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samcarter

Wow, People Really Don't Get It...

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I agree the most common one is "But a little bit won't hurt, will it?" or "surely you can cheat just this once" as though its just a weight loss diet I'm on! They don't realise the damage a little bit of gluten can cause.

But if people care and they want to know what its about they will go out of the way to find out. My boyfriend read a book by a dietician about gluten sensitivity and pretty much diagnosed me before the doctors did. He's so sweet that when we go shopping he reads every single label of the food items he picks up! Even my parents, who I thought wouldn't take it seriously, made the effort to look it up on the internet and to make me a gluten free meal when I went to visit. I think they were just glad I'd found something that worked after all these years of suffering!

Eating out is the hardest though. If you tell a waiter that your allergic to wheat (which is the only thing they understand) they look at you gone out and ask what foods you can't have. They work in a restaurant and don't know what foods contain wheat!

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Two weeks ago I went to an all day training that included lunch. I asked what lunch was and was told oh we just order a box sandwich lunch from the deli. I told the woman I can't eat wheat and she offered to get me a salad. I asked for the dressing to be put on the side and no crutons. I was starving by the time lunch came around. Of course there was donuts, muffins, and pastries of every assortment to be had. Lucky for me there were also grapes. My salad arrived covered in crutons. That will be the last time I don't bring my own food. Like Scarlett said, " I'll never be hungry again!!" ;)

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It does me so much good to read these posts. I have been eating gluten-free for 10 months and have probably had every reaction you have all described!

I finally made up my mind that I will never go to a function without taking my own food. I will never attend a party & be ashamed to ask about the ingredients, but still take my own food. I will definately never attend a family function, except with my Mom who is great about it, and not take my own food.

I decided if I were diabetic, as some family members are, I would never be ashamed to ask the contents of food I might eat. I have a disease and protecting myself against poisoning must be a priority that I am not embarassed about. I am not responsible for other people's ignorance.

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I actually love educating people about what gluten is. Most people are very receptive and interested. In fact, they get really excited when the find something labeled Gluten Free and always call me to tell me about it and ask if I want them to buy it for me!

I have gotten some comments that maybe I'll outgrow this. And, some people do make me feel like a completely pain in the butt, but those who really love me are trying very hard.

I think the funniest comments I have gotten were: "Oh, I have a friend who can't eat gluten. She's a .... necropheliac." and

"This young lady can not eat wheat. She has a glutton allergy." (Yes, ladies and gentlemen, I am allergic to fat people!)

Treen Bean

gluten-free 2 years!

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You're exactly right! AND I get so tired of seeing the words "natural flavors" on everything without any further information :o .

You are so right, Robin! I called about throat drops I reacted to & was told "natural flavors" was a propriotory formula. She wouldn't tell me what was in it. So now I don't know why I reacted. If I had gone into shock maybe then they would "disclose".

Angie in Indiana

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Sometimes I wish poisoning was not such a serious felony!

(except the apparent case of gluten!!!! which can be done with complete immunity)

this is a GREAT point!

From now on I will tell these rude people "Gluten is essentially a poison for me" and that ought to help them understand the seriousness of the situation.

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Most people do not care about or read ingredient labels. Most have zero idea what gluten is! Once in a restaurant I asked if a veal dish had any gluten product in it. She went to ask the chef, and came back telling me "No, it doesn't have gluten, it is only breaded with white flour."

I'm reminded of my mother-in-law, who when we told her our son is allergic to peanuts, she said "But can he have peanut BUTTER?".

When out, I ask about the inclusion of wheat and then progress to the more specific gluten if the people seem knowledgeable. I get them to tell me what was added in preparation. And many restaurants have become knowledgeable about gluten lately, so that's good.

As for friends/family offering gluten items, it's not hard to decline. If they don't like my explanation, that's their problem!

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Hahahahahaha!! Thats like saying to a person with a peanut allergy.."I use smooth not crunchy" hahahahaha.....

I remember reading somewhere (I think it was an EMT's blog) about a woman they picked up in the ambulance who KNEW she had a peanut allergy, but thought smooth peanut butter was okay. Geesh.

I half jokingly told my son the other day that I was just going to start telling restaurant people that he had a bread and pasta allergy so they'll stop offering me the white bun.

In the year since he was diagnosed I've heard them all:

From a friend's mom: "He can have the cookies I made today, I made them with white flour"

From my FIL: "Cobblestone Mill Sourdough bread is gluten free, I have problems with wheat and it doesn't bother me."

