-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Babygirl877 replied to Babygirl877's topic in Coping with Celiac Disease2Recently diagnosed with Celic disease
Thank you so much -
- trents replied to Babygirl877's topic in Coping with Celiac Disease2Recently diagnosed with Celic disease
Welcome to the forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help: -
- trents replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Decreasing tTiga?
@ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two state...- 1
-
-
- ErinV replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Decreasing tTiga?
Hi- thanks for the reply. Happy to give more information. No one in my family or the fathers family has celiacs. We’ve all tested and neither of us, nor my other daughter have the genetic markers for it. these are what the lab results say: Endomysial Antibody Titer- Normal value: <1:5 titer. Hers were at 1:10 the past 3 times and t...- 1
-
-
- plumbago replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Decreasing tTiga?
Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.1k
-
Total Posts71k
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
-
Welcome to the forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help:
-
@ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two statements are in direct contradiction to one another. Where did she get the genes for potential celiac disease then?
-
Hi- thanks for the reply. Happy to give more information. No one in my family or the fathers family has celiacs. We’ve all tested and neither of us, nor my other daughter have the genetic markers for it. these are what the lab results say: Endomysial Antibody Titer- Normal value: <1:5 titer. Hers were at 1:10 the past 3 times and then this time it came back on her portal as just “negative” Her platelets this time came back at 451, and the normal range is 150-400. They have been in the normal range the past three times. Tissue Transglutaminase Ab- <15.0 Antibody not detected > or = 15.0 Antibody detected Her Value 76.1 this time. 8 months ago it was 140, 6 months before that it was 120 and the time before that it was 72. From what I’ve read and from the doctor, this is the most specific test for celiac and what we should focus on the most. 76 is still extremely high, but why did it decrease when nothing in her diet has changed?
-
Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is not new that there's no real health status change. Personally, I don't like that assessment, and I would question it. From the bits you have posted, it does look like she has Celiac, but I would want to see a more comprehensive panel. It's good you've continued doing the blood tests, and are in general staying on top of it. (Are there others in either your family or the child's father's family that have had Celiac?) People without Celiac do not test positive, regardless of the level. Other moderators on this board may have more up to date information than I do, but I think that's still true. Plumbago
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.