Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Day Cares - 2 Year Old - Newly Diagnosed


TawnyaK

Recommended Posts

TawnyaK Newbie

Hello, everyone!

I'm interested in hearing what others have done to educate and prepare the daycare for a 2 year old child with celiac disease. My husband and I are in the process of finalizing our adoption of our daughter. Finalization will be November 15th. Gotcha day was June 6th evening at the orphanage in India. I'm on FMLA and will be returning back to work in October. We will be sending our child to daycare after having been home with her for four months. A month ago, she was tested and had a biopsy that confirmed that she has celiac disease. As a result, we are in the process of transitioning to a gluten-free lifestyle.

If you have any suggestions for us with regards to educating the daycare staff, please post them. We are particularly looking for daycare facility/teacher handouts, but do not want any that reference other dietary issues and/or ADHD/behavioral issues as these do not apply to our daughter. She has celiac disease only.

If you have any ideas on snacks and lunch menus for a two year old, that would be helpful. We will need to provide these for the daycare. The current menu at the daycare for three weeks include the following gluten items: cheerios, cheese pasta with marinara, graham crackers, bagel, hamburger on a bun, fig newton, whole grain bread, chili and beans, corn bread, soft pretzel, apple pancakes, chicken strips, whole grain cracker, string cheese, blueberry muffin, chicken enchilada casserole, granola bar, turkey hot dogs, marinara sauce, chicken nuggets, zucchini bread, bread sticks with marinara sauce, cheese pizza, cheese crackers, English muffin with jelly, beef stew with carrots and potatoes, granola bars, turkey tortilla, cheese wrap, wheat crackers, golden grahams, chex mix, bean and cheese burritos with salsa, and sugar cookies. If you have ideas on substitutions and where to obtain them, that would be helpful. We will be sending all of her foods and snacks to the daycare; however, we'd like for her to eat similar items, just gluten-free.

Looking forward to your suggestions!

Tawnya K.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor

Congratulations on your new daughter!

Many of the items you listed are readily available in gluten free format at health food stores. These would include cereals, crackers, pastas, some cookies, etc. You may need to make some of your own at home. Search the board for recipes and you should find lots. Would they be willing to serve just Rice Chex (certified gluten free) instead of Chex Mix?

Most hot dogs are gluten free anyway. The bun may be a problem.

Dinty Moore beef stew is gluten free and would make a great substitute.

There are several other MAJOR problems that I see ahead.

1) Getting the staff to understand that they absolutely *CANNOT* handle gluten food - or anything or anyone it may have touched - and then touch your daughter or her food without thoroughly washing their hands. Use the dog poop analogy. If gluten were dog poop, has it been sufficiently cleaned off? You may need to educate the staff about what items are made of wheat. Far too many people are clueless. The whole gluten free concept is difficult to grasp at first and it may take them a bit to wrap their heads around it.

2) You will *NEVER* get a 2-year old to understand about the touching and the hand washing and they put their hands on everything and then put their hands in their mouths. They also like share as well as to hug and kiss each other on occasion. Cute but not when they have been snacking on cookies and crackers.

3) You may need to provide enough play-dough equivalent for the whole day care center as it gets into everything including under fingernails and from their into mouths.

I'm sure others will be along with links and suggestions. In the meantime, browse through the parents section and you will find a lot of information.

Welcome to the forum!