From restaurant employees (twice): "So, you want the white bread bun?"

From another mother: "So, he can't have any peanuts?" (at least she was trying)

And then there's my MIL, who absolutely does not get CC issues and feels the need to comment on the fact that I have 2 toaster ovens every.single.time she visits.

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And then there's my MIL, who absolutely does not get CC issues and feels the need to comment on the fact that I have 2 toaster ovens every.single.time she visits.

My MIL doesn't get it either. We were at the beach about 6 weeks ago, and I told her I couldn't eat something. She said, "But you're on vacation."

Right. Cause my immune system goes on vacation, too!! I can't believe I didn't know that! :lol::lol:

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Recently I got into an "argument" with an acquaintance who insisted I could eat her homemade bread "because I grind my own wheat and there's no gluten added to it." She insisted that bread does not have gluten in it if you make it yourself, and pointed to the fact that you can buy gluten separately as "proof" that it is added later to bread.

We went to Cheesecake Factory yesterday, and I asked our waiter if they had a gluten-free menu. He came back with a "free" to-go menu that I could take home with me. :rolleyes:

I did order their Godiva chocolate cheesecake (flourless crust) and it went down well :)

I never know whether to say I'm sensitive to gluten, wheat or flour because it seems saying just one results in blank stares!

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We went to Cheesecake Factory yesterday, ...

I did order their Godiva chocolate cheesecake (flourless crust) and it went down well :)

I'm glad you didn't get sick, but I would be cautious about Godiva and Cheesecake Factory cheesecake, based on comments of other posters who have contacted the companies:

From Smiles, 8-28-08: I was not sure where to post this, but I contacted cheesecake factory because that is the food I will probably most miss and even though sugar is out of question for the moment with me, I would like to one day eat a cheesecake again....

Here is there response:

Thank you for your email!

Our Godiva Chocolate Cheesecake is gluten free. However, the pan that is baked in is sprayed with a pan release that contains a trace amount of flour.

From olalisa, 2-8-07: I went to their (Godiva's) website a while back and did the online chat with a person there who sent me their official statement that none of the chocolates are safe for someone with gluten intolerance. I wish I had copied it so that you could read it here, but it was pretty clear.

Just thought you might want to know.

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Recently I got into an "argument" with an acquaintance who insisted I could eat her homemade bread "because I grind my own wheat and there's no gluten added to it." She insisted that bread does not have gluten in it if you make it yourself, and pointed to the fact that you can buy gluten separately as "proof" that it is added later to bread.

I hope you were able to convince her. If not, you might print out some info from the internet (and gently tell her that, although you appreciate her efforts and you know she would not intentionally make you ill, her misunderstanding could have had very bad consequences.

From Wikipedia:

"Gluten is a composite of the proteins gliadin and glutenin. These exist, conjoined with starch, in the endosperms of some grass-related grains, notably wheat, rye, and barley. Gliadin and glutenin comprise about 80% of the protein contained in wheat seed. Being insoluble in water, they can be purified by washing away the associated starch. Worldwide, gluten is an important source of nutritional protein, both in foods prepared directly from sources containing it, and as an additive to foods otherwise low in protein.

The seeds of most flowering plants have endosperms with stored protein to nourish embryonic plants during germination, but true gluten, with gliadin and glutenin, is limited to certain members of the grass family. The stored proteins of maize and rice are sometimes called glutens, but their proteins differ from wheat gluten by lacking gliadin. The glutenin in wheat flour gives kneaded dough its elasticity, allows leavening and contributes chewiness to baked products like bagels.

Although wheat supplies much of the world's dietary protein and food supply, as many as 0.5% to 1% of the population of the United States has celiac disease, a condition which results from an inappropriate immune system response to gluten.[1] The manifestations of celiac disease range from no symptoms to malabsorption of nutrients with involvement of multiple organ systems. The only effective treatment is a lifelong gluten-free diet."

Hope that helps your acquaintance before she poisons some poor celiac!

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Recently I got into an "argument" with an acquaintance who insisted I could eat her homemade bread "because I grind my own wheat and there's no gluten added to it." She insisted that bread does not have gluten in it if you make it yourself, and pointed to the fact that you can buy gluten separately as "proof" that it is added later to bread.

We went to Cheesecake Factory yesterday, and I asked our waiter if they had a gluten-free menu. He came back with a "free" to-go menu that I could take home with me. :rolleyes:

I did order their Godiva chocolate cheesecake (flourless crust) and it went down well :)

I never know whether to say I'm sensitive to gluten, wheat or flour because it seems saying just one results in blank stares!

