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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Varying Degrees Of D.h.?

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My daughter has had DH once- perhaps twice (maybe as a baby in conjunction with a stomach flu- on her diaper area), most recent, 4 years ago, providing what she has now isn't DH.

Like I said, it has shown up more in a classic sense without a doubt- 4 yrs ago but I'm having a hard time differentiating what is on her skin now.

I thought of taking a picture and trying to load it to show the forum to get feedback- but only one computer loads chips so I haven't gotten on that.

She's had atopic dermatitits all her life, and an allergic skin reaction to peanut products when she was younger- this is different than that. That would look more like a ringworm patch, with a scaliness to it after a week, kind of thick.

This is a bunch of tiny red bumps in an area on her forearm, but not enough to be considered a blister, and definitely not acne or ingrown hair. We tried to show it to the dr. but no response. One or two within the patch are red from scratching and they don't go away easily. (background, she has to stay glutened til the end of the month).

Tiny red bumps, some a tiny bit bigger, some red and opened from itching. Not flea bites either. She has them around her knees too.

Different than the rash 4 yrs ago, different from when and if it was when she was a baby. And only in small patches around her body- another place is on the back of her neck.

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It does sound like DH. And yes DH can change in presentation. When I was your DD's age I looked like I was covered in poison ivy 12 months out of the year. The only times I didn't have oozing sores was for a month or so during and after a heavy dose of prednisone. By my teen years it was only showing up on the inside of my joints at the elbows and knees and the bottom of my feet and on my face it looked like severe acne. In adulthood it was mostly on my scalp, neck, face and my shoulders (I had long hair and used gluteny shampoos and hairdyes) with only occasional outbreaks on my arms and legs. My derm kept telling me I had 'pickers acne' even though he had no answer when I asked him if acne itched and burned. His answer for the blisters were that I had an infection from picking but he again had no answer for why the clear fluid in them burned the adjacent skin. He also never remarked on the scarring. DH leaves distinctive purple scars that take a very long time to fade.

Can you get her in to see a dermatologist? Some of them are now a bit more 'up' on DH than they were back then. He can biopsy the areas beside the lesions to look for the antibodies. Stay with her while he biopsies and if he biopsies the lesions themselves you will know that he doesn't know what he is doing with DH and to ignore it if he says that he has firmly decided that it isn't.

A diagnosis of DH is a diagnosis of celiac and many of us are blanketed under the atopic dermatitis diagnosis for years when derms are not familiar with it.

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Thank you for your reply. It's a web I'm trying to untangle from... all the misinformation for almost 17 yrs. I'm so frustrated.

I can't say that hers turn purple. What's funny is, I get like... one bump occasionally that ends up turning purple... but I'm not the one being tested and it surely isn't enough to go in there.

I'm going to cling to the one time it was DH, though the ped back then said it was contact metal reaction. NO! It spread everywhere like chicken pox looked, but wasn't.

Again, thank you.

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If the bumps are as I described, which aren't blistered, can a biopsy even be done? Do they just scrape?

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If the bumps are as I described, which aren't blistered, can a biopsy even be done? Do they just scrape?

Yes the area beside these could still be biopsied. They would use a very small 'punch' to take a bit of tissue. They do numb the skin first and it is not something that is really scarey or painful. In addition DH is not the only skin effects that we can get. My DD gets excema and my DS used to have small raised bumps all over his chest. Kind of like chicken skin. They never got red or itched and I can not for the life of me remember what the doctor called them. He had them most of his life. After a couple of months gluten-free they were gone.

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Spleen pain!  I had heard that sugar cane was as bad as flour for being drenched in roundup.  Now I was convinced. It was definitely stuff from Canada that was the culprit.  Only farm products.  Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup.   Now I know exactly what I can eat and where.  I love the food here, and it's safe.  There are exceptions.  They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction,  I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before.  A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness.  I react much worse to Canadian chocolate.  But there is a huge difference between food here and food there.  A very painful difference.  Hard to figure out, but I think I have. so here's my theory,  roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease.  If you stop eating roundup completely, you will heal with a healthy diet.  If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm.  Now I believe him. I wish I'd been able to piece this together a bit earlier.  Since 1994, many diseases have hugely increased.  That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and  many diseases. sorry for the novel but I just can't keep this all to myself,  I'm like the canary in the mine.  But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body.  Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body.  So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps!  Stay away from farm products!  I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc.  I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it.  I don't really want to go there,  I just know what I know and I'm sharing it.   this is just the short version  but I've tried to include important info.  Anyone else have a similar story in any way?
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