Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Need Help...eating And Feeding Evaluation Form From School


strawberrygm

Recommended Posts

strawberrygm Enthusiast

they know she has celiac disease at school. she was just diagnosed this summer.

school has been in for 4 days, tomorrow is day 5.

so far i am just sending her lunch, and she has permission to get fruit and drink and ice cream and veggies from school if there is something she wants and can have.

so far she has bought tangerines and a drink, but thats it.

today the school nurse called, and has sent home a paper to have filled out and signed by the doc just to help educate and make everyone aware and everything official.

(she is planning to come to my support group meeting i am having monday night)

so i need help as to what to put on this form.

it says:

list any dietary restrictions or special diet

list any allergies or food intolerances to avoid

list foods to be substituted

list any special equipment or utensils that are needed

indicate any other comments about the childs eating or feeding patterns

there is also a food allergy action plan, but i dont think that one needs anything as it deals with epipens, etc

also, a note from the nurse that the cafeteria manager sent me a copy of the menu for the whole month and wants me to know that if there is nothing she can eat on a certain day to let her know and she will be glad to fix whatever she needs.

thanks in advance for all your help

i am still new to this, and am learning..............

Link to comment
Share on other sites
  • 4 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tabz Contributor

there  are  gluten free  bread you can buy  or make with gluten free cookbooks  sold in book stores, online.  my first 

 

this  is  a list of what to avoid https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

 

 

incase you need a safe list too

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

 

my mom made me a book  out of the avoid and the safe list in a folder  when I first got celiac spru.

 

 

 

if you need to find some ingredients  like xanthan gum or any other gluten-free flour or baking ingredients in the gluten free cook books

you can go to a health food store or you can shop online.

 

 

sites  I shopped on

Open Original Shared Link

 

Open Original Shared Link

 

Open Original Shared Link

 

on the last 2 sites you need to read the products and make sure they say gluten free cause they don't sell some stuff that isn't.

Link to comment
Share on other sites
kareng Grand Master

there  are  gluten free  bread you can buy  or make with gluten free cookbooks  sold in book stores, online.  my first 

 

this  is  a list of what to avoid https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

 

 

incase you need a safe list too

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

 

my mom made me a book  out of the avoid and the safe list in a folder  when I first got celiac spru.

 

 

 

if you need to find some ingredients  like xanthan gum or any other gluten-free flour or baking ingredients in the gluten free cook books

you can go to a health food store or you can shop online.

 

 

sites  I shopped on

Open Original Shared Link

 

Open Original Shared Link

 

Open Original Shared Link

 

on the last 2 sites you need to read the products and make sure they say gluten free cause they don't sell some stuff that isn't.

Please note you are responding to a 5 year old thread.

Link to comment
Share on other sites
seezee Explorer

If you google celiac 504 you should get some pretty good examples of answers for these questions. Also, try any of the websites of the celiac centers like Childrens Hospital Boston for advice about school.

 

Open Original Shared Link

 

this page has a school packet that is really helpful.

 

Open Original Shared Link

 

this is what usually I put.

 

list any dietary restrictions or special diet

Celiac - No gluten (any foods containing wheat,rye,barley, or oats) - barley may be listed on labels as malt
list any allergies or food intolerances to avoid
list foods to be substituted

Can eat fruit, vegetables, milk (chocolate and regular) [fill in]
list any special equipment or utensils that are needed

Avoid cross contimination with any breads or cereals. Food should be prepared on clean surface. Wash any pots. Only use clean metal utensils (etc.)

 

indicate any other comments about the childs eating or feeding patterns

there is also a food allergy action plan, but i dont think that one needs anything as it deals with epipens, etc

No epi pen is needed

also, a note from the nurse that the cafeteria manager sent me a copy of the menu for the whole month and wants me to know that if there is nothing she can eat on a certain day to let her know and she will be glad to fix whatever she needs.
thanks in advance for all your help
i am still new to this, and am learning..............

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...