That's like saying lobster doesn't come from the sea, it comes from the kitchen.

My boyfriend said something mean about her that I can't really reprint here..... :)

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She insisted that bread does not have gluten in it if you make it yourself, and pointed to the fact that you can buy gluten separately as "proof" that it is added later to bread.

Vivid evidence that a *little* knowlege can be dangerous!

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Oh, I know. Plus celiac is new to the public, as far as awareness, and their generation (born during the Depression) is not as aware of it. My friend just loves to feed people; it's kind of how she shows love. If I give them something i've made, she feels she needs to reciprocate. She *always* has treats for the kids when they go over there, too.

people don't understand this is really a disease and not a allergy

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So yesterday i took my kids with me to visit our neighbors (elderly, husband has MS and doesn't get out much, sweet, adorable people we love). The wife is always offering me something to eat--usually cookies or quick bread or something. They asked how I was doing and I just said I hadn't been feeling well lately, but had stopped eating wheat and noticed a big change, and that my doctor was okay with it (he did say that if it made me sick, to not eat it).

The husband seemed to understand, but the wife...well. She knows I love to bake and said, "Oh, that means you can't eat your own bread!" She then went on to advise, "I get this flour at the store, it's called "bread flour" and I bet you could use that, it's not wheat flour." I told her that all flour, unless it says otherwise, is made from wheat. She said, "really?" :o

Later she asked, "What about cookies, you can have cookies, right?" I said, no, not if they were made with flour.

Then she brought out a box of cranberry quick-bread mix (I think Krust-ease or something) and said, "Here, read the label, see if there's anything you can't have." I took it and pointed out, "Wheat flour, first ingredient."

Meanwhile her husband was just shaking his head in disbelief. :lol: She's not unintelligent, it's just I think honestly the general public doesn't understand that wheat is in practically everything. And it's not "Whole wheat" that's the problem (that's what she thought about the bread flour issue). There's just not anything out there that the average person hears about gluten intolerance or celiac.

She did also ask, "Well, just a little bit won't hurt you, right?" Her husband said, "Hey, if she's feeling good without it, she don't need to eat it!" :D

I know what you mean!!! I get asked the stupidest questions...can you eat fruit? wait you cant eat milk right? oh and my all time favorite... so you can only eat things with gluten in it?

haha just thought i would share.

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Perfect timing for this thread to reappear. Yesterday, one co-worker brought in homemade muffins. Another tells her how good they are and asks what's in them. So the first starts telling her the ingredients, and Lisa looks at me and says, "Whole wheat, so Deb can have them, right?" So I looked at her and said, "Yeah Lisa, I can have whole wheat, I just can't have little pieces of it!" <_< My boss' s wife turns to me and says, "Is that true Deb?" :huh: She's the one I honestly thought understood gluten free. I give up!!! It's been nearly 4 years now, and nearly everyday I have to remind them of the foods I can't have. Finally, I have to admit, they just do not care and will never understand.

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I generally expect that people will not be understanding, and that I'll have to defend my every (food) move for the rest of my life.

A few gems include:

"I thought you couldn't eat bread, so why are you eating that sandwich?" (In a nasty tone, too!)

"It's gluten free bread."

"What?! How do they even MAKE that?"

Luckily a couple friends jumped in at this point and helped me explain.

"You can't have gluten? Okay... let me go check with the chef and make sure this is sugar-free." and "But ice cream has SUGAR!!"

My response: "Gluten is not the same thing as glucose. Gluten is a protein in wheat, rye, barley and oats. I can have all the sugar I like, as long as there's no flour."

"Oh..."

My favorite story:

When I was flying to Hong Kong about a year ago, I was by myself and stuck in the longest part of the flight (from the States to Japan) next to this older guy who was flying to China to meet up with some woman. He was downright creepy, and told me I could lean on his shoulder to sleep if I wanted (er, no thanks!) and said many other weird things along the way. If I would start to read a book, he'd start chatting, so I had to pretend to be napping, or pretend to be watching the screen, or pretend to read WITH my ipod at full blast so he would think I couldn't hear him. Longest flight of my life, ugh!

Anyway, the snack cart comes by with pretzels, and they hand me a pack, which I hand back saying "sorry, I'm allergic."