Link to comment
Share on other sites
mindwiped Rookie

This could be very difficult in a traditional day care center type environment. I worked in the field for over a decade, and the staff ignorance and turnover could make keeping your daughter gluten-free very difficult. Make sure that you provide all her diet, not just the gluten replacement items. The staff knowing they only feed her 'your' food will help. Also, offer to provide gluten-free play dough and other art supplies that are contaminated (pasta). Check your daycare, do they eat in the room they're in all day? If so, everything in the class is going to be contaminated? Do other parents send their darlings in with donuts and pop tarts in the morning, because they 'didn't have time to eat' Our center had to begin a strict no peanut policy, and one class, that had a child with egg, milk, and peanut issues had to instate a 'no outside food' policy. And even then I had to shout to stop an assistant teacher from kissing an allergic child just after eating 'people puppy chow'. She didn't even realize that her snack, brought from home, had peanuts, and would cause the baby to get VERY sick. I know that there are caring, concerned caregivers who will do everything in their power to keep your child healthy and happy, but at the same time, I know center based care from the inside, and it's going to be really easy for the staff to gluten your girl unknowingly. The child with multiple allergies I spoke of, I had to stop a teacher from giving her taco meat, as the teacher didn't know that it had milk powder in the spice packet. And milk is easy compared to gluten, since it had to be labeled as milk, and not 'natural flavors.' Also, as advice, offer to make the center a poster with your daughter's name, a photo, her status as a celiac, and the fact that she can only eat the food you provide. This will help everyone remember that she can't be given that candy, even though it's Halloween, and she looks like she wants it. Sorry that this is a rant, and not encouraging, but you might need to look for a very small center, or a home based caregiver, in order to keep your child gluten-free. Meanwhile, congratulations on expanding your family, and good luck!

...If you have any suggestions for us with regards to educating the daycare staff, please post them. We are particularly looking for daycare facility/teacher handouts, but do not want any that reference other dietary issues and/or ADHD/behavioral issues as these do not apply to our daughter. She has celiac disease only.

If you have any ideas on snacks and lunch menus for a two year old, that would be helpful. We will need to provide these for the daycare. The current menu at the daycare for three weeks include the following gluten items: cheerios, cheese pasta with marinara, graham crackers, bagel, hamburger on a bun, fig newton, whole grain bread, chili and beans, corn bread, soft pretzel, apple pancakes, chicken strips, whole grain cracker, string cheese, blueberry muffin, chicken enchilada casserole, granola bar, turkey hot dogs, marinara sauce, chicken nuggets, zucchini bread, bread sticks with marinara sauce, cheese pizza, cheese crackers, English muffin with jelly, beef stew with carrots and potatoes, granola bars, turkey tortilla, cheese wrap, wheat crackers, golden grahams, chex mix, bean and cheese burritos with salsa, and sugar cookies. If you have ideas on substitutions and where to obtain them, that would be helpful. We will be sending all of her foods and snacks to the daycare; however, we'd like for her to eat similar items, just gluten-free.

Looking forward to your suggestions!

Tawnya K.

Link to comment
Share on other sites
teacherwheart Apprentice

Oh Im curious what others say since my 21 month old was jsut diagnosed with Cleiac and will be starting some sort of daycare in Jan. I have been soo stressed over this and am holding off on any search because of my nervousness.

Link to comment
Share on other sites
stolly Collaborator

When DD was diagnosed (at age 2.5), I met with her daycare/preschool director, teachers, and lunch woman/chef. I gave them lists of common things she can and can't have and explained the importance of preventing cross contamination. We decided it would be best for me to send in all meals and snacks, except for plain fruit/veggies that they served. We also keep extra snacks in her cubby. When DD switched into the 3 yr old room with a new teacher a few weeks ago, I scheduled a meeting with the teacher. I gave her a letter to keep as a reference and reviewed the letter with her; I also attached lists of common foods that are ok and ones to avoid as well as a handout for teachers of celiac children (I'll try to locate the link and will post it i I find it). Her teacher (and the school in general) is very receptive to our requests and questions about our DD's food restrictions and safety, so I feel comfortable with her in that setting. The teacher has DD sit in the same seat for every meal/snack to help reduce cc. They serve meals family style in that room and the teacher said DD has never once reached for anything with gluten. From day 1 of diagnosis we've told her what food makes her belly hurt, and what food makes her belly feel good (she of course doesn't know all of them but she is learning), so she seems to know to ask before just eating something.

