very speedy recovery,

Gina

"Get busy living

or get busy dying."

From: The Shawshank Redemption

--------------------------------------------------------------

gluten-free since Jan 1 '05

Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:

Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA

via blood testing 53 days after I began the gluten-free diet on my own:

Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9

Since 30+ = positive for Celiac Disease when ingesting gluten, my doc

diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point

-------------------------------------------

Endoscopy with biopsies, AND colonoscopy with biopsies were done,

only to rule out other possible GI problems (especially intestinal

lymphoma) - My doctor told me the results indicated "no current damage

found" - and that as long as I stay gluten-free, I don't need another

biopsy for ten years.

Follow-up blood testing was done about one year later, by the same

Gastro doc, in Nov '05:

Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)

He then told me my tests results were back to normal, and "Keep up the

good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am

staying gluten-free.

------------------------------------------------------------------------------------------

ADDTIONALLY:

I was also diagnosed as positive for antibodies and autoimmune

response to gliadin by Enterolab, via stool specimen taken 56 days

gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit

---------------------------------------------------------------------

I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:

"positive" for casein antibodies from Enterolab (in Feb '05)

and

"positive" for casein IgG (Elisa) via York Labs' finger-prick blood

test, Sept '05

and continued 'stomach pains,' although nothing compared to before

going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!

**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood

Frequent childhood stomach aches, underweight, picky eater

Tooth enamel problems/excessive cavities in childhood

Diagnosed in 20's with non-allergic rhinitis

Two spontaneous abortions (childless)

IBS diagnosis at age 28 (all better post going gluten-free and casein-free)

["Horrible" digestive problems from ages 32-47 - excess gas,

diarrhea gone post gluten-free!]

Reflux diagnosis at age 35 ('reflux' gone post gluten-free)

ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)

Broke elbow in 2 places, age 39

Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -

taking Calcium and Vit D now)

Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)

Minor depression with anxiety diagnosed at age 42 (taking Paxil)

Skin cancer - squamous at age 43 and pre-melanoma at age 45

Adult acne (this, too, went away, but only after going dairy-free)

Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46

(That's gone now, too!)

Excessive bruising of skin began at age 45:

I was told by derm doc AND family physician "That's just thin, aging

skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual

bruising POST going gluten-free! I can now wear skirts and shorts

again!)

SO many years of being sick...

Hopefully, others will benefit from Science, and the increasing media

attention being given to Celiac Disease and gluten-based illnesses,

and will not have to go through what I, and others on here, have had

to go through.

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You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I had surgery in July 2004 for severe adhesions which were keep my intestines stuck to other organs. BM's were horrible....as there was so much pain afterwards. I feel soooooooooooo much better since having everything freed up! but.....I still have to watch my diet with respect to the intolerances.

Hang in there better days are coming!

Mel

mela14@optonline.net

10 years of abdominal problems, incorrectly diagnosed with Endometriosis / suffered 7 surgeries. Total hysterectomy 2 years ago!

Fibromyalgia, Chronic Fatigue, Interstitial Cystitis ,IBS, Migraines, Primary Immune Deficiency to name a few. Finally realizing that food intolerances make them all worse!

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You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I am getting ready--and bringing many gluten-free foods in case I they try to give me white bread and saltines and I decide that I can't trust their food.

I will post when I get out--which will be Wed. or Thurs., I think.

And I know about the gluten-free diet--I'm just thrilled cause this should be the end of my symptoms.

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celiac3270,

I know you are probably already in bed getting a good rest for tomorrow but I wanted to wish you luck and send you healthy vibes..... You will do fine tomorrow and I will be thinking about you all day tomorrow!! A new world is opening up for you!!!!

Good Luck!!!!

Karen

Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Hi celiac3270,

I just thought about you. Positive energy from me also. And get well soon.

Hugs, Stef

Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Share on other sites

Yeah, I really hope, everything is alright. He's a good kid!

Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Share on other sites

celiac3270, I'm so pleased to hear you finally have an answer to your problems. Try not to worry about your hospital stay. We'll all be thinking of you.

Let us all know the next exciting chapter when you can.

Prayers being said for you... :wub:

SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.

gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004

positive biopsy -Nov. 2004

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:lol: I just realised that celiac3270's surgery is probably all over by now.

It's going to be good to get that update when he gets home!

SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.

gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004

positive biopsy -Nov. 2004

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