Next thing I know, this dude is grilling me about what I can and can't have. He didn't believe that I was really unable to eat it, he thought I was on a "diet". When my special gluten free meals came around, he got really inquisitive and annoying. When his meals came around, he'd start offering me stuff, and it seemed like he was trying to test me. He'd offer me a roll, and I'd be like "I can't eat bread."

"Really?"

"Bread is made with flour, flour is typically made with wheat."

"Oh. Do you want my Oreos?"

"I can't eat them, either."

"Really? There's flour in this stuff, too?? I don't believe you."

"Then read the label."

"Oh, I guess there is flour in this. So then you can't have pasta?"

When the breakfast arrived (which I couldn't eat, naturally, as airlines loooove to serve everything in sandwich form) he started pestering me about the flour content of croissants. I don't honestly believe he was that dumb, I just think he was trying to test me. Again, he seemed set that I was just on some fad diet, and it's like he was trying to prove to himself that I actually did know what gluten was and what it was in.

Let's be real: it was the most miserable flight of my entire life. I probably should have asked to move, but the flight was packed and I never saw empty seats anywhere.

So next time some stranger starts to question your food choices, thank your lucky stars you are not stuck on a 14 hour flight next to that person.

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Recently I got into an "argument" with an acquaintance who insisted I could eat her homemade bread "because I grind my own wheat and there's no gluten added to it." She insisted that bread does not have gluten in it if you make it yourself, and pointed to the fact that you can buy gluten separately as "proof" that it is added later to bread.

We went to Cheesecake Factory yesterday, and I asked our waiter if they had a gluten-free menu. He came back with a "free" to-go menu that I could take home with me. :rolleyes:

I did order their Godiva chocolate cheesecake (flourless crust) and it went down well :)

I never know whether to say I'm sensitive to gluten, wheat or flour because it seems saying just one results in blank stares!

The best way to explain "added gluten" is to say that some people are not contented

with the natural amount of gluten found in wheat, so they add more to it to make the

dough/baked goods much more elastic than natural. In all my years of baking

gluteny baked goods, I've never had to use "gluten" as an ingredient.

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I generally expect that people will not be understanding, and that I'll have to defend my every (food) move for the rest of my life.

A few gems include:

"I thought you couldn't eat bread, so why are you eating that sandwich?" (In a nasty tone, too!)

"It's gluten free bread."

"What?! How do they even MAKE that?"

Luckily a couple friends jumped in at this point and helped me explain.

"You can't have gluten? Okay... let me go check with the chef and make sure this is sugar-free." and "But ice cream has SUGAR!!"

My response: "Gluten is not the same thing as glucose. Gluten is a protein in wheat, rye, barley and oats. I can have all the sugar I like, as long as there's no flour."

"Oh..."

My favorite story:

When I was flying to Hong Kong about a year ago, I was by myself and stuck in the longest part of the flight (from the States to Japan) next to this older guy who was flying to China to meet up with some woman. He was downright creepy, and told me I could lean on his shoulder to sleep if I wanted (er, no thanks!) and said many other weird things along the way. If I would start to read a book, he'd start chatting, so I had to pretend to be napping, or pretend to be watching the screen, or pretend to read WITH my ipod at full blast so he would think I couldn't hear him. Longest flight of my life, ugh!

Anyway, the snack cart comes by with pretzels, and they hand me a pack, which I hand back saying "sorry, I'm allergic."

Next thing I know, this dude is grilling me about what I can and can't have. He didn't believe that I was really unable to eat it, he thought I was on a "diet". When my special gluten free meals came around, he got really inquisitive and annoying. When his meals came around, he'd start offering me stuff, and it seemed like he was trying to test me. He'd offer me a roll, and I'd be like "I can't eat bread."

"Really?"

"Bread is made with flour, flour is typically made with wheat."

"Oh. Do you want my Oreos?"

"I can't eat them, either."

"Really? There's flour in this stuff, too?? I don't believe you."

"Then read the label."

"Oh, I guess there is flour in this. So then you can't have pasta?"

When the breakfast arrived (which I couldn't eat, naturally, as airlines loooove to serve everything in sandwich form) he started pestering me about the flour content of croissants. I don't honestly believe he was that dumb, I just think he was trying to test me. Again, he seemed set that I was just on some fad diet, and it's like he was trying to prove to himself that I actually did know what gluten was and what it was in.

Let's be real: it was the most miserable flight of my entire life. I probably should have asked to move, but the flight was packed and I never saw empty seats anywhere.

So next time some stranger starts to question your food choices, thank your lucky stars you are not stuck on a 14 hour flight next to that person.

