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Are These Tests Enough?


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Off Gluten 21 days when I had these tests-Antigliadin Antibody panel IGA,IGG

Tissue Transglutanimase IGG, IGA

Reticulin IGG Antibody IFA

All were negative but I KNOW I am positive. What more do I need them to order and which go negative when gluten-free for a month?

Thanks so much :D

Leslie

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Do you need a positive result for something?

If not you can still eat glutenfree since it makes you feel better.

You could always have the biopsy, too.

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Make sure that you inform your doctor that you were gluten free for 3 weeks before the tests. In order to get accurate results, you need to be eating gluten when you get tested so that there are antibodies in your blood. For some people the antibodies can stay in their systems for awhile, but everyone is different... I'm no expert on this subject, maybe someone else could fill in?

I would discuss this with your doctor. Good luck.

Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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I went gluten-free on my own BEFORE learning that it would interfere with regular testing...BUT, since I felt SOOOO much better after going gluten-free, I cannot possibly make myself eat gluten again, just to try to get positive test results via blood (which aren't always reliable), and I refuse to have any more invasive tests done if I don't need to - i.e.; biopsy (which also isn't always reliable)...2 gastro surgeries are enough for me.

So, anyway....

I used the EnteroLab testing - You can have these tests done EVEN AFTER going gluten-free, and they required only one stool sample and 2 cheek cell samples...all sent via DHL. (You can only send samples on Mon, Tues, or Wed to insure they get there before the weekend.)

I sent my samples off yesterday, and will get my results within 3 weeks. They will be able to tell me if I am suffering from malabsorption (duh!), if my immune system is already messed up by gluten (if it has antibodies to it, and how strongly it is reacting), and if I am genetically loaded for Celiac Disease (which and how many of the genes I might have). I also got a free dairy-intolerance test thrown in :-) [Guess I still just need the test for egg protein, which they also offer, and which can also be a problem for those with gluten-intolerance.]

Here's their web site URL:

http://www.enterolab.com

Good luck to you Lesliean,

Gina

"Get busy living

or get busy dying."

From: The Shawshank Redemption

--------------------------------------------------------------

gluten-free since Jan 1 '05

Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:

Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA

via blood testing 53 days after I began the gluten-free diet on my own:

Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9

Since 30+ = positive for Celiac Disease when ingesting gluten, my doc

diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point

-------------------------------------------

Endoscopy with biopsies, AND colonoscopy with biopsies were done,

only to rule out other possible GI problems (especially intestinal

lymphoma) - My doctor told me the results indicated "no current damage

found" - and that as long as I stay gluten-free, I don't need another

biopsy for ten years.

Follow-up blood testing was done about one year later, by the same

Gastro doc, in Nov '05:

Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)

He then told me my tests results were back to normal, and "Keep up the

good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am

staying gluten-free.

------------------------------------------------------------------------------------------

ADDTIONALLY:

I was also diagnosed as positive for antibodies and autoimmune

response to gliadin by Enterolab, via stool specimen taken 56 days

gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit

---------------------------------------------------------------------

I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:

"positive" for casein antibodies from Enterolab (in Feb '05)

and

"positive" for casein IgG (Elisa) via York Labs' finger-prick blood

test, Sept '05

and continued 'stomach pains,' although nothing compared to before

going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!

**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood

Frequent childhood stomach aches, underweight, picky eater

Tooth enamel problems/excessive cavities in childhood

Diagnosed in 20's with non-allergic rhinitis

Two spontaneous abortions (childless)

IBS diagnosis at age 28 (all better post going gluten-free and casein-free)

["Horrible" digestive problems from ages 32-47 - excess gas,

diarrhea gone post gluten-free!]

Reflux diagnosis at age 35 ('reflux' gone post gluten-free)

ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)

Broke elbow in 2 places, age 39

Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -

taking Calcium and Vit D now)

Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)

Minor depression with anxiety diagnosed at age 42 (taking Paxil)

Skin cancer - squamous at age 43 and pre-melanoma at age 45

Adult acne (this, too, went away, but only after going dairy-free)

Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46

(That's gone now, too!)

Excessive bruising of skin began at age 45:

I was told by derm doc AND family physician "That's just thin, aging

skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual

bruising POST going gluten-free! I can now wear skirts and shorts

again!)

SO many years of being sick...

Hopefully, others will benefit from Science, and the increasing media

attention being given to Celiac Disease and gluten-based illnesses,

and will not have to go through what I, and others on here, have had

to go through.

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