Here is a template of the letter:

"Hi Miss _________,

Thank you for taking the time to meet with us to discuss our daughter, ________, and how best to keep her safe at _______.

______ has celiac disease. Celiac disease is an autoimmune disorder triggered by gluten (anything containing wheat, barley, rye, or oats). Although _______ might not have immediate symptoms, even tiny crumbs of gluten can cause weight loss and damage to her small intestine, and increase her risk of developing cancer in the future. Fortunately, all of this can be avoided by eliminating gluten completely.

Common foods with obvious gluten include pasta, bread, pretzels, crackers, waffles, muffins, and cake. Gluten can also be found in some deli meats, candy, ice creams, juices, and other foods, as well as art supplies, such as playdoh and paper mache.

-_______'s parents will provide her main meals and snacks other than plain fruits, vegetables

-Please clean _______

Link to comment
Share on other sites
BarbaQ Rookie

Hello

Try this web site for letters to the principal, teacher, lunch staff. I just copy it into a Word document and make any changes such as other allergies. I also got rid of the acronoms and inserted "gluten".

Open Original Shared Link

If you are bringing food for your child, then maybe also a "treat box" for those times when candy is being given out.

I keep gluten free muffins in the freezor for when birthday cakes are brought in.

We have not yet tackeled the playdough issue yet. My son is not yet 2 and I'm sure he finds things on the floor and they go straight in his mouth. You can worry yourself sick about accidental gluten ingestion. Just do your best to be prepared and teach the staff what is most important. Goodluck.

Barb

Link to comment
Share on other sites
DanaDee Newbie

I'm going to rave about my daycare. I selected an intergrated daycare, it's through UCP, United Cerebral Palsy, and it is designed for special needs kids, but take other kids from the community as well. The have children with Autism, so my gluten free diet kid was nothing new for them, the Autistic community around here has embraced the gluten free diet. They understand my DD"s diet and understand the difference between her and the Autistic kids in that is she get's gluten, it damages her insides.

They have been AWESOME. My daughter is safe there. That being said, I only let her have food from home. I pack 100% of her daily intake. They have a "safe" list of foods posted so that in a pinch, if she is hungry and I didn't pack enough they know some safe options.

I think I will continue through school with lunches from home. I work in school. I don't see ANY way around cross contamination issues.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blindconfusion8 Newbie

I was a day care provider of a child with MANY food allergies, including celiac. (good for you, for loving a celiac sufferer, and way good of you, for preparing now to love her!!!)

My suggestion from the teacher stand point is:

i hope you find a daycare with low ratios... even though the state may allow 6 children to one teacher, 6 kids is a lot to look after at meal time, and kids DO share foods!

+be clear, and seriously concise. (the mother i dealt with was rather wish washy!)

+supply her foods, and don't be afraid to share her snacks with the class. we had special days (fridays) where the parents would supply snack, well, this mom... made it her job to always supply the snacks. this introduced other parents to her way of living, and the food was GOOD!

+make sure the providers understand the severity... (life/death, diarrhea, severe bloating.) make sure they understand that this is not an allergy, where a little exposure is ok. it should never be ok for her to have ANY gluten.

+also, make sure that the staff posts her allergies (this is actually a law) and make sure that the entire staff, whether they are her teacher or not, knows her disease. (you never know when another teacher is going to be in her room)provide a concise list of things that they serve that she can NOT have. this will be an easy guide. (when she is there long enough this will become habit!)

this is a lot. but these are things you may not realize. I don't want to scare you... but i have worked in a day care where a teacher covering a break fed a child with SEVERE allergies to gluten goldfish cheddar crackers, because they were "cheddar" she thought they were ok... (we are not all smart!)

i hope you find this helpful, and good luck...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    2. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    4. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders
      9

      Joint swelling when ill even on gluten-free diet


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,064
    • Most Online (within 30 mins)
      7,748

    Nacina
    Newest Member
    Nacina
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
×
×
  • Create New...