Should have told him that gluten also makes you throw up....he probably would

have left you alone.

I have a friend who was about 21 at the time, she was model-beautiful, 6' tall, long

blonde hair and men constantly bothered her for dates and it creeped her out as

she was not comfortable with her good looks. I told her to pretend she was

ah...picking her nose....and that would make them run away. She did at times and

it worked.

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People also have selected hearing. My husband was diagnosed in 04 and for

the entire year from 04-05 I was explaining to my co workers and manager

what celiac was all about - only because they saw me reading celiac info at

lunch hour and bringing gluten-free food back from the stores at lunchhour. Many

knew that my husband was diagnosed with it. My mini-manager - I'll call her "D"

(called a Team-Leader over our 2-person unit - and that was a joke! they "gave" her

that title because she was with the company from when she was 17, but she was

a little jealous witch and make life miserable for me for the 3 years I stayed there.

I took the job not knowing that the job was open for months and no one from within

the company wanted the job because they knew they'd have to work with "D")

was annoyed that I did have to make calls during work hours to pharmaceutical companies and

food manufacturers for gluten-free Status. Many I did during lunch hour but oftentimes I

had to leave my name and number for a return call and I could not control

at what hour they'd call me back.

Anyway knowing that my husband was very ill from celiac, knowing that it was

gluten-based, knowing it because you "D" who berated me as I used the phone during work hours

(let's not go into the hundreds of hours "D" used the work phone to call places

and relatives when "D" was making her wedding plans! "D" was a little jealous hyppocrite and a phoney - a co worker - I'll call her "M" a couple of years before "D" finally found a boyfriend at the age of 37 , was making wedding plans and one time "M" had to have the organist from the church call her at work to go over the music and this "D" complained to management about "M" having too many wedding calls - which "M" didn't)

this is what "D" gave me as a Christmas present: Sugar cookie (gluten) mixes with cookie cutters and

sprinkles in a basket. This after explaining to "D" for months about gluten and how I had to

throw away my gluteny pans and bakeware. So people also don't LISTEN.

So "D" FINALLY lands a boyfriend and gets married and does not invite me to her wedding...I was so relieved!!

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Should have told him that gluten also makes you throw up....he probably would

have left you alone.

Hahaha, it was a 14 hour flight... you betcha I got questions about the symptoms. Typically if people pick for details, I'm not embarrassed to say what's what. Tact is not my forte, in any case. This guy was a CREEPER, though. I was actually surprised by most of his reactions to the things I said, and I didn't feel comfortable doling out more details about my disease or personal life than was absolutely necessary.

At one point, I was taking a nap (for real that time) and woke up to find that this guy had left. I was pretty relieved to see how long the lines to all the bathrooms were, if you know what I mean. He comes back and says "you were asleep when I left. I was gone a long time."

"yeah I woke up a while ago and noticed."

Then he went on for a minute about how it's not like he was in there _____ (insert seriously taboo topic that guys nearly never talk about with women they don't know). I was HORRIFIED. You know, what people do in their own is their own business, but just the fact that he would even try and talk about it with me was so inappropriate that from then on I tried very hard to avoid any kind of contact with him at all. I don't know what's worse: the fact that he told me what he "wasn't" doing in the bathroom (uh, gee, thanks?) or the fact that while he was gone, I briefly wondered if that's why he had been gone so long. I normally don't think that way about strangers, but he was so weird in all of his conversations, and it was obvious he was attracted to me, that I just kind of assumed...

The whole thing was just terrible. I remember being afraid to answer symptom questions in detail, in case I when to the loo only to be grilled about whether some gluten slipped into my food and if I was airplane sick, or simply... doing something else. :/ Enlightening him seemed kind of moot anyway, since he really only seemed to care about proving his own theories about me correct.

I was so relieved to get off that plane and board a new one, where I sat next to two Japanese ladies my age who were super nice the whole way to Hong Kong.

Some people just aren't worth educating, he was definitely one of them. After that one conversation, I think I just said "um... okay, well I'm going back to sleep now." I promptly plugged my earbuds back in my ears, blasted some obnoxious rap music out of them, and waited for him to fall asleep so I could watch Harry Potter on the big screen.

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Hahaha, it was a 14 hour flight... you betcha I got questions about the symptoms. Typically if people pick for details, I'm not embarrassed to say what's what. Tact is not my forte, in any case. This guy was a CREEPER, though. I was actually surprised by most of his reactions to the things I said, and I didn't feel comfortable doling out more details about my disease or personal life than was absolutely necessary.

At one point, I was taking a nap (for real that time) and woke up to find that this guy had left. I was pretty relieved to see how long the lines to all the bathrooms were, if you know what I mean. He comes back and says "you were asleep when I left. I was gone a long time."

"yeah I woke up a while ago and noticed."

Then he went on for a minute about how it's not like he was in there _____ (insert seriously taboo topic that guys nearly never talk about with women they don't know). I was HORRIFIED. You know, what people do in their own is their own business, but just the fact that he would even try and talk about it with me was so inappropriate that from then on I tried very hard to avoid any kind of contact with him at all. I don't know what's worse: the fact that he told me what he "wasn't" doing in the bathroom (uh, gee, thanks?) or the fact that while he was gone, I briefly wondered if that's why he had been gone so long. I normally don't think that way about strangers, but he was so weird in all of his conversations, and it was obvious he was attracted to me, that I just kind of assumed...

The whole thing was just terrible. I remember being afraid to answer symptom questions in detail, in case I when to the loo only to be grilled about whether some gluten slipped into my food and if I was airplane sick, or simply... doing something else. :/ Enlightening him seemed kind of moot anyway, since he really only seemed to care about proving his own theories about me correct.

I was so relieved to get off that plane and board a new one, where I sat next to two Japanese ladies my age who were super nice the whole way to Hong Kong.

Some people just aren't worth educating, he was definitely one of them. After that one conversation, I think I just said "um... okay, well I'm going back to sleep now." I promptly plugged my earbuds back in my ears, blasted some obnoxious rap music out of them, and waited for him to fall asleep so I could watch Harry Potter on the big screen.

Can't the airline attendants do something about that?

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I think some people try, but they don't get all the little things. I understand that, because I was totally ignorant of the little things until it mattered to me. I recently went home to visit family. I stayed with my dad who is now living by himself (mom has advanced Alzheimers and now lives in a private home). We were doing birthdays and everyone was bringing something. One of my sisters was making potato salad, which I love, over at my dad's house. She asked about all of the ingredients and I was thrilled thinking, OMG, she gets it. I even told her to use the stainless steel pots instead on the nonstick. She did. Everything is great, right?

Well, I tasted the potato salad and it was yummy. I told her I would help clean up and I looked at the bottom of the pot she used for the potatoes. There was stuff (don't know what) stuck on the bottom, like it had been burned. I was horrified! My dad, bless his heart, is not the best housekeeper since mom is not there. My sister did absolutely everything right except make sure the pot was really clean. I thanked her for making the potato salad, but told her I wasn't willing to risk it. It did not go to waste as we had a huge family gathering and everyone loves it. I'm so happy that she tried so hard.

Another sister got it all right. She made baked beans and asked about every ingredient. She got brisket and smoked turkey and talked to the guy at the meat market to find out all ingredients. I also had gluten-free cupcakes make from a gluten-free bakery.

I think it is really hard because there are so many hidden sources of gluen which many people would not think of. I had to do a lot of reading to find out the little things. I wish my family would read "Living Gluten Free for Dummies". So much info and not so overwhelming.

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      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


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    Hi Lfortson, I assume you are on the gluten-free diet?  So no wheat, rye or barley?  That's good, but there are about 10% of celiacs who react to oats also.  So you might want to get rid of oats for several months and see if things improve. Another somewhat common food issue is dairy.  Some people can't digest lactose (cow milk sugar), and some can't digest casein (cow milk protein).  So it might help to eliminate all dairy for several months also.  Almond milk is a possible substitute
    Thank you for all of the suggestions and information.  I will see a lot of the symptoms that I have that I didn't mention listed caused by lack of certain enzymes.  I have blood tests every 3 months. That is when I noticed my cholesterol, etc. not in check.  I eat too many carbohydrates because it causes less diarrhea than a lot of vegetables.  But in talking to 3 of my sisters they are already on medication for the problem.   One has Celiacs the other has Sjorgrens which I also have.  I'm conce
    For the fog and memory, it can be many things, the brain requires certain ratios and amounts of fat to function, it also requires b-vitamins the full spectrum among other amino acids, minerals and vitamins, nerve functions require magnesium, potassium and other things to fire right.  Celiac can hamper the ability to break down and absorb nutrients, digestive issues and enzymes can further complicate this, and trying to eat the right ratios of foods. I supplement with Liquid Health Mega B-